Thank you for your reply, it’s given me some hope that my dad may respond positively to chemo and that maybe he will be able to eat again too. Thank you for the information regarding the chemo, I will try and find out what one my dad will be having.

my mum asked about immunotherapy and it’s not available to my dad here in the UK.

i also feel lost and am finding it hard to be around anyone who isn’t family because I dont want to listen to the daily chit chat I can’t focus on anything other than cancer, I find the school run hard because no one knows and I feel like I can’t say the words because if I do i won’t be able to stop my tears.

i would be interested in the information on the time frame you have been given and also the diet information. 

I would also like to follow your story xx

me too, I dread going to sleep because I know when I wake up I will feel the pain again. I am looking forward to seeing my dad this morning, that is the only time I manage to feel better for a while, I’ve not spent any time alone this week, my partner has taken time off to help support me but today is the day il have to deal with my own company and own thoughts again once I come home from my mum and dad’s house xx

Davek 

wow what an incredible man you are! 

You are doing amazing x

Please make this pain go away for us and our dads , please i only want that , why us , hard to cope Lauren so hard .xx

We also had a lot of problems having to chase for results and appointments. As above - the NHS is overstretched, but I will say that once we were in the ‘system’ the care for cancer patients was fast. Sitting with my dad in the chemo unit made me realise just how many people are relying on this service, there is just cancer everywhere! 

With regards to diet my dad struggled a lot. After things like mash potato became an issue, It really boiled down to soups, the high calorie shakes issued by doctor, jelly, custard, ice lollies and so on. Even then some flavours were too hard for him to take. Water is key! Keep him hydrated. Marks and Spencer do a very high calorie custard. Little and often. 

My mum was the same, she is out from morning until night, I feel so responsible for her and hate the thought of her alone at night, they were married 38years and her life has just been snatched away before he could even retire. I feel so guilty about doing anything with my partner and baby, even when dad was ill I remember feeling so terribly guilty eating around him or even going out for a meal with others because I knew he couldn’t. 

Hi, I have sent you a friend request so I can send the diet info straight to you, proably a bit much to be posting on here direct!

Hi Plebbs , my dad is hardly eating too , could you please send me any diet tips please as im very concerned for him . Thank you very much .

Hi Dave

Thanks for that info, glad to hear of someone who has done much better than their 'average' prognosis! Sounds like there is not a lot of point uprooting our family to move at this stage, unless of course a new drug comes in that is funded in UK but not here... Immunotherapy seems to be the way ahead for some - at least for melanoma - my sister who lives in Australia and has stage four melanoma was told a year ago she had less than 12 months to live but has been on immunotherapy for the last year and their latest 'guess' was that she should still be around in 5 years so much improved there for her- just hope they come up with one for stage 4 OC as well!  They say eventually cancer will just be treated as a 'chronic disease' which you will have but they will contain it... have you tried anything else,eg diet, nutrition, supplements etc?  The oncologist won't advise on any of it and we don't have 'integrated treatment' in NZ at all so I have been looking into it myself and researching it as much as possible, keen to do anything we can to give best outcome!

Yes sure, I have sent you a friend request too so I can send it direct!

Thank you so much , much appreciated .x