Hi luxsy, welcome to the forum I'm afraid we're all in a spin when first diagnosed. hopefully others will join you to talk soon, but remember if you want to talk your welcome any time even just to let off steam we will give any help we can best wishes

Billy 

Hi Luxsy and welcome.

It felt quite unreal for me when I was diagnosed-I felt stunned, but I didn’t cry, I just sat there trying to take it in and I couldn’t wait to get out of the hospital. I too played it down, especially to my family, but actually it’s a huge thing to be diagnosed with cancer and I think we’re entitled to feel pretty devastated!

Playing it down can work against you I’ve found...people then think it’s nothing much and you’re fine, but it’s not really like that. You can feel so many emotions, and all of them are ok...I’ve found there’s no particular way you’re “supposed” to feel. A lot depends on your character and outlook. 

I found things easier once my treatment plan was in place and I felt I regained some control...because being told you have cancer makes you feel completely out of control.

Hope all goes well with your appointment and you get your plan in place to start dealing with this. Do come back and talk to us-we all know what this is like, and this is a good place to be if you need to ask questions or vent or say whatever you want without being judged. xx

Hi Minska,

I feel like you...I got diagnosed yesterday. I feel in shock really.. I have so many things planned and booked here and there. I am trying to stay calm and positive, I have to get the MRI scan done. Can anyone tell me what stage they were, and how quickly they had to get the hysterectomy done.

Thanks

Hi Angel,

i think the Dr said stage 1 but I couldn't really take it all in. I have an appointment on Monday with him and he'll go through it all with me again. 

I didn't want my ovaries removed but I'm 49 next week and thought i probably wouldn't have too long before I'm menopausal. I just want them to take it all away.

i think I'm still in shock! We can get through this

Hello Luxsy70.

My story is a bit different to yours. I was strongly advised to have a total hysterectomy due to abnormal cells being found, following post menopausal bleed. The op was set for a week after the finding. So I knew it was serious.

The surgeon wanted to take everything out, tubes, ovaries, cervix as well as womb. Darn! I trusted his advice, while being disappointed.

Three weeks post op, I was told there had in fact been a grade 1 endometrial cancer present. No further treatment needed. Being told I'd HAD cancer, rather than you HAVE cancer, is a slightly odd situation.  

Anyhow, please let me assure you, around 18 months down the line, things are good. I did feel as if I was a stuntwoman standing in for the real me for a while. Kind of disconnected. I just had to be sensible and do what was needed. 

I really didn't want to lose so many internal lady things. It hasn't made that much difference post recovery. 

regards, gamechanger

Thanks gamechanger,

glad everything is good now. I'm hoping they'll take everything out and that's it. I intend to just go with the flow and let the experts do what they need to do. 

I do feel like im looking in at a different version of myself- all very surreal.

i have a short 2 night break booked from tomorrow after my dr appointment and I have a holiday booked for September. I'm hoping I can still go.

Hi Sue,

Sorry that you too have to go through this. I haven't got a date yet for anything else but for me it's all been a bit disjointed. 

Symptom wise, a few months ago I started bleeding very heavily- as if someone had turned a tap on, periods got longer and in between I was spotting and had watery and blood stained discharged. I put it all down to perimenopause as I'm 48. I've always had heavy periods and have had tranemaxic acid but this was worse. I saw a GP who did a load of bloods and referred me to a gynaecologist as I wanted it to stop (I also have 4 fibroids). My bloods included ca125 which was high and the gynaecologist did an urgent hysteroscopy and biopsy and a week later gave me the news. I still think I'm in a bad dream. 

X

Hi

My symptoms were just a smear of blood 4 times over the past year. I have to say I ignored the first twice. My daughter made me go for a smear which then progressed to a scan then, a Hysteroscopy ( may I say this was very painful)

The hospital rang me on Monday afternoon to go to the clinic the following day when I was told this shattering news. 

I too like you are in shock. So very up and down at the minute. 

Will stay positive tho unless told otherwise.

Have you got a date for MRI scan, I go 9am on Thursday and then back to clinic next week. 

Take care and stay positive xx