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Just been diagnosed

Luxsy70
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Hi, I have just been diagnosed with endometrial cancer and I suppose like everyone who is newly diagnosed, my head now feels 'mashed'. I haven't a clue how I'm supposed to feel, apart from not really believing it. My consultant rang me with the news (I didn't mind this) but I also have a consultation with him on Monday. He rang so he could get the ball rolling with treatment. 

How did everyone feel when they had their diagnosis? I keep thinking I'll wake up from a bad dream and I noticed when I told my family and boss I was trying to make out it was no big deal.

thank you 

  • Offline in reply to Luxsy70

    Hi Luxsy,

    Great news...Glad you will get it done quickly xx

  • Offline in reply to Soobysue

    Hi Sue,

    wishing you lots of luck tomorrow xx

  • Offline in reply to Luxsy70

    Hi Luxy

    Just got home very sore and lots of trapped wind. Just one more negative result needed in 3 weeks then hopefully we can dismiss this horror story.

    Have you got a date for yours yet xxxx

  • Offline in reply to Soobysue

    You're home already? Wow! 

    i go in on Monday but they can't do it laparoscopically so I'll be in for a few days.

    i just want it done with now

    xx

  • Offline in reply to Luxsy70

    I will think of you.

    Take care xxx

  • Offline in reply to Minska

    Hi

    I have just been diagonosed with cervical cancer and yes my head is all over the place i dont know what stage yet waiting for ct scan i know what you feel like i am thinking the worse and scared

  • Offline in reply to Jenny203

    Hi Jenny

    I have cervical cancer, and know exactly how you are feeling. I think we all think the worst initially, I know I did, and I was so scared at the thought of the CT scan showing a spread. For me it didn’t show that, and I have successfully completed all my treatment with my check ups showing no evidence of disease.

    Once your ct scan is done, they will have a multi disciplinary meeting to decide the way forward with treatment. Did you have an mri scan too? The treatment for cervical cancer is pretty standard...something like 25 radiotherapy, 5 chemo and finishing with brachytherapy which is internal radiation. I wasn’t able to have the brachytherapy due to having a pulmonary embolism, so I had an additional 7 radiotherapy treatments. 

    The chemo is a low dose of Cisplatin which doesn’t make you lose your hair...it helps the radio be more effective, and radiotherapy is the main thing that gets rid of this cancer. 

    The treatment is very effective...try to keep as positive as you can although that is very hard when you are at this point in the process.  I was stage 2b by the way, which meant that I wasn’t able to have a hysterectomy. Earlier stages can be treated with this. 

    If I can be of any help, please let me know. I’ve been there, done it and come through the other side. So if you have any questions or just need a friendly ear, I am around most days. xx

  • Offline

    Hi

    I have also just been diagnosed as having Kidney Cancer which was found incidentally. I had a robotic partial nephrectomy 3 weeks ago as it was the only way of diagnosing the tumour. I feel the same as it doesn’t feel real and I will wake up and it’s been a bad dream 

    I met with my consultant/surgeon to find out the procedure was complex and the tumour tore before excision. He said it was minimal contamination and a washout was performed. However this has now put me in high risk monitoring. I have so many questions swimming round and round and there’s always one person who says 

    it’s no big deal and it’s out, you will get monitored closely 

     

    that doesn’t help!

    surely it only takes one missed cell to enter my blood/Lymphatic system and I’m in trouble?

     

    good luck to you 

  • Offline in reply to Bex1791

    Hi Bec,

    sorry for the late reply - I have just had my surgery and I'm sorry you find yourself on here. 

    Its a weird feeling and the waiting is torture. What will your monitoring include- will this be with scans etc? 

    Ive just had surgery and it feels like a weight has lifted but I now have to wait for the histology results but then a whole new set of different questions. 

    There's a lot of well meaning people trying to say the right thing but it doesn't help when your terrified. 

    Take care, here for a chat x

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