Thank you all so so much for your replies! It really helps. Radio seems less scary now!

I am still waiting to hear about the results from SNB and margins and it is so frustrating that it takes so long. They already told me I'm most likely not gonna need chemo, but I'm still so worried there will be something wrong with the nodes or margin. This is the longest month in my life!

I sometimes, rarely get a little shooting pain in my other armpit and I'm so freaked out that the cancer is there as well :( But I don't know if I'm just being paranoid.

Sending lots of hugs to all of you. We can go through this xxx

Hi

I was diagnosed in early August - I had gone for a chest CT due to a bad xhest

mine was also invasive but lobular not ductile

it was ER positive and grade 2

i had a Lupectomy mid August followed by 5 radiotherapy sessions ( they have now reduced from 15 to 5)

I am on letrazole for 5 years

I can empathise with you as it is a really worrying time but be reassured that the operation and radiotherapy are worth it to give you your life back

Sending blessings and you will be in my prayers

We WERE lucky .... I have had to return to the hospital throughout this summer as I had a secondary cancer scare, MRI and CT scans later and I was given the all-clear (long story) but it was a stressful 6 weeks and I found it worse than when I was originally diagnosed .... because when I had my original diagnosis I was very pragmatic and knew that I had a every chance of a full recovery.  But then when I found I might have secondary breast cancer that was a whole different ball game.  
 

Where was I going with this? Oh yes, just to say that my hospital appointments during COVID were actually a breeze, the clinics were empty, I got seen immediately, often in and out within half an hour- didn't even have to pay for parking!

The thing about the skin from your back is SO interesting .... I mean, aren't bodies amazing?!

Im glad I'm not the only one who hates tamoxifen, I too feel like it's making me into an old lady! Every time I collect my prescription I write on the box how many months I've done / how many left to go.  My next box says 17/43.  Not that I'm counting down or anything ......  x

Hello lovely, try not to worry.  Easy to say, I know.  You should have the results in 2 weeks or less. Concentrate on doing your arm exercises, eating well and resting as much as you need to/can.

Me personally, 3 years on and I'm fine.  Only 2 more years on tamoxifen, which I hate, so looking forward to finishing.  
 

Let us know when you get your results.  Xx

Hi 

yes it's very scary being told you have cancer and believe me it will really change the way you look on life for the better. I appreciate so much more. 
 

I had grade 3 hormone sensitive cancer. I had a 2cm lumpectomy and first mode removed. It hadn't spread to my lymph nodes but because it was quite aggressive they opted for chemo and radio. Sounds scary but it's made me such a stronger person. 
 

I'm 3 years clear this month!!! I still have days where I worry but some days I do have wobbles. I recently had my yearly mammogram which came back with changes. I was a complete mess for 2 days. I had to go back for another in-depth mammogram and biopsy. Luckily it came back as scar tissue but it brought back all those feeling again. 
 

have they spoke to you about freezing eggs? They mentioned it to me but at the time I just wanted the cancer out and treatment to begin. I think if you've not got children you can have this done for free. I'd not long had my little girl when diagnosed so I would have had to pay. Something to ask your BCN about. 
 

xxxxxx

Hello [@NobbyWatts]‍  can i ask how you handled the anxiety of a secondary scare? What happened if you dont mind me asking?

im currently going through it myself and im petrified, i have 2 young daughters and im so anxious. Im only 34

i was diagnosed with grade 2 invasive ductal carcinoma with widespead dcis had a mastectomy with reconstruction and radiotherapy, now on tamoxifen. 
ive had back pain for years ( literally my whole adult life) so finally had a private mri which shows some abnormal signals in my bone marrow in my sacroiliac joints so now waiting on a PET scan. I just don't understand, i didnt need chemo but now wishing i had it! Praying its something else as there are many benign conditions that can cause it but my mind is instantly going to worse case!

thanks

Helen x

Hi love, I'm so sorry to hear you're going through so much anguish.  
 

So far as I know, mine turned out to be nothing.  A year after my treatment I was having a routine eye test at Specsavers when they found an "anomaly" at the back of my eye (and apparently this is just one of the places breast cancer can spread to although I think it is quite unusual).  So I had CT and MRI scans, saw an eye specialist at a local eye clinic who then referred me to the eye department at the hospital.  Anyway they don't really know what it is but they don't think it's anything to worry about and are (excuse pun) keeping an eye on it.

How did I handle it? Well, I'm a quite a bit older than you and don't have children (I'm 59 now) so I just did what I always do - sleepless nights worrying about it! Once they told me they thought it was OK I just settled for that but you'll always worry even if you get the OK.  Every little twinge in my chest or arm I think it's something else ... 

I don't suppose this has been much help and I can understand why you're so worried.  Try and keep thinking positively and let me know when you get your results, will you?

Tina x

Yes of course i will. 
 

ive been doing some research ( i know i shouldnt but cant help it)

it can be caused by this but also something like arthritis, ive suffered with my lower back for year ( 15 years plus of dancing and horseriding plus 2 pregnancies) has seen me at the osteopath more times than i can count with a twisted pelvis so im praying its just that! 
thanks

Helen x

I totally understand your anxiety. I'm exactly the same. I'm 3 years since I started my chemo and I'm more worried that I was a year ago. Each year that goes by, I worry more. I too have back pain but haven't sought having a scan although I think I should. I've also got some pins and needles in my leg that I am worrying about. It feels like a rollercoaster of emotions. 

xx