Hi Lisa ...

So so sorry your going through this heartbraking time ... it makes me angry that things are not in place for everyone in your posision,  it's really crule not knowing what care plan is in action .. 

Firstly give Marie Currie a ring, their free phone number is on their home page ... they are there to help those with terminal diagnosis and their families.... get them on board ... then call your G P and ask about the district nurse .. as she can help get you help ... 

Just reach out to everyone and anyone ... and McMillan can help with financial advice ... and they can help fill in forms if needed ... I'm sure any extra money at this time will come in handy ... let us know how it goes ... stand your ground and get that help ...  Chrissie xx

Hello,

My heart goes out to you. Three years ago I was in the same position as you

Speak to the nurse looking after your mum and ask her if care has been set up for her once she’s home.  When I took my mother home within a couple of hours a Community Nurse came to visit my mother. She answered all our questions and made sure we had enough medication and numbers to contact should we need a nurse to come.  Then carers  arrived to help with washing.  I am also wondering if your mother has all the equipments she needs such as a hospital bed.  This should all be arranged on the ward or, at the very least, they can read the multidisciplinary notes to see what has been arranged.  Discharge must be safe.  This means family know what is happening and who to contact.  I would suggest, if the nurse taking care of your mother can’t give you the information, the person taking charge of whole ward will.  If you have a District Nurse they are available 24/7.  If you don’t it will be GP or Out of Hours  service.

 Of course I don’t know your mum’s case or your area but that’s how it works in mine.  

I do want you to know you won’t be alone and help will be there for you

xxxxxx

Hello Lisa

Mym Mum was diagnosed with Stage 4 Pancreatic Cancer 2nd Jan 2018 and Mum passed on the 31st Jan 2018.  It was very fast and truly hearbreaking to watch Mum fade away.  We had excellent support from GP Doctor/Community nurse and McMillan with daily carers for the short time that Mum was with us.  It was Mums wish to die at home so we had hospital bed at home and Mum was fitted with Syringe driver to manage the pain, terminal agitation , anti-sickness, all of this made her more comfortable.  McMillan organised this and also offered financial support, unfortunatley Mum did not require this.  Me and my sister cared for Mum and held her hand to the end, cos this was all we could do!.  It is incredibley painful and emotional so make sure you get the pallaitive care organised.  Take care 

Lisa I really do feel for you.  My dad was told in November that he had pancreatic cancer that had spread to his liver , they tried abit of chemo ,but his body didn’t react to it well and ended up having lots of fluid drain from him , they stopped all treatment and told us he might have 2 months left he was so healthy and fit last year , but suffered from acid reflux , got fobbed off with doctors saying it was acid , my heart is broken as we have only got months to get our heads around he’s not going to be here soon, x