Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • I’m sorry to hear you’re going through this, I am 27 found a lump last week and have been referred to breast clinic on Thursday. I am petrified and I still have a chance of being lucky. I have found myself analysing every inch of my body to the point that I’m convinced I’ve just found a dodgy mole above my hip in the same side as the breast with lump, so now my head is being all stupid. 

    I hope you’re appointment went well today and it was some positive news. Thoughts with you xxx

     

  •  

    Hi Kmj,

    Welcome to the forum.

    I am sorry to hear about your lump, but glad to hear that you have been referred to the breast clinic and, that you are due there on Thursday.

    Don’t forget to let your GP look at your mole, as this will need to be referred to a dermatologist if anything suspicious is noticed. It can take longer to get an appointment with a dermatologist, so the sooner you see your GP, the sooner you’ll be seen by one.

    I do hope that all goes well on Thursday, but please don’t expect to get a definite diagnosis straight away. You will possibly have tests done to see if your lump is malignant or benign. The results of these tests then take 1-2 weeks to come back to the clinic, so you are likely to have an anxious wait for that time.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • hi hope you get good news woolly I know what you mean I have been feeling low too knowing I could face another 2 operations uk so behind in the USA they have a small device prod it scans the tissue if it’s positive they remove the breast tissue there and then my surgeon told me I have not got clear margins the tissue is cancer all round the breast he said I will remove tissue top and bottom but you may need a third operation I could have wept he said it’s still better than losing the breast I’m hoping he can get it all this time I just have to think it must be done I hope things go well for you woolly xlorraine

  •  

    Hi Mejules,

    It's so good to hear from you and, good to hear that you are coping better than you did with your last chemo. Would you consider asking your care team or GP for a sleeping tablet to get you through this stage?There is no point in getting tireder and tireder because you cannot sleep.

    Surely an MRI would still show how well your chemo has worked? Your emotions will hopefully settle down once you stop taking your steroids. I was an absolute mess emotionally when I started taking Tamoxifen and then Letrozole. I stopped taking Letroxole 2 years ago and have felt so much better since.

    It is normal to get pain in the scar area for quite some time after surgery. I am so glad to hear that your children have been so supportive throughout all of this. Your son's outburst was just par for the course. Cancer doesn't just affect the person with it, but all of their family too. I'm sure that many family members need a release valve at times. Good on your son for doing so well in his GCSE'S. It can't have been easy for him, when he was dealing with your news at the same time. Hopefully, this reaction was just the 'trigger' you mention.

    Only another 6 weeks to go and, I'm sure that you can hardly wait to put this all behind you. You are a true 'warrior' yourself having come through all this and I do hope that you manage to see it all through. 

    Kind regards,

    Jolamine xx

  • Hi Ladies , 

    I had mammogram and ultrasound last Friday . Didn’t get to see the doctor but asked the girl doing the ultrasound could she give me some results. She said my lymph nodes weren’t enlarged anymore. Nothing was said about the mammogram. So rang the breast nurse today and she told me I had response to chemo today in the breast and lymph nodes .  She didn’t elaborate on what type of response but I’m taking that as good results . 

    Im meeting with breast surgeon tomorrow to discuss surgery. Another sleepless night for me but trying to be as positive as I can . 

    Thanks all for listening. I feel like I’m back to the beginning all over again, I’ve pains in my shoulders I know this could be due to stress but very emotional today . 

    Sorry again for long post .

    take care everyone 

    j xx

  • Hi

    What fantastic news, hopefully you will get more details tomorrow on how big the response has been.  It’s hard to believe isn’t it, i was the same when I was told that mine had shrunk.

    I also developed pains as well, I’m convinced it’s in my other boob, I guess that’s just natural and will probably be with us forever now, wondering if every ache and pain is cancer.

    Hope the session with the surgeon goes well, I’ve got my third meeting with a surgeon on Friday, I’ve been referred to the plastic surgeons as my preferred option is the DIEP, however my surgeon doesn’t think the plastic surgeon will do it as I will need radiotherapy afterwards.  If he won’t then I will opt for the LD flap. I’m interested to hear what options you have and your thoughts after you’ve met with your surgeon. 

    Will be thinking of you. 

    WL

  •  

    Hi BigJean,

    This must be a great relief to hear that, after all that you have had to put up with, you have made some progress. I'm delighted to hear this.

    I hope that all goes well tomorrow when you meet up with your surgeon to discuss surgery.I know that it is difficult to stay positive all the time, but the more positve you can be the better the treatment tends to be.

    We all tend to find extra aches and pains at this time. Hopefully, this is all due to stress. Sorry to hear that you have had an emotional day today. Isn't that strange, when for a change, you've got some good news to celebrate? Not to worry, we all have good and bad days.

    Fingers crossed for more good news tomorrow.

    Kind regards,

    Jolamine xx

  • Hi Ladies , 

    Well met the surgeon yesterday he’s very happy with my response to chemo . 

    He told me I will be having a mastectomy and lymph nodes removed with no reconstruction for the time being . He said I will probably have lymphodema which he told me is very common. 

    The surgery is scheduled for 2 weeks, I’m ok with loosing the breast I think the thought of being put to sleep is freaking me out a bit . 

    I hope all is well with you ladies . 

    Take care 

    j xx

  • Hi

     

    I am really chuffed that you have had a good response to chemo. I find it interesting how different surgeons are happy to take different approaches, mine is happy to do recon straight away, even though I need radiotherapy and lymph node removal,  I was originally told I would have to wait. 

    When did you have your last chemo session?

    I have the same fear of being put to sleep, I've not met anyone who doesn't worry about it. Just think in two weeks the next phase will be done. You are completely nailing it.

    x
     

  • Hi WL,

    Good to heat you are doing well too . It is strange how different surgeons opt for different things . He did say something about my BC being quite invasive can’t fully remember what else . He said in time he would reduce the other one . They aren’t small I’m a 34 E !!! I didn’t question him about not doing reconstruction! 

    I too will be having radiotherapy afterwards . My last chemo was 20th September. 

    Have you got a date for surgery yet ??  Only good thing is it will be done before Christmas will be really looking forward to that . 

    Take care 

    j xx

  • Hey

    no date yet. I had my last chemo on 11th sept,seen them surgeon twice and he referred me to the plastic surgeon as my preferred option is done by plastics. Seeing him on Friday , he may say no to doing it with immediate recon. Got a ct scan to check my tummy blood vessels as they take the fat from there and put it  in the boob and connect the blood vessel back up. I'm desperate to get a date as I would like to be in reasonable health for Xmas too.

    how are you feeling after chemo, I'm still struggling with fatigue and my fingertips are numb.

    wl

  • Hi , 

    Hopefully you will have a date soon and fingers crossed all goes well with your meeting on Friday . 

    Im still very tired after chemo and still have aches and pains . Luckily I didn’t have any numbness in finger tips . 

    Let me know how your meeting goes on Friday will be thinking of you . 

    Take care 

    j x

Reply
  • Hi , 

    Hopefully you will have a date soon and fingers crossed all goes well with your meeting on Friday . 

    Im still very tired after chemo and still have aches and pains . Luckily I didn’t have any numbness in finger tips . 

    Let me know how your meeting goes on Friday will be thinking of you . 

    Take care 

    j x

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