Hi Jolamine,

Thank you for your kind thoughts and words of support. My surgery is scheduled for Tuesday 11th with the results two weeks after. 

I know now that the cancer is grade 2 intrusive cancer that is estrogen positive (might not be the correct terms but I'm sure you know what I mean). The support that I have received from not only family and friends but also from the staff at the hospital has been amazing ️. 

Just need to now take it one step at a time and be positive..

Xx

Hi MemeDeb,

Not long to wait now, which is good. I am so glad to hear that you have had great support from the hospital staff as well as family and friends. It makes such a difference to how you feel about everything when you feel that your care team are right behind you. Most care teams throughout the country are outstanding. On the odd occasion that people are not so fortunate it is difficult to be so positive.

Trying to take everything in is just too much for now. Try to take things day by day or even hour by hour where need demands. Once you start your surgery, you will begin to feel much more positive, as you start to feel that you are moving forward.

I sincerely hope that all goes well for you on 11th. I shall be thinking of you and, am hoping and praying for a good outcome.

Kind regards,

Jolamine xx

Hi all! 

I've been reading a few of the ladies posts on here and 1st of all I would just like to send warmth and love all your ways. As we all know any health scare is awful and tormenting. Whilst delving into the unknown with the anticipation of only time will tell until you recieve your biopsy results with the all clear of the big C or that devastating news of a reatment plan, all dependable on each circumstances.

[@teacherandmam]‍ I'm really sorry to hear of your news hun, I feel like they've done the same to me, telling me that theres nothing to worry about it's only a fybroadenoma and now they've told me that's not what they found in the biopsy, in fancy words!' It's so frustrating they shouldn't really tell you much but to wait for the results so we can have a clearer idea of what it is. It's really unfair to lift our Hope's up and even they know they cant be sure what it is. 

I found a lump in my breast on the 29th of April (I've got quite small breasts 34C and I've breast fed 5 children) I am 35 years old and I tend to look after myself as a fitness professional. I waited to see if it went down after my period but it never. So I called the doctors explaining my symptoms, soreness in right breast, a small lump that seems mobile but doesnt hurt to touch but other areas around the breast hurt... a lil discomfort if anything.

Spoke to Doctors on the Monday the 10th of may I was booked in my Thursday the 14th of may. 

I didnt know what to expect and turned up by myself, probably the worst thing I could have done. After the clinician took my history and said it had the characteristics of a fybroadenoma and said they would like to do an ultrasound scan on my right breast. So off I go for the ultrasound none the wiser. 

Sat down and they lady was like yeah it looks like a fybroadenoma and took measurements and as she examined the rest of the breast found cysts present. Well these where were the pain was stemming from as I could see everytime she went over one it would hurt. 

All of a sudden she says she would like to take a needle biopsy of the lump to confirm it is an fybroadenoma. I was on the table and like okay... I actually had a panic attack and had to ask to put my music on in my head set and to give me a minute. They were lovely got me water and told me to lift my knees up, feet flat. It was so scary and painful I had to get them to use more anesthetic. It was an aweful feeling of tugging after. They found it hard to reach as they said my breast tissue was very dense. I was then told two weeks for the biopsy results and sent on my way with the notion it's a fybroadenoma.

3 weeks later I'm still waiting, I've been experiencing all kinds of odd feeling of pains and needles and itching, stabbing pain just started occurring in my nipple. I called my doctors and the nurse practitioner who I've got a lovely rapport with basically told me it's most likely the stressful thoughts of worry I'm feeling in my breast and it's in my hurt and to nurture good thought and smells and warmth around the breast... lovely a nice holistic approach I get it. But hold on I noticed the lump because of the feelings in my breast and now it's in my head. Yes I understand it's an anxious time but wow there could be an infection after the biopsy!?!

Anyways I got the call today from the breast clinic. And they used theyrd jargon to tell me that they needed another biopsy as the one they have is non concordant. Then she softly said to me 'do you know what that's means?' Obviously I dont? So I said no all in a daze. She bacsically said that what they saw on the ultrasound is not the same as what they found in the biopsy and someone would be in touch to book me in for a biopsy. 

What is that supposed to mean? It's not fybroadenoma? So what is it? I was in a state of shock I didnt get to ask any of these questions, more than say okay! 

Now my heads messed up more than before. What have I just been told? It doesn't match what we thought it was? In lamon terms! Okay well I did think it was odd that at 35yrs old a lump appears by itself and nipple discharge. I'm really in touch with my body. 

I dont want to worry so I've been keeping my self busy to take my mind off it, but I'm tired and I feel like no one understands my concerns as no one likes to talk about these things. 

It's just a bit naff I need to now wait not only for the appointment but the results again. 

Has this happened to anyone. And sorry I dont mean to scare anyone but I'm really quite scared of the unknown myself and I'm kind feeling like I just indirectly got told somethings not right.

Much love

Z x

Hi, 

I've just come across this thread. I'm in limbo at the moment. Three weeks into lockdown and I found a lump, contacted the doctor and received a telephone consultation with a referral to the breast clinic at hospital made within a day, with an appointment in less than week! All very fast, a biopsy was taken and I was told I'd hear the results via phone in a week, the doctor said the lump is of concern and he was giving me the 'heads up' (his words) by asking if I'd have someone with me when that call came in! Well I was convinced he was forewarning me. Forward to result day only to be told it was inconclusive and I had to have another biopsy, again it was very quick and I was able to go back in the very next day. It was explained that the scoring was different between the teams. One scoring 4 (possible malignancy) with pathology scoring 3 (unknown/inconclusive) so that was why I was called back in. The result for the second one came back the same. The nurse who rang explained they've had a discussion about my case and they have agreed to score it (downgrade) to a 3 and for me not to worry as they are not concerned as it could be a Fibroadenoma or phyllodes tumour. They do want me to have a lumpectomy but I have to go on a waiting list until things go back to normal after Covid. For all the first part of my experience was extremely fast,  I can't help thinking am I going to be one of the covid/cancer statistics of waiting too long for an answer? Or I may be just being a bit melodramatic! It's all a bit rubbish really.

Hi, 

I came across a lump just over a month ago now in my left breast. It's pea size, smooth and round, moveable with no pain. I managed to get a GP appointment yesterday to have it checked and she said she thinks it could be a fibroadenoma, but she didn't refer me to the local breast care clinic for it to be checked to confirm that's what it was, she just told me to keep an eye on it for changes. I'm 30 years old and breastfeeding my one year still, so I don't know whether maybe breastfeeding/hormones increases the likelihood of fibrodenoma's? I just thought it was strange how I didn't get referred into a specialist just to confirm what the lump was. 
 

Do you think I should go back to my GP and specifically asked to me referred to the breast specialist clinic? I suffer with anxiety at the best of times but 3 years ago my dad was 'fobbed' off by a GP on several occasions with a lump in his neck, saying it was an infection and having several different antibiotics, it wasn't until he pushed and pushed for further examinations to be told a diagnosis of primary throat cancer with secondary cancer in his lymph nodes in his neck, causing the lump. Luckily, he had treatment and so far so good but it just makes me concerned as to whether I should push my GP for a referral to the breast clinic or not? 
 

Any advice would be much appreciated. 
 

I hope you're all staying safe xx 

Definitely ask for (demand!) a referral. The odds are on your side that it's nothing to worry about but you need to put your mind at rest xx 

Hi, please dont worry until you know for sure. In my case I was told I had cancer. I had a mastectomy and now I find I didn't have cancer it was a fibroadenoma. I have lost my breast and my nipple and the lump was tiny, near my skin and well away from my nipple. My advice is always get a second opinion or a third if you feel you need it. 

Hi,

Yes, I'd say go back and ask again. Since writing my post on Sunday I've had a call from the surgeon and I'm having a lumpectomy later this month. For me, this is so welcome. I can find out for sure exactly what it is!
You need peace of mind. Is there another doctor within the practice you can see? 

I hope you get the answers you need.

Sending best wishes x
 

Hi, 

I've just come across this thread and am going through a very similar situation. 
I found a lump in my right breast when I was 19 (I'm now 25) and went to the GP, got referred to the breast clinic where they did an ultrasound, said they suspected it to be a Fibroadenoma but that they wanted to biopsy it because it seemed to be 3 Fibroadenomas together and was quite big (2cm). Got the results after an awful wait but it was all fine and was confirmed as a Fibroadenoma 

I started getting back pain/pain in my right breast and went to the GP about 3 weeks ago who felt the lump and said that she wanted to refer me back to the breast clinic as it does cause me pain/discomfort especially as I've lost 2 stone since feb (deliberately) but that's means I don't have as much fat protecting it now so I feel it a lot more when I'm lying on my side. So she referred me so I could talk about getting it removed. 
I honestly didn't feel like it had got any bigger, I check my breasts regularly and hadn't noticed a drastic change so hoped I would go, they would examine and say yep that's fine, don't need to do anything else and would talk about getting it removed. But instead, they examined it and said, it's actually got quite a bit bigger so sent me for another ultrasound. During the ultrasound, they said that they wanted to biopsy it again as it has got bigger (5cm now) and changed shape which really worried me and I suffer from really bad anxiety anyway and really found the biopsy distressing when I was 19 so ended up having a panic attack (they were really lovely about it thankfully) 

they said that it's likely that it's just the same Fibroadenoma that has grown but they said they can't rule out cancer growing in the middle of it since it's so big which is why they biopsied. 
I'm so worried about it now, the fact that it's grown and changed shape has made me so worried it's going to be cancer. They originally said that I would have a phone appointment on Wednesday to discuss it but then I got a letter through saying that the appointment is now on Tuesday which has worried me even more that they've moved it. 
It's with the specialist nurse, does anyone know if they are always with the specialist nurse? Because I'm worried now that it's with a specialist nurse because it's cancer :/