Hi

I am extremely extremely anxious a d worried as my partner has been diagnosed with a craniopharyngioma and is die to have surgery in a few days. We are both absolutely terrified and especially as it is rare and therefore do not know anyone who has been through this journey and could reassure us. We have spoken to the doctors a d have done lots of research but it is not the same as a human story. Is there anyone out there that has been through this? Help us! :(

Xx