Yes, the tablets should give that extra peace of mind

Its amazing what your mind can create when worry sets in! I honestly believe that a positive mindset is half the battle. Wow.. that’s a lot of travelling for you? There are so many things to consider, still sinking in.

I have been talking to Macmillan who have an amazing support system, they even cover the financial aspect of having cancer with various grants which is good to know as as I live alone and hadn’t thought that far ahead with regards to time off work etc.

Xxx

I didn't feel ulcer but sensation of herpes on the site where alh precancerous lump is

I am really disappointed with the doctor who don't take my concerns seriously, and I can't afford private, insurance won't let me get this treated so does anyone know my options,?

I have probably some gynecological cause of the precancerous lumps in my breast, I think they started when I was pregnant and felt like a stab on my leg breast along with its size being changed, but I gps told me that it's heartburn and then when I had difficulty breastfeeding I was told the two lumps were normal for breastfeeding mum, and but these were not lumps of milk as my baby barely got any milk despite the fact I tried so hard and still now soon 2 years

I was finally sent to breast clinic because there were changes in the nipple, the doctors at the breast clinic didn't eeven look at the nipple and it feel like I am not being taken seriously, I am still fighting for the lumps to be removed andva gynecologist to look in to why I have intermediate bleeding

It's feel so helpless without tree private care or insurance

They will do the oncodx test for you too. Yes it's the whole spread thing, they're not do radiotherapy on my armpit just chest wall, so im pretty concerned whether cells in other nodes?? started Wednesday very emotional first time, and my son came with me second time to see machine. I can feel it on 3rd round hot. Teary today waiting for my husband to say "cheer up". Daughter teary too and clingy. Husband looking to book holiday in summer and my brain just cant cope with all the choices and decisions to make.   Im feeling sorry for myself and having a ive got cancer day. WTF. ...

I read a diary style book called "booby envey "  now this lady really went through it.! Her venting was really straight out of my head. But really noticed a difference in American treatment compared to here in uk. I feel lucky and privileged for the NHS  and obviously im biased working for the NHS . 

Hi, I’m 42

I had breast cancer - strongly 8/8 oestrogen & progesterone driven and HER2 neg. The breast cancer was grade 1 invasive ducal tubular and was removed 12/3, along with Sentinel node biopsy, where 1 of 5 nodes contained cancer (macrometasteses). 

I have seen the Oncologist- he never offered the Oncodx test, as I had a positive node.  The Predict tool was used to decide if I needed chemo, it stayed only 1% better prognosis over 10 years with chemo, so not worth the risk.  I will be having 15 sessions radiotherapy, and have already started the Tamoxifen tablets. 

I was really pleased when told chemo was not required, but it still doesent stop me feeling nervous about the positive node.  I asked the Oncologist if I could have an MRI for my peace of mind- just waiting for him to discuss with my breast surgeon at MDT next week. 

Sometimes reading other people’s diagnosis & treatment plan,makes me wonder if mine is right, it’s making me really anxious- but I can help but read everything. People with positive lymph nodes,  all seem to have different treatment offered.  

Just feeling like life is on hold until all the treatment is finished.  Then I’ll be stressing about re-occurance. I’m usually a very positive person, but not at present.

sorry about all the negativity- just felt I needed to get that off my chest

Hi I feel so similar,  all treatment varies vastly so difficult to determin which is best,  I have 4 sessions of radiotherapy left, sore with a very tanned flat chest.  i was at hospital all day yesterday after radiotherapy ,  I had my staging nuclear bone scan which I had to chase up! , so now waiting for those results which is always what makes me feel horrendous. spread and tamoxofin are my biggest fears. Big hugs to you. X

Hello Ruthieroo, 

I really hope you don't mind me asking about ONCODX. I have stage 2, ER+,  50mm, 1 lymph out of 4 positive and had a mastectomy 3 weeks ago. I've  been told I'm not eligible for ONCODX as I have a positive node. I'm in a "discussion" for Fec-T as I'm told they think all  cancer has gone and don't know if chemo will benefit me. It's my decision. Then it's radiotherapy, hormone therapy for 10 years, bisphosphonate injections for 2 years. My husband was diagnosed with bowel cancer 3 days before me and it's spread to his liver. He started chemo this week. I'm just anxious how we'll cope with both being on chemo at the same time and all the hospital appointments. If its not going to benefit me I don't want it. Oncodx would help me make that decision. How did you get it? 

I'm older and my children are grown up. This all happened in Feb and my life has been in turmoil. I think we've hit rockbottom then there's more. How you are coping with young children is wonderful. I look after my twin granddaughters who are 8, for 3 days a week and didn't tell them until my op. I found it really emotional and heartbreaking so it's much worse for you and tiring trying to be positive. At least they're not here all the time which must be so tiring for you.  I told them about Gramps this week and they are waiting for him to go bald! 

Sometimes my children take Gramps to hospital for scans etc and that's when I have a good old cry. It's a release valve. You seem to have coped with so much sadness you must be a strong person. Take care of yourself. These are difficult times but we just have to soldier on! Best wishes xxx 

My goodness you really have been hit with a double whammy! I so so sorry.

In answer to your questions,  I did not ask for dx test they said it was offered as standard now for nhs patients who fit criteria although I thought I didn't with one node positive and they only took sentinel node so my question was how do they know not in others?, but i am aware of other ladies who have not had it either? I'm actually waiting on results for nuclear bone staging body scan, I had scan 26th no results yet and I now have scanxiaty, scan waitphobia should be a thing! Trying to focus on bank holiday weekend with kiddies. I finish radiotherapy 2nd may after 15 sessions , I'm very tanned and sore plus feeling pretty tired mainly afternoons, but i am up 6.30am on average. Gotta make myself start tamoxifen again, breast counselling starts next week. I'm struggling to visit work as that's same as my diagnosis place and my colleague's are the doctors,  get kind of anxiety,  hopefully I'll get this under control. My mum arrived with a roast chicken, a bottle of pink gin, mowed lawn and left the other day bless her, she's 69 and worries for me. Go Dailey. They said even without DX test they still would not have offered chemotherapy. good luck.  Xxx

I don't get it! I'm 70 1 node out of 4 positive but they will let me choose. Nice fund node negative but ran pilot for node positive. It's closed now! I don't have any luck! Honestly! Thinking about self funding as need to take husband to his chemo etc. They did say I could do radiotherapy then chemo. I don't know how you keep going with kiddies other than you have to. My 4th grandchild us due next week. My 2 year old grandson came today and cheered me up and made me play football.  My DIL dad has just been rushed into hospital and has kidney and bladder stones and needs op. We are the unluckiest family! People will cross the street to avoid us! My daughter has us on the Roast Chicken diet. Soup, stir fry,  sandwiches and risotto so far. That's in one week. Cluck, cluck. If my husband loses his hair he can grow feathers! Really, best of luck to you. You are not much older than my daughter so your Mum must be beside herself. Give her my best  wishes and best wishes to your family and  Carry on with the Chicken! Xxx

Well you certainly made me laugh. Got to look to humour or we'll go mad. Xx