Hi Tiamaria 

hope you're ok, did you have a chest port fitted when you had your treatment? If you did do you find it settled down after a few weeks? I'm still finding it quite awkward, I'm fairly slim so I hate the way I can feel the tube by my collar bone and the of something under my skin in my chest area makes me feel very funny! 
 

xx

Hey

Yes i had a port and i found the sensation horrible. My husband seemed to think that it was more in my head then actually feeling it but i dont know. I was convinced i could feel it when i was eating or turing my neck and when i was trying to sleep on my side. 

I think it felt weird for a couple of weeks and then all of a sudden i didnt notice it anymore. 

I dont know if you were like me but i was scared silly having that fitted and i didnt like the procedure at all  but i can tell you that when they remove it it is so much quicker and easier. 

xx

That is exact key how I feel! I'm nearly at week 2 and I suppose it is getting better but I feel like I can feel every inch of it. I went to a and e the morning after I had it fitted as I was in so much pain! 
I'm already looking forward to getting rid of it! 
xx

I think i made it a regular occurance to go to a&e after every chemo (3 weeks) and it always turned out everything was fine. I think i was just being so paranoid and worried about everything but the chemo nurses told me to report anything that didnt feel normal. I think its so difficult to be told that as my body didnt feel normal at all after starting treatment!!!

It's a weird thing to say but you will kinda get used to rubbish days but that doesnt mean it makes it any easier to go through. 

xx

Hi Tiamaria 

hope you are well. I wondered if I could please ask you about the surgery you had and looking after your boy. 
did you have have your lymph nodes out? I'm trying to think how out of action I'll be. Did you have to stay overnight after the surgery? Thanks so much 

Hello 

I'm so sorry I didn't get back to you abs thank you for your post. I'm 1 EC chemo session down and ready to go again on Tuesday. 
move had all my scans now which showed nothing anywhere else in the body but I did have to have another ultrasound as the MRI picked up more legions on the side of the tumour but apparently they're benign. 
im so paranoid about the diagnosis changing abs the doctors saying they missed something and that it's a more serious picture than they originally thought. 
I'm also paranoid about it spreading while I'm having chemo but I've been assured that that would be rare and unexpected and that even if it did happen they would just bring surgery forward. 
Did you have these worried also? I'm assuming it's normal to worry about these things! 
xx

Hi Emma,

I hope that you began to feel better following your chemo, after we last communicated. It is so good to hear that your scans came back clear and that the lesions found were benign. This must be a great relief for you.

I just want to reassure you that your worries are all perfectly normal and are something that we eventually learn to live with.

Hope that your next chemo goes well.

Kind regards,

Jolamine xx

Hi

Yes im good thanks. 

I stayed in for 2 nights. I had to go into hospital at 6pm and i dont think i had my op until 8ish. I didnt see my little boy at all until i got home as i was worried he would get upset and want to stay with me. He was fine when i finally saw him. Im always so sick after general anesthetic and this time wasnt any different. They got it sorted pretty quick though with sickness injections. 

I had 3 lymph nodes removed and to be honest i felt like i was more restricted by that scar/area than my sore boob. 

I dont remember not being able to do anything. I just had to be so careful that my little boy didnt knock me and i did struggle to get into top cupboards. My arm wasnt painful, it just felt really tight. This got better over the weeks/months by doing the exercises the physio gave me. 

I had to get a crop top thing to sleep in to support my boobs and i couldnt lay on that side. 

Thinking about it now it probably wasnt the best time but we decided to buy our little boy a trampoline a few weeks before and that was interesting going on there with him!!! He still today holds his hands up on his chest when he jumps as he's copying still what i looked like back then!! lol x

It's completely normal to have those worries and i still have them now. 

As i understand the hormone tablets you'll take for preventitive reasons are very effective. I couldnt have anything like that due to my cancer being triple negative. 

I think its really important to have support around you as i did quite struggle after all my treatment had finished and i didnt have anymore medical appointments. I was given the good knows that my treatment worked really well and then sent on my way until my next check up. I kinda felt on my own then xx