Hi Denise,

Lovely to hear from you, you have been through quite a journey up to now. So pleased you are on your last few weeks of your Pacilatel especially since it seems to be that bit tougher to endure. 

Early days for me but only getting 4 cycles which I’m happy about.. so far it’s been manageable but now that steroids are done I’m wondering if things will go downhill from here, hopefully not!

Great your hair growing back already and sounds like your brows and lashes holding on there too! I’m hoping mine don’t go will be some consolation since my head hair almost definitely will. I would have loved to have had the opportunity to try the coldcapping but like yourself would have had migraines from time to time so probably will have had to stop too.

Wishing you the very best for your remaining treatment, do keep in touch. Radiotherapy isn’t so bad in comparison, my dad has had it a few times and found it ok, just tiring more than anything.

Take care Denise,

Linda xx

Hiya,

Just checking in to say hi!!! Hope you are still doing well after your 1st chemo and getting out and about with your kids and dog :)  That's amazing you have a wig shop that can colour it to suit...mine didn't have that option, that will make all the difference and hopefully you will feel more like you when you need it.

I survived the 2nd one much better no hospital admission but was still sick (but manageable at home).  I've felt so so tired this time around however, so just taking is very easy and got out the house today for first time which was fab!

Not sure how much longer I'll get away without hair! Tried my wig on this mrn again and it really is much nicer than my hair however so paranoid I'll look like I'm wearing a wig....but don't think i'll go out otherwise so will need to just suck it up!

sending lots of best wishes and look forward to hearing you are well xxxx

Morning!

Glad to hear yr second round was less eventful for you, had been hoping you were doing ok . You mention yr hair, have you lost much, are you still cold capping?

Well things did go downhill for me once the steroids finished! Only way I can describe it is being totally floored! Started to feel really weak and fragile on the Friday had went into town to collect the wig and had to go straight to bed when I got home and didn’t surface until Sunday evening. Wasn’t in pain but the nausea and zero energy and just feeling unwell was awful.  Gradually over the course of the week some energy returned then had a migraine Friday and Saturday, so pleased I’m feeling fairly ok today.

I was supposed to go to hospital on Monday there to have the Picc line inserted but hubby got appointment put bk as I was in no shape to go anywhere on Monday. It’s now planned for morning of second cycle on the 17th. Dreading what next week brings re hair loss, scalp was a bit tingly part of last week but settled again, think this will be the hardest part for me ️

We each have one more cycle then we are half way there! I had read somewhere that the first was the worst re side effects then it gets a bit easier from there but the tiredness can take a long time to recover from. But we will get through it!

Hope you continue to feel well and can get out and about as much as possible, I’ve found it really helps mentally to get out of the house for a while even if we have to have a nap as soon as we are back home lol..

Take care & chat soon xx

Hi ladies, m in a very similar position. Aged 54, Grade 3 ER+ recurrence in breast where I had mastectomy & recon 10 years ago. Clear margins & CT scan. Waiting on Onco DX results. Dont understand if clear margins & CT why chemo may be necessary still doesn't guarantee will not return. Hoping results state will be not needed as really not sure want to proceed if suggests of benefit, then just radiotherapy and hormone treatment for 5 years  I thought mastectomy was guarantee no more that side. I agree the wait is the worst :-(  How have any of you managed work through your chemo? Are you able to work at all during this time? I would be terrified of infections if I keep going to work but cant stay off for 18 weeks. I noticed you mentioned your Onco DX result was 6.5% why did they feel you should still proceed with chemo on that %age? I had been thinking to myself that unless the benefit was over 50% I dont think I want to proceed with chemo, am I misunderstanding the results?

Praying for you all xx

Hello

may I ask you for how long you had chemotherapy please?

thanks

Hi, I had 4 cycles of fec chemo...I couldn't have the last 2 because of my neuropathy....how you doing? X

I have just been diagnosed stage 2b ,grade 2 without spreading to lymph nodes,I had my MIR scan yesterday and I am waiting for the results and then seeing my surgeon to decide what to do.I haven't done any surgery yet.my lump is big and is below my breast,I don't know whether they do chemo before surgery or no.how long you chemo did it take to finish??

Thanks for replying.

Hi, 

if the gremlin is classed as big they may want to do chemo first to shrink it....it depends on so much....my very first cycle was feb14th 2019 and my last was in May ( I think)! .....at the time I thought it would drag but in hindsight the time flew! Xx

It is about 3cm.Did you have radiotherapy as well?

Yes I did, I also had herceptin injections as I was hormone positive....rads was a doddle and nothing to worry about....x