Lobular Breast Cancer Diagnosis in 40s

I feel utterly distraught. Have been diagnosed with Grade 2 Lobular Breast Cancer. Am terrified and feel all joy has gone from the world particularly as this cancer can (not will) have late recurrence in the future - eight, ten, twelve years into the future. This uncertainty does not suit my personality - I will obsess over it.

My daughter is only 4 and I am terrified of leaving her motherless. 

Next steps: MRI (they think it’s 3.5cm); then either chemo and mastectomy or vice versa - maybe radiotherapy and hormone therapy.

Sorry to be so negative - found out last Thursday. 

 

 

  • Hi All,

    Just had an appointment through for June 5th after my MRI on Tuesday  - why would it be this far away? Still no formal confirmation of what exactly we’re looking at. Waiting is driving me a little bonkers?

    Is this the usual time period? 

     

    Lara1975

     

     

  • Hi laura

    Sorry but whats the appointment for?

  • Hi Lara75

    I'm  pleased to hear you have your  follow up appointment through after your MRI this week.

    Unfortunately the wait after is always a minimum wait of 2 weeks which from experience  myself I found very hard.

    The reason for such a delay is the results have to be looked at by a team of radiographers and you will be discussed at their next MDI meeting with a view to sorting  out a treatment plan .

    I would  try and distract yourself as much as possible, and just take a day at a time; ,easier  said than done zi know.

    I'm sure after this next meeting when you have your results and a treatment  plan is put in place that you will begin to  feel calmer as you will know more of what you are faced with and you will deal with it in a positive manner.

     

    Best wishes 

  • Hi MaggieMagpie- I have invasive lobular carcinoma, dense boobs so the mammogram and other scan were not as clear as they liked to determine real size - and no treatment plan as yet. 

  • Thanks so much mumof3angels. That’s helpful to know. Does MDI stand for Multi-disciplinary ?

    Now I know waiting is standard, I feel better.

    How are you?

  • Hi Lara75

    I meant MDT meeting sorry. It's a Multi - disciplinary  team meeting where you are discussed by various specialists  and  your consultant.

    Waiting is  awful I know. I've been in that situation  do many times so I know the feeling and as I said previously  just distract myself with so many things.

     

    I'm  not too bad, thanks for asking but been so run down and tired still from my surgery which was 3 weeks  ago now!

    I'm still waiting to hear when my radiotherapy  will start but nothing as yet.

     

  • Thanks for that. Sorry to hear you’re tired. I genuinely feel I have people helping me along this scary ride. Thank you!!

    Hope your appointment comes soon. Xx

  • Thank you. It's probably because I've got the 3 kids age 4, 5 and 12 on the go all the time and I get very  little respite as no family nearby and most of my friends have families  to deal with.

    I'm trying to carry on as I did before my diagnosis but the last 7 months have been so hard and I think my body is still suffering  after effects of the chemo.

    At least I'm nearing the end of my journey  once radiotherapy  starts.

    Take care and keep your chin up x

  • Hi.... every hospital seems to be different.

    e.g. I was given my review date at the same time I was given my mri appt date - so knew when I was going to get my results before I had mri. Had mri on the Thursday nd got results on the Monday ( I always have my appointments with the consultant on Monday’s). 

    I have no idea why each hospital is different. 

    Try not to read anything into who has appointments when... it doesn’t effect what the findings are it’s just a pain in the **** because waiting becomes the worst bit of it. Speaking with others my wait for this particular result seems to have be quicker than most. 

    Honestly the time from my date of diagnosis to last day of treatment was 95% of waiting for appointments to be seen. 

    Hang in there lass it will come around soon x  ️X