Hi mikey 

well dad has had his scan no results today said he should get a letter within the next 2 weeks so just a waiting game now which I guess is the worse part 

Hi Sweetie 

Thank you for letting me know the process , i hope your dear dad gets good news when you get the results .

I agree the waiting for these scans is pure agony . 

On a more positive note , i did talk to a cancer nurse this morning , and she did say that these cancers are pretty slow to grow .

So here is hoping , stay strong you and your dad .

Immunotherapy is available in the UK as i am on it , but it is a trials drug not always available at every hospital , and i am testament that it works as my tumour has shrunk by 46% andagain i feel lucky that i was able to get on it ,i was given 9-12months in the begining and now its 17 months , there are side affects but am able to get around and eat mostly everything

Thank you for your reply. Wow that’s incredible, do you have it alongside chemo or is it a separate treatment? Where are you based if you don’t mind me asking? 

Is your tumour in the oesophagus?

many thanks 

x

I have just Immunotherapy not chemo , i am in London and yes it is oesophagus 12cm x 3cm as i say now shrunk by 46% and lesion in lung now undetectable , in the begining i couldnt eat but had radiotherapy which helped also had a PEG installed which helped with feed but now dont use it only for my diabetic and blood pressure meds as its easier 

Hi Andy this is great to hear you are eating well . Im in London too my dad is suffering cant eat solids and has a cough , waiting for his MRI scan on the 22nd . Can i ask you how old you are and what London hospital are you recieving treatment at ? Sorry for the age question mate:)

Hi Andy,

Wow - that is fantastic news both for you at a personal level and for the rest of us that it gives hope.

I had no idea the trials with OC patients had even started. Like most patients, especially those of us outside some specialist hospital catchment areas, I only have sight of and access to NICE-approved treatments and therapies. 

I hope things go well for you!

Best wishes

Dave 

Hi Mikkey,

I was on a 3-weekly cycle of EOX from October to January. If you click on my username that will link you to my history. I’m hesitant to quote the figures I was given, as not everyone wants to know their own odds and might be tempted to jump to conclusons, but <spoiler alert> I have included the past and more recent figures in my about me page.

The good news is that survival statistics in the UK are far better for OC now than 10 or even 5 years ago. The bad news is that they are still way below the EU average :-( 

best wishes

Dave

Hello Dave 

Thank you for the info , and i am very happy for you that you have defied the odds , great news and well done , my dad is 69 and fit never smoked or drank walks everywhere , i want him to get the best treatment he can as he means everything to me . Dave you are a shining  example to all sufferes of this disease . I just hope my Dad is strong enough to fight this , his cough getting worse and he is so tired , still not had his MRI he needs to be in hospital now i feel . Thanks again Dave very important your case for others .