Just been diagnosed

Hi, I have just been diagnosed with endometrial cancer and I suppose like everyone who is newly diagnosed, my head now feels 'mashed'. I haven't a clue how I'm supposed to feel, apart from not really believing it. My consultant rang me with the news (I didn't mind this) but I also have a consultation with him on Monday. He rang so he could get the ball rolling with treatment. 

How did everyone feel when they had their diagnosis? I keep thinking I'll wake up from a bad dream and I noticed when I told my family and boss I was trying to make out it was no big deal.

thank you 

  • Stay positive Jenny. It's looking like I will need Radiotherapy but if it gets rid of the last bit of this Alien in my body I'll take it.

    Yes the hysterectomy takes it out of you. Do everything they say an rest.

    Am always here if you need to talk 

    Sue xxxx

  • Hi Sue,

    infections gone, clips out and I think im

    being good but I may be over doing things. My head is willing but the body isn't! 

    Have you had your results yet? I'm still waiting.

    i had an appointment letter through for October but surely that must be a routine one. I'm sure they will see me with the results sooner. The outpatient clinic didn't seem to know! 

    Glad you're healing well

    take care xx

  • Hi Luxsy,

    Take it easy for 6 weeks, boredom kicks in....

    You should get histology results after 2 to 3 weeks... October is your 3 monthly check up...  

    I have been reading lots on hysterectomy and joined support groups..

    Take Care xx

     

  • Hi Sue,

    How are you, did you find out after the histology you needed radiotherapy? 

    Yes take all that you need to get rid of it!

    Take care xx

  • I felt okay up till I got a letter on Friday from my consultant saying I was grade 3 but no mention of that last Friday in meeting when I went with my sister all that was mentioned that I was stage 1a and ct scan nothing there I was relieved there was no mention of grade 3 but in this letter no mention of stage 1a so my sister rang the mcmillan nurse she confirmed I was stage 1a but said they was very sorry they did not mention this I am getting nervous about Wednesday as I have a little of lymphedema which started after my hysterscopy so on furoside now they was worried about my lymph nodes being removed I have had to come of my aspirin because I take medication for my heart I have been feeling a bit depressed just lately and sad but I know I have got to stay positive 

  • Hi Jenny,

    Get everything in writing from the hospital, and call your Mcmillan nurse and get clarifications, they are very good and will explain everything. It is overwhelming and good to note down replies, as well as have a list of questions to ask.. The MRI scan gives staging.

    Tak care

    Angel x

  • Hi

    Finally got me appointment at the Clinic for all results. Next Tuesday at 2.30pm.

    Have one more fragmin injection to do yipppeee.

    I am soooo fed up now. Hubby admitted to hospital on Saturday. He has been diagnosed with Idiopathic Pulmonary fibrosis and his breathing is horrendous. It seems we never bother with NHS for 50 years and now everything is going wrong for us.

    Hows you xxxxxx

  • Hi Luxy, hows you. Hows your healing  doing.

    I finally have my Clinic appointment for nex t Tuesday at 2.30pm for all results.

    Am sooooo fed up now and just want this whole journey to end.

    Take care xxxx

  • Hi Sue,

    i have some good news-the specialist nurse called me to say everything was clear and out and no further treatment needed. They still need to discuss it at a MDT meeting and they'll see me soon in clinic but I'm so relieved!

     

    healing is slow, it's the tiredness that's getting to me.

    good that you've got an appointment now-fingers crossed and positive thoughts being sent. 

    How is your recovery going? 

    Take care xx

  • Hi 

    I am soooooo pleased for you. 

    Recovery is slow then get living the rest of your life .

    I will let you know my outcome on Tuesday.

    Take care xx