ET

Hi

I have recently been diagnosed with ET and I'm finding it very difficult to deal with mentally and physically.  I am extremely lethargic and cannot imagine dealing with high pressure, which is the case in my line of work, and have been signed off until the end of April, however I doubt I will be able to get back by the end of April!  I was sleeping upto 15 hours a day until I recently joined the gym which has helped somewhat but still have days where I literally cannot do anything(today being one of them).

 

Reading through this forum most people seem to have underlying mutations which have been ruled out for me, which I guess is a good thing but I dont understand why this is happening to me.  My Platelet count is sitting around 1100 and I beleive it should be max 450, so I have been told to take aspirin daily.  Does anyone know if this should be making me feel better? 

 

I'm also suffering from a constant dull headache and sometimes wake up feeling dizzy in the morning.  Is this normal with ET and if so what can I do to try and alleviate these symptoms?

 

I'm only 47 and have been pretty healthy all my life so this is come as a bit of a shock for me.

 

Hope to get some advice from this forum and the experience of the people on here.

 

  • Hello Mcr89,

    Poor you it does sound rather debilitating what you are going through at the moment. Don't feel bad about being signed off work - this is time you need to rest at the moment. I think you should mention the dizziness to your doctor as they will be in the best position to advise you on this. 

    Should you wish to connect with others who have been affected by ET all you need to do is type the keywords "ET" or "Essential Thrombocythemia" in the Forum Search which is located in the blue banner at the top - this will then yield results which may be relevant to you and don't hesitate to respond. I know we have many threads on the subject in this forum. 

    You are also welcome to give our nurses a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm and they will be happy to answer questions you may have about ET.

    I hope this helps and that you will meet other members of the forum who have been affected by ET.

    Best wishes,

    Lucie, Cancer Chat Moderator