Scared

Hi, i was diagnosed with endometrial cancer about 9 weeks ago. Unfortunately I also have uncontrolled asthma which is making the anaesthetic for a hysterectomy an issue. Already had it cancelled because they will need a bed in intensive care and didn't have one, they did however not tell me this till I was already there ready to put the gown on. Unless you have been there, it's impossible to understand the hell and fear you go through just getting there, only to find your going home, cancer still intact. I now not only have the cancer to fear but breathing issues with the anaesthetic. 

Im a widow but lucky to have my children and grandchildren. With all the love and respect for them I have never felt so alone in all my life, I've no one I can be honest with and just be allowed to be scared, I have to be the strong one who is always there for them. 

Falling apart inside, don't know how to stop the fear 

 

Sad, afraid and lonely 

  • Hi  Lanie,

    So sorry to hear that you are going through such a rough time.

    I thought I would just send a reply at this early hour to let you know there are people here who care and can understand in some small way.

    Although my cancer is breast cancer and obviously not the same as a hysterectomy. I am lucky also not to have asthma as you have. Just wanted to be an ear to listen if you need it.

    I had breast cancer surgery on Monday. Even though not the same as you are having to deal with I can totally understand the fear, anxiousness and loneliness that you say you feel. I was petrified to go in for the op. It was more the anesthetic that worried me. I hadn't had general aneasthetic before. I just wanted to say that someone told me that the anesthetist is your 'best friend' at that point. Boy were they right  They are there every step of the way through the op. Keeping constant eye on you. You are their top priority along with the surgeon and the other caregivers in the theatre. I was so relieved just to come round after all the stress of going in. 

    Feel bad for you that you had to go in and come back but when you go in next time I'm sure you will be looked after with great care and come through it all just fine. Easy for me to say I know.

    I live on my own and although friends and family are all lovely and helpful I can understand the pangs of loneliness at times when going through things like this. Particularly at night. 

    I've not been on this site long but if you need to get things off your mind then myself and I'm sure many others on this site are here for you.

    Best wishes 

    Lizzie x

  • Hi Lanie

    having other health problems is scarey especialy when genneral anesthetic is on the table i to have COPD on home nebulizers and am going in for a mastectomy 2nd July they have reserved an HDU bed, i have had operations before they give be a nebulizer an hour before and you are so closely monitered which certainly puts my mind at ease in my case i recovered very well all times breathing was a little wheezy once and they gave me nebulaizer in recovery and kept me there a little longer but otherwise good, i did as i was told deep breathing excersis post op and got up ASAP. Thinking of you good luck

  • My heart goes out to you.

    I was diagnosed last Tuesday.

    Stay strong  and positive

    Luv Sue x

  • Hi Lizzie.

    Hope your operation goes well tomorrow.

    I have just been diagnosed with Womb Cancer. I have an MRI on Thursday the discuss treatments next week

    I have to admit I scared but will stay as positive as I can. 

    Luv Suex

  • Hi Sue,

    Thank you for the message and the best wishes. I had my op last Monday and it was fine, despite my worrying before. The caring staff at the hospital from nurses to surgeon were amazing and eased my mind on the day of surgery. I get surgery results and another treatment plan in a  week or so.

    Sorry to hear about your diagnosis. All best wishes for your upcoming treatment. 

    Lizzie x

  • Hi Lanie

    its ok to be scared. We’ve all been there. I was diagnosed with endometrial cancer in April 2018. I have also been type 1 diabetic for 57 years so I know what it’s like to have other health issues. I had a hysterectomy followed by lymph nodes removed twelve weeks later then three sessions of internal radiotherapy. It’s dosble.... I got my all clear this April at my first follow up appt.

    However unlike yourself I did not need a bed in ITU. It must be so frustrating to arrive, be ready and then get sent home. I know how much I had to psych myself up before the surgery so I can really empathise with you. Looking at it objectively, which of course is nigh on impossible when you’ve just been turned away, the medics are just trying to cover all bases. I know from recent experience with my husbands surgery that thses  beds are free when you arrive at the hospital then are taken by an emergency by the time time you’re ready - unfortunately that’s the way it is.

    It’s the waiting that gets to you, isn’t it? I know. I had to wait for my second lot of surgery to check that there was no spread to the lymph nodes, which fortunately there wasn’t.  Again I had to psych myself ready for a second major procedure in three months. This time I spent a lot of time in recovery because they couldn’t stabilise my blood sugar. There was no HDU bed available so eventually I was transferred to the gynae ward. Still on both occassions I was out of hospital the next day. We are very resilient, we humans. 

    So stay strong but there is nothing wrong with discussing how you feel with your children. My daughter came to the hospital with me on both surgery days. We discussed how scared we both were which was sort of comforting. She was my rock. And my son told anyone who asked about me that I’d had my lady parts scooped out with a spoon!  They take it in different ways. But if you can’t talk with them there are always great people here who will listen and support because we just know what it’s like.

    Sending a virtual squeeze from my hand to yours. I hope the operation is soon and goes well.

    Sundial

  • Thanks Sue

    I will be thinking of you too, know what your feling.

    My hysterectomy is on Thursday then more waiting but we fight on. 

    Thank you so much for taking the time to care about a stranger.

    Luv n hugs to you and your family 

    Lanie x

  • Hi Lizzie

    Thank you for taking the time to post a message. 

    Cancer is every bit as terrifying no matter what type it is, we all have that hell to deal with, fear. 

    I think you are an amazing brave lady and I wish you all the best, you are an inspiration. I hope I can be as strong as you come Thursday, I so scared. 

    I can't really tell anyone else especially my son who still lives with me as this is the 10 th anniversary of my husbands death and he died in my sons arms with a massive heart attack, it still hurts him to this day so I have had no choice but to be strong for the kids and the grandkids, I kind of have to just brush it all off.

    I really hope you are doing well and again, thank you so much 

    Lanie x 

  • Hi Sundial 

    Firstly I'm so happy for you on getting your all clear, for you and your family. Thank you for your message, it is a comfort to know that I can at least admit my fear here for now and that there are wonderful people who will care and listen. 

    I have always been the strong one. Deal with it and move on, nothing gets me down, whatever life has thrown I've batted right back, even the sudden death of my husband but this is different. 

    This time I am scared because I feel vulnerable, I have no control of anything and all the doctor said was we will know more once they do the hysterectomy, hate not knowing. 

    Thanks again for listening. Keep well

    Lanie 

  • Hi Lanie I just want to send you a hug for tomorrow. I will be thinking about you Luv Sue xx