Hi [@WarriorWilko]‍ welcome to the thread but so sorry you find yourself here . This group of ladies have been a fantastic support to me and will be to you also . 

I’m 45 was diagnosed in March IDC her2 + , Ed &pr+ , and it’s in my lymph nodes . Had chemo and have had mastectomy and auxiliary clearance last Thursday. It’s a tough long road but you will get there . We have all been there when you feel every little ache and pain and you imagine the worst . I’m sending you positive vibes and support. 

Hope all goes well for you with your results . 

Take care 

j xx

Hello BigJean

It’s good to hear from you - thank you for replying. It’s so good to know we’re not on our own on this journey, although I wish none of us were on it in the first place. I really hope you get your drain out today or tomorrow and that you can catch up on some sleep. You sound very positive though and I know that will really help, both physically and mentally in our recoveries. I’m trying to get there and today has been fractionally easier than yesterday. 

Sending you too my best wishes

Helen xx

[@Rosie80]‍ hi Rosie so sorry to hear you going through a tough time with your wound and it becoming infected. Fingers crossed it clears quickly and you can move on with your treatment plan x

[@Woollylamb]‍ hi so glad your op went well although being in hospital awaiting your skin graft isn’t the best it be worth it on the end. Fingers crossed you can still get your results Monday will be thinking of you on Monday x take care and try and recover from op well x 

Oh BigJean,

This is absolutey fantastic. It makes all the suffering you felt going through chemo worthwhile! -  I can only  imagine how relieved you feel today.

Radiation should be a breeze in comparison to chemo. Have you been told when you are going to start it, or how many sessions you are likely to have?

You were certainly due to get some good news and, I'm so glad that you got it.

kind regards,

Jolamine xx

Hi Woolylamb,

I'm glad to hear that your op went well, but sorry to hear that you have to have a skin graft next week. You're quite right. An extra week is as nothing out of the rest of your life and, you're just as well to get things right from the start.

It's just a pity that it had to be next week, when you are due to get your results on Monday. If they cannot give you your results over the phone, perhaps your plastic surgeon could tell you the results. Whichever way, I hope that your news as as good as BigJean's.

Kind regards,

Jolamine xx

Hi mejules

Thank you so much, I appreciate your comment wishing me well, it was lovely of you.  It's a hard place to be once diagnosed so it would be nice if everything was plain sailing thereafter but it seems that generally isn't the case,  Perhaps this is all just to make us stronger people!!  x

Hi Mejules, 

thank you so much for your lovely post. It’s only starting to sink in now . 

The best feeling was telling my children it was gone . 

Take care of yourself 

j xxx

Hi Jolamine, 

thank you so much I’m just so happy. 

As I said previously I wouldn’t have gotten this far without all the support and encouragement you and all the other ladies have given me . 

They said at the beginning it will be 3/4 weeks of radiation. I’m at the hospital today for Herceptin so I’ll ask my onc what’s the next step. 

Thank you again 

take care 

j xx

Hi

So I managed to get my results over the phone from the breast nurse and I have mixed feelings about them for some reason. The good news is the cancer is out, the residual cancer they took out seems to be bigger than the original tumour which is confusing me as I was told they couldn't find the tumour after my last chemo session, so I am assuming that the residual is what's been left behind after the chemo (what do you think). There's some skin involvement but radiotherapy will be used to treat that (always knew radiotherapy was in the cards), and my nipple biopsy has come back to say I need to have the nipple bud removed (hoping they can do it at the same time as the skin graft next week). Then need hormone tablets, injection and some bone meds (again nothing I didn't already know). I've got a rescheduled session with my surgeon so I can clarify some of my questions as the breast nurse didn't know the answers.

hope all is well with everyone.

X

Hi BigJean,

I hope that your oncologist was able to tell you more about the next step yesterday.

Kind regards,

Jolamine xx

Hi Woolylamb,

I am glad to hear that you managed to get your results over the phone, but sorry to hear about the confusion with regard to the size your tumor and, the need to remove your nipple bud. When are you seeing your surgeon? It might be worth asking if they can do your nipple along with the plastic surgery next week.

Radiotherapy is fairly intensive, but it doesn't last for that long. Your other treatments are all fairly routine.

I hope that you are getting plenty of visitors while you are in hospital over the weekend. This always seems to be such a quiet time, as so many staff are off for the weekend, and you begin to feel that it is almost pointless being in hospital.

Thinking of you and, hope that all goes well for you this coming week.

Kind regards,

Jolamine xx

Hi Woolylamb,

I am glad to hear that you managed to get your results over the phone, but sorry to hear about the confusion with regard to the size your tumor and, the need to remove your nipple bud. When are you seeing your surgeon? It might be worth asking if they can do your nipple along with the plastic surgery next week.

Radiotherapy is fairly intensive, but it doesn't last for that long. Your other treatments are all fairly routine.

I hope that you are getting plenty of visitors while you are in hospital over the weekend. This always seems to be such a quiet time, as so many staff are off for the weekend, and you begin to feel that it is almost pointless being in hospital.

Thinking of you and, hope that all goes well for you this coming week.

Kind regards,

Jolamine xx

Hi Jolamine 

I have done exactly that, I've asked for them to be done at the same time I order that I don't need to have 2 separate ops. I knew there was a risk that the nipple bud would need to be removed, so I'm not surprised. I think my confusion is because I was told I'd had such a good response to chemo I could have had a WLE instead of mastectomy and the MRI and ultrasound confirmed they couldn't see anything to then having a large amount of residual cancer removed was a bit of a surprise. I'm seeing my breast surgeon on the 18th so I can get him to talk me through it in more detail then. 

I am quite frustrated being in hospital as I am well, just tethered to a machine. And I can't sleep as the ladies I'm sharing a bay with are checked every 2 hours.

Thanks for checking in on me.

wl

Hi Woolylamb,

If you have already asked them to do both ops at the same time, what was their reply? I agree with you, in that I am also confused as to why you were given the all clear, yet still had a large amount of residual cancer removed so soon after. It sounds like 'a rud** great shock', rather than 'a bit of a surprise' and, I would certainly be looking for an explanation.

I have spent many weekends in hospital and agree with you about just how frustrating it can be. Isn't it strange that no matter what type of ward you are in, there is always something or somebody to spoil the peace and quiet at night? I agree with BigJean's suggestion. It's definitely worth asking whether or not they have a single room that they could put you in to.

I hope that you do this and that you are successful.

Kind regards,

Jolamine xx

Hi Jolamine

My plastic surgeon isn't in until Monday, however I think if he can do it together he will, the doc I saw today also thought the same but won't know till Monday when I am reviewed. 
 

I will definitely pursue getting an understanding of why there is a difference  between scans and pathology results, doesn't change anything, but would be good know. 
 

take care

WL

Hi Woolylamb,

You say that it doesn't change anything, but it could do so. These results seem so different in such a short period of time. What if the've mixed up the results and, given you someone else's results? It would certainly be worth asking your plastic surgeon before he operates on you.

I don't mean to panic you, but these things can happen.

Kind regards,

Jolamine xx

Thanks Jolamine 

I've double checked this morning and they are definitely mine, I'm seeing the plastic surgeon in the morning and also talking to me breast nurse again to get some more clarity. 
 

wl

Hi Woolylamb,

I'm glad to hear that you have managed to double check, so the big question for tomorrow  - for both the plastic surgeon and the breast care nurse - must be why is this result so different from the last in such a short period of time.

I shall be thinking of you tomorrow and, hope that they can give you some satisfactory answers.

Kind regards,

Jolamine xx

Hi WL

been thinking of you today. Hope you got the answers re your results today xx 

Hey

Thanks, I saw the breast surgeon and he explained everything and the measurement which I understand now. He said it's all out and said he was really happy with the results, it was downgraded from 3 to 2 aswell. 
Should find out on Thursday when I will have my skin graft and then it's focus on healing in order to start radiotherapy. I feel so much better now. I'm at home as well, was discharged yesterday.

thanks for your support everyone, means everything to me that I have you guys here when I need you. 
 

WL

WL

so glad you have been discharged and back at home. Nothing beats being around our home comforts x so glad too you got clarity over your results and for it to be downgraded is great news x sending you hugs WL you are nearly there me lovelie xx 

Hi Woollylamb

Thrilled to hear you have been discharged and can continue to recover at home.  There is nothing better than being in your own home!!

You must be over the moon with your results now you have been downgraded, that is truly amazing.  

Keep the positive news and thought coming!!

I was at hospital yesterday and my infection has finally cleared so they were able to stitch me up and remove my drain (only 35 days!!!), oh it feels great!

I'm booked in for my mastectomy next Wednesday and this morning woke up with a desire to clean my kitchen through so that's what I'm doing and enjoying every second.  Taking it very slowly but just a good feeling.

Please look after yourself, keep warm and well.  Good luck for the appointment on Thursday. Rosie