Just diagnosed at 34 with Breast Cancer

Hi there,

I was told on Friday that I had Breast Cancer, completely shocked and feel heartbroken, I have a 22 month old daughter and can’t explain the depth of pain I feel.

I didn’t go with anyone to get biopsy results, as previously, I was given feedback that the lump found looked like and felt like fibrodemena it was only the biopsy which confirmed it was cancer. 

Waiting for more test results and for an MRI. To confirm all results. Initially I have been told it’s hormone receptive and grade 2 invasive inductal cancer, really hoping that someone can reassure me that I can get through this and share any feedback if you have been in a similar situation. I keep having breakdowns and feel I need to get a grip. 

 

 

  • Hello again.  Perfectly normal to be feeling up and down - it can change hour by hour, let alone day to day!  

    I had my MRI on 18th May, got the results on 23rd May and my op was booked for 14th June.  I could have had my op a week earlier on the 7th but I had a bonkers weekend planned which would have meant masses of reorganisation (I was away at a reunion which I was organising) and my consultant said that nothing was going to change for the worse in that week (or even a couple of weeks if necessary) so let’s stay with the 14th.

    I found that very reassuring as I think a lot of us feel “I just want this thing gone”, I know I did. But once she said to me, have your reunion weekend, one week makes no difference (and anyway I couldn’t face telling everyone why I needed to reorganise!) I felt much calmer because there was a plan in place and I DID enjoy the reunion weekend, more to the point! Like you say, it’s the “new normal”!

    Your breast can feel sore for a whole host of reasons, and yes it probably is because it’s been “manhandled” a bit lately plus also it could be down to your monthly cycle.  Don’t worry about that now, you’ll have your results and your plan soon.  

    I don’t have a “proper” job anymore so can’t comment on the taking time off work, but I know that if I’d still been at my old job I would have been fitting in as much as I could do, partly to keep me distracted and partly not to inconvenience them! 

    These days I run a little holiday let (and yes, I was changing beds the day AFTER my op, but with my husband’s help!) plus I do a bit of massage therapy (though not returned to that yet, though feel I could).

    Keep us posted! Xx

  • Hi Ploppy, how did you get on with your radiotherapy planning? Please tell all! When do your sessions start?

    xx

     

  • Thanks Ploppy and NobbyWatts for getting back to me. 

    [@NobbyWatts]‍ Well dome getting the op done and carrying on the day after changing beds! When do you start radiotherapy? Hope you are feeling better the op is out of the way and can now focus on the next bit. Out of interest what type of BC do you have? 

    [@Ploppy]‍ yes, keep us updated on radiotherapy and if you have any tips. I would like to work through this if I can  juggle the travel etc. 

    Hoping I will get a call tomorrow morning to arrange appointment to go through all the results and receive op date. I will keep you posted xx

  • Hello,

    All good thanks, although the permanent mark they made in the middle of my chest is quite uncomfortable. 

    I’m due to start on the 19th July for 15 sessions, although they said that the doctor may request 20 sessions but I won’t know till Wednesday. 

    But all good, scan was ok and the people were lovely, as always. 

  • Hiya, I don’t have a date yet for my radiotherapy but I’m going on the 25th for the first consultation.  They’ve told me I’ll have 15 sessions which is pretty normal I think.  

    I feel pretty good at the moment to be honest, and VERY lucky.  Not looking forward to the radio but hey-ho.  

    My cancer WAS (notice use of past tense!) invasive lobular cancer (which I think might be one of the most common).  Remind me, what is yours? (Soon to be what WAS yours!) xx

  • Hi ladies, 

    Happy Friday. I had my operation yesterday to remove  lump and lymph node, all happened pretty quick as I got a call on Tuesday to say there was a cancellation for Thursday which I could have so I went to clinic on Tuesday got my results and yesterday had it removed. 

    Everything else looked clear on MRI, so that’s a good sign. Feeling ok post op at the moment, although woke up at 5am! My sleep is all over the place at the moment

    More waiting now to find out results from op and what the follow up treatment plan is. Feeling much better the little *** has been removed though, on to the next bit now! 

    Did either of you have any genomic assay testing on your tissue? Mine BC at the moment is classed as Grade 2, ductal hormone receptive. But I understand you have more information post op about stage and diagnosis could change slightly..

    I found a podcast recently called ‘you, me and the big C’ about Cancer and found it very helpful to listen to, normal ladies, all different stages talking about their cancer and all the different aspects in a honest, humanising way about the physical parts but also about the mental impact you experience at times. I thought I would share as it’s very interesting and might be of use. 

    thanks for support keep us posted on your next treatment stages, any tips are appreciated xxx

     

  • Yay!! Well done you!! 

    Now take it easy for the next couple of days at least, but if you’re anything like me it won’t stop you from doing stuff anyway, albeit slowly and tentatively.  

    You had/have a different BC to me, and as far as I know they didn’t do the genomic assay on my tissue.  I went back after 2 weeks and got the all-clear on both the margins and lymph node and I’m sure you will too.

    My op was 4 weeks ago today and I’ve been completely back to normal for the last 2 weeks: driving, cycling, gardening, yoga, housework, etc.  

    So, that’s the horrible bit over for you ... take it easy, sleep when you want to, eat what you feel like and don’t be surprised if you get all emotional in the next couple of days, it’s partly due to the anesthetic. 

    Do you have pressure dressings on? They were the worst and most uncomfortable bit for me and when I removed them after 48 hours - ah, sweet relief!!

    Lots of love xxx

  • Yay, bet you’re glad that’s over.

    Do take it easy, I felt great the first week, did too much and had problems with my wounds so don’t push yourself.

    I’m 6 weeks post op today and tamoxifen has taken hold in a bit way, feeling sick, upset tummy and so tired, still can’t complain.

    look after yourself x

  • How long have you been on the tamoxifen now Ploppy?  I’ve just taken my fifth tablet. Sorry you’re feeling sick and poorly.  I wonder how long it will be before it settles down again - keep us informed!

    xx

  • Taking it very easy, my daughter is with her grandparents for next couple of days so I don’t have to worry about lifting and dived in

    Glad it’s over, now onto the next bit. 

    Hope it gets easier with Tamoxifen, I imagine it’s a shock for your system. Are you getting support from NHS while taking it? It’s a lot to get used to physically and emotionally, I hope you are but if not there is always people you can exchange tips with online if you need it and there might even be info on other peoples experiences on the podcast I mentioned. 

    Lots of love xx