Hi,so happy for you that the scan went well,it’s always a nervous time waiting for results.I have forgotten did you have many in you liver or was it just the one,you have a a positive thought pattern now,so that in its self is fab.Will keep in touch.Started at weekend with Christmas presents got quite a bit so far,can’t stand all the rushing about at last minute.speak soon.xxx

Hi great to hear from you .Yes im really positive now with my last results I had a few in the liver,but they are all shrinking,as last time the bigger one was just stable .This time its shrinking .Hope your scan is as good .It really is a nervous time waiting,but i wasnt so worried this time.Im so glad you want to stay in touch.Istarted my christmas shopping last week ,as like you i dont like all the rushing around last minute.Let me know how you get on will be thinking about you lots of love cocksedgexxx

Hi. Hope you are well 

,just an update scan shows another couple of mm shrinkage in large tumour in liver,thank goodness this anxiety probably will never go away,when we are due scans but never mind this was good news.My Pablociclib has been reduced to 75mg as my white cells to low.Weather very cold in Edinburgh just now,was planning on going to Christmas market in Princess Street but to cold.Thinking about giving up work,after new year,manager says not to be to hasty,I will probably take medical retirement,but will see what my options are.Looking forward to Christmas,as the family will go to mums house,as her house is bigger,me and mark will cook,for thirteen we have being doing that for twelve years we took over from when my dad died.

Just a few present to be bought and that will be me finished for this year.Next thing is to put up Christmas tree I like to do that,so many people got their trees up already,

Mum is doing okay now,she had a blood clot in her arm,she is very lucky,they operated right away,I have nagged her about given up smoking,but she says smoking not the cause,she won’t give up now.

Hope you keep well speak soon

brenda

Xxxx

Hi , 

    great to hear from you ,so glad it is good news.Im so pleased its still shrinking.Im still on a 100mg of palboclibo ,but my blood count is ok .With work you have to do what is best  for you ,as you need to take care of yourself,as we only get one chance at life ,and we need to enjoy it .I had a meeting with work,and they still are wanting me to come back.They have given me some options doing an admin job,as i wont be able to do my  current job ,as its too physical ,and i dont have the energy,as i cant remember wether i told you or not ive lost 7kgs since having the zoladex injections,but they cant give me anything else to replace it .Im under the dietician now ,and have to have 2 fortesips aday alongside food ,as my apetite is very poor .Does your apetite get affected by the medication? I get full very easily .Glad your mum is on the mend .I havent put my tree up either yet .im looking foreward to putting it up.I love christmas time Ive almost finished my christmas shopping too .I cheated and did most of mine on line.My sister came to stay over the weekend with her husband.They live in Doncaster it was a lovely weekend .By the way my partners name is Mark too .What a co-incidence It sounds lovely having so many people for christmas .We will only be having 4 or 5 of us this year ,as my middle son is going to stay with a friend in Poland,My eldest daughter is having christmas in her new home with her partner,and my youngest daughter,my middle daughter is having chrristmas with her future mother-inlaw partner ,and her 2 girls ,my mum and my sister have christmas at her home in Doncaster with her family .Marks dad and partner are going out for christmas dinner this year ,so its mark my eldest son Luke ,and youngest son Dale,and myself,and possibly Marks mum ,but we are waiting to see if her brother is still coming over to her,as he usually does that,as Marks mum lost her husband in July,so we dont want her to be on her own over christmas.Dale my son wants to do the cooking ,so i want have much to do .My son Dales girlfriend is due her baby in April around the 19th,so something else to look foreward to .They find out on Friday if its a boy or a girl .We dont mind what it is so long as its healthy.I have oncology next Monday ,just a follow up appointment ,And my injection on the 19th .Well i think thats all my news for now .take care 

                                                                                                                 Lots of love Heidi

                                                                                                                            xx

Hi havent heard from you in a while .so thought i would message you to see how you are getting on.Hope you had a lovely christmas with all your family .Ours was lovely but quiet .The weather here was lovely ,so we went out for a walk before dinner .We also visited marks family ,and my Granddaughters ,so overall a lovely day .I saw the oncologist last monday ,and he is booking my next pet scan ,so just waiting now .I have gained 2 kgs in weight,and he said he will be happy if i gain another 2kgs,so all going in the right direction with me .Hope is the same with you 

                                                                                                              Lots of love 

                                                                                                                      Heidi x

Hi,glad you keeping well,and that you had a good Christmas it is all over too quickly,loved the family coming together,granddaughters spoiled as usual,but love seeing their faces.

Hope everything goes well for your scan,my next one is 14th feb,trying not to be to anxious,but you know yourself it's not easy.Taken time of work just now as I need,to think what I'm doing,don't want to go back full time/shift work/weekends.as I am not able to do as I want to spend more time with my family,and I'm not fit enough,joints sore.You asked about weight I have not lost weight but gaining weight,can't stop eating Cadbury's chocolate buttons,got to have more will power I think.Weathe4 here in Edinburgh is wet windy cold,but glad to say nights are slowly getting lighter again.

Was going to the Breast Care Now meetings,but they where becoming to depressive for me,I think these meeting are essential,but for me not at the moment.

I go to a place called a Westerhaven they do massages which I love,but because they are only volunteers who do the massages it's hard to get an appointment,and 5he people are brilliant,they don't necessarily talk about your illness but everyday things,which suits me better,maybe one day I will go back to the breast care now secondary meetings but not just now,we are all different in how we cope.

I hope we keep in touch .Even if it's only now and again for updates take care and big hugs.

brenda.xx

so nice to hear from you .im glad you are ok .im ok to .I dont have my scan date yet ,so still waiting .Hope yours goes well .It is a worrying time,but im trying to stay positive.im gaining weight ,and things seem to be going in the right direction .I would love to stay in touch.as its nice to talk to someone who has similar to me ,and both around the same time started treatment.Like you said we dont have to message all the time ,but nice to keep each other updated on our progress. I enjoy our catch ups ,and i feel we are really getting to know each other ,even though we live miles apart .Take care .Lots of love Heidi xx

Look after yourself.xx brenda.

speak soon.xx

Hi Heidi

Not been in touch for a while,I very much hope you are well.This is cray times,with this awful Coronavirus.Its awful being unable to see family,friends,children, and grandchildren,but it has to be done.These poor people who do not make it.

My treatment is going well,all tumours in liver now have shrunk,and last consultation in February was all tumours now stable.Joints in knees are painful but that's the Letrozole,long as I keep moving I am okay,I have now taking up yoga,something I would never had thought about doing but its so good.

I have now retired from work,on I'll health grounds so that's a big weight of my shoulders.Mark is doing well,he still has his moments when he gets frightened,where this disease will lead,I tell him everything is good now let's focus on that.

i hope all your family members are safe and well.

need the temperature to heat up a bit so as we can sit outside.As you can probably see up late again,I just find it hard to sleep not because of anything keeping me awake.

well I will write soon,take care.brenda.xxx