Hi KathH56

Apology for jumping on the back of your post. Had my diagnosis confirmed to day - Hysterctomy three weeks ago. Awaiting scans and oncology appointment. I avoided the internet until today- like you wish I had kept it that way.  However, I’m holding on to what the oncology nurse said ‘taking one day at a time’. I crazily looked at the prognosis for stage 3- yes I’m stage 3 of a rare cancer.  I think I would be scared if I wasn’t so numb. I think the hardest thing is the sense of twilight zone and powerlessness. My counter at this stage is to be as strong as I can...I think they’re going to eventually go with aggresssive chemo - but have to wait and see. So will focus on each day and find or make positive opportunities for me...there is nothing else I can do.  I not sure if that’s a help. I stumbled on this page because I can’t sleep and in the dark being positive is hard - but it’s more powerful than the alternative.

Take care

Thank you for posting. 

Ive stopped going on the internet - you must too! Every day at a time I keep telling myself but yes as soon as your head touches the pillow boom the mind goes into overdrive. What’s helping me atm is relaxation stories- The calm App ( free for a month! ) 

Some days I’m dead positive others all I think about is my family. But I’m here now

Keep talking and take care

xx

Had my hysterectomy 6 weeks ago- horrendous first week then not too bad . Also having said to myself no more internet I rang the nurses on this site and felt better after I’d spoken to her. 

Three month check end of September for which I’ll be relieved to get over.

Hope you’ve stayed off that b*****internet too

Hi all, was diagnosed with stage 1b lieomyosarcoma . Had surgery 12 weeks ago and first CT was normal. I seen to be living scan by scan. Can't seem to move on