Feeling lost.........

I was diagnosed with breast cancer last week. I'm 47 with 2 children and I'm at the stage of this journey of feeling scared, tearful and trying to make sense of it all!! I'm gradually telling friends but if I hear one more time "you're young and healthy and positive" I think I'm going to scream! I run my own business so I'm also concerned about keeping that going. I'm having a mastectomy next month - can anyone on here let me know how long it takes to recover? (I know everyone is different but it would help to have an idea). Also can you drive straight-away? Just would appreciate some support from those of you who are out the other side of this nightmare!! Thanks ladies. x

  • Im so pleased for you x I hope you are celebrating in style x Dont forget that Tamoxifen does come with side effects, but advice on here from people will help you to fight them! These chats are so good for that x (not being negative about it - this is a day to celebrate. One step at a time) 

  • BRILLIANT NEWS! Yay you xxx

    Did you cry a bit when they told you? I did!  Celebration time then ... bring it on! Xx

  • Thanks!  I do know that it might not be easy taking those tablets but will cross that bridge if it happens. xxx

  • Hi - just gave the consultant a hug!!  Mind you I did cry happy tears when I got home!  Then I remembered I am still sore so can't quite forget what has happened in the last few weeks.  One positive step forward though.... xxx

  • Hey - just wanted to say I hope that your first treatment goes well tomorrow.  Thinking of you. xxx

  • Hello - how are you doing?  How are you getting on with Tamoxifen?  I hope you are getting on ok.  I am still waiting for my appointment with oncology to get the prescription!

    xxx

  • Good afternoon, 

    I'm doing ok thanks.

    It's hard to say as far as the medication goes because I could say I have everyone of the common side effects but when I mentioned it to my gp she didn't seem concerned and said it's usually a good month before you get them(that was a couple of weeks ago though now)

    I often get terrible stomach cramps and my bowels are certainly very different to pre op/ meds. I did feel I get moody quickly on some days. I'm definitely sleeping more, however I go to bed earlier now but wake early. I have just started with leg cramps in the night but they are manageable. I do think my hair is different too but maybe that's in my head..we'll see in a few more weeks!! 

    I got my prescription for the tamoxifen the day I got my results. I've also just had my 5 year care plan sent with my yearly scheduled mammograms for my left boob.

    I think my belly, boob and upper arm will stay nuMB which I was hoping wouldn't be the case as the feeling is strange but I still think my self lucky.

    How are you feeling now xxx

  • Well hello - what a sweetie for remembering! I’m sure all will be well, it’s at a very civilised time of 11.30. How are YOU doing? Xx

  • I was interested to read how you’re getting on with tamoxifen.  I’ve just come OFF it for a “2 week holiday”. I had been on it for 5 or 6 weeks.  After about the first 2-3 weeks I was getting some weird tingling in my feet.  I happened to mention this to the radiologist when I was having my scan last week (in readiness for radio starting tomorrow).  She advised me to speak to the breast care nurse, she in turn told me to take 2 weeks off and also see my GP.  

    So I’ve not taken it for about 4 days now.  Feet are a bit less tingly I think, but either icy cold or boiling hot.  

    The other side effects I’ve been experiencing (apart from hot flushes) are tiredness and being a bit constipated. I’m emotional and a cry baby anyway, so no difference there!

    xx

  • Hello - I'm so sorry to hear that you're suffering some of the side effects of Tamoxifen. I am not looking forward to taking it at all.

    I am feeling ok at the moment.  I feel a bit in limbo as now my surgery is over and I've had the all clear, so many people think I should just be back to normal like I've broken my arm or something less serious.  I know that I am incredibly lucky not to need any further treatment but I think the whole cancer thing has knocked me for six.


    Sending my best wishes to you. Will let you know when I get the dreaded tablets and go from there! ...xx