Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

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  • Hi [@WarriorWilko]‍ welcome to the thread but so sorry you find yourself here . This group of ladies have been a fantastic support to me and will be to you also . 

    I’m 45 was diagnosed in March IDC her2 + , Ed &pr+ , and it’s in my lymph nodes . Had chemo and have had mastectomy and auxiliary clearance last Thursday. It’s a tough long road but you will get there . We have all been there when you feel every little ache and pain and you imagine the worst . I’m sending you positive vibes and support. 

    Hope all goes well for you with your results . 

    Take care 

    j xx

  • Hello BigJean

    It’s good to hear from you - thank you for replying. It’s so good to know we’re not on our own on this journey, although I wish none of us were on it in the first place. I really hope you get your drain out today or tomorrow and that you can catch up on some sleep. You sound very positive though and I know that will really help, both physically and mentally in our recoveries. I’m trying to get there and today has been fractionally easier than yesterday. 

    Sending you too my best wishes

    Helen xx

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    Hi Woolylamb,

    If you have already asked them to do both ops at the same time, what was their reply? I agree with you, in that I am also confused as to why you were given the all clear, yet still had a large amount of residual cancer removed so soon after. It sounds like 'a rud** great shock', rather than 'a bit of a surprise' and, I would certainly be looking for an explanation.

    I have spent many weekends in hospital and agree with you about just how frustrating it can be. Isn't it strange that no matter what type of ward you are in, there is always something or somebody to spoil the peace and quiet at night? I agree with BigJean's suggestion. It's definitely worth asking whether or not they have a single room that they could put you in to.

    I hope that you do this and that you are successful.

    Kind regards,

    Jolamine xx

     

     

  • Hi Jolamine

    My plastic surgeon isn't in until Monday, however I think if he can do it together he will, the doc I saw today also thought the same but won't know till Monday when I am reviewed. 
     

    I will definitely pursue getting an understanding of why there is a difference  between scans and pathology results, doesn't change anything, but would be good know. 
     

    take care

     

    WL

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    Hi Woolylamb,

    You say that it doesn't change anything, but it could do so. These results seem so different in such a short period of time. What if the've mixed up the results and, given you someone else's results? It would certainly be worth asking your plastic surgeon before he operates on you.

    I don't mean to panic you, but these things can happen.

    Kind regards,

    Jolamine xx

  • Thanks Jolamine 

    I've double checked this morning and they are definitely mine, I'm seeing the plastic surgeon in the morning and also talking to me breast nurse again to get some more clarity. 
     

    wl

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    Hi Woolylamb,

    I'm glad to hear that you have managed to double check, so the big question for tomorrow  - for both the plastic surgeon and the breast care nurse - must be why is this result so different from the last in such a short period of time.

    I shall be thinking of you tomorrow and, hope that they can give you some satisfactory answers.

    Kind regards,

    Jolamine xx

  • Hi WL

    been thinking of you today. Hope you got the answers re your results today xx 

  • Hey

    Thanks, I saw the breast surgeon and he explained everything and the measurement which I understand now. He said it's all out and said he was really happy with the results, it was downgraded from 3 to 2 aswell. 
    Should find out on Thursday when I will have my skin graft and then it's focus on healing in order to start radiotherapy. I feel so much better now. I'm at home as well, was discharged yesterday.

    thanks for your support everyone, means everything to me that I have you guys here when I need you. 
     

    WL

  • Hi BigJean

    ive just finished my chemo and have ct scan for radiotherapy tomorrow but after radiotherapy I’m on tamoxifen for five years I just wondered if you have started taking it how you have been on it x 

  • WL

    so glad you have been discharged and back at home. Nothing beats being around our home comforts x so glad too you got clarity over your results and for it to be downgraded is great news x sending you hugs WL you are nearly there me lovelie xx 

  • Hi Mejules, 

    that’s fantastic well done you on finishing chemo. One hurdle done !! 

    Ive only started it since Saturday, I take it at night time as I read lots of women saying it’s better to take at night . I’ve been a bit restless and a little bit hot !! That’s it so far no other problems.

    good luck with your ct scan . 

    Take care

    j xx

     

Reply
  • Hi Mejules, 

    that’s fantastic well done you on finishing chemo. One hurdle done !! 

    Ive only started it since Saturday, I take it at night time as I read lots of women saying it’s better to take at night . I’ve been a bit restless and a little bit hot !! That’s it so far no other problems.

    good luck with your ct scan . 

    Take care

    j xx

     

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