hi don’t think the worse I have breast cancer was pea sized after getting biopsy done my tumour is now just over an inch right breast skin they are not sure if it’s skin tissue scarring after removing tumour 9 years ago got tested no cancer under my arm I know for a fact he said to me not hormone cancer it’s not bad once you get operation they remove tumour and so much lymph nodes even if it’s clear there don’t be too worried you will get put on pills m6 surgeon said to me the type I have no pills chemo radiotherapy I wish you well I have pain in my back side I keep on thinking hope no cancer cells there so I know what your going through I’m seeing my surgeon today to find out if I’m carrying the gene I have to go on tread mill to see how my heart is I’m praying I’m not carrying the gene good luck c

Hi Lorz,

I hope that you got good news today when you saw your surgeon and that you are not carrying the BRCA gene.

What type and grade of breast cancer do you have that it doesn't respond to chemo, radiotherapy or  hormone treatment?

Kind regards,
Jolamine xx

I’m so sorrry your mum took secondary cancers horrible vile disease but they are supposed to be getting closer to a vaccination feel bad for people that’s worse than me I asked her over the phone about a tread mill she said that’s a different department when I spoke to the guy as I had to cancel forgot I had groceries being delivered leg dressed thank god my leg is closed up had leg ulcer for 2 years had 4 leg ulcers in 10 years they are keeping me on long term antibiotics to keep cellulites out of my leg I still have it compressed I can walk bettter I called back saying I could not make it today I got a guy who was a lot nicer blood pressure blood test cge of the heart  said they would it speed up my heart meet the pharmacist like you said take up my prescription to show them my medicine unless that’s wrong 3 times now they have said 2 weeks for first biopsy took 3 then right breast thank goodness was negative I have had this tumour for 10 weeks the surgeon did feel it said about an inch or wee bit more but he would operate 3/4 weeks  explaining heart tested it would be on a Tuesday but I’m glad I have lost over a stone sticking to it I went on a egg diet for 3 days off you tube lost 5lbs I’m eating salads drinking plenty etc  ty for replying it is a comfort to me when people explain ty for that once again so sorry about your mum take care x

I’m having a hard time understanding why there is no uncertainty, how can they be so sure there has been no spread without carrying out those tests? 

Yes I had an ultrasound and a biopsy and a breast mri which was then followed by a second ultrasound and biopsy on the inflamed lymph node. I think the lymph node that tested positive there was only minimal involvement. I think the only reason I’m worried now is I have a pain in my back for the last week. 

The tumour has already felt like it has shrunk to me even after just the one session, I’m just worried about the back pain, but also worried to get the scans as I’d be afraid of what they could show 

go to your doctor explain your worries he will arrange X-ray earlier caught better but again I’m not sleeping well 4/5 hours if I’m lucky was supposed to go today for heart test bad urine infection I seen my surgeon only Monday he said 3/4 weeks they now booked me in for next wed heart test I had swollen lymph node but when I got ultrascan no cancer there I have invasive breast cancer in left mammogram picked up right breast unfamiliar skin tissue but it was scarring off first operation this my second time breast cancer I was clear 9 years then up pops another tumour on my left it was pea sized now over a inch it’s the wait 3 weeks for biopsy to come back etc I try and not stress myself out thinking by the time I get my operation could spread to lymph nodes surgeon explained them that is worse than me go first try and not worry try gel pain killers no better by a week go to your doctor wish you all the best xx

yeah I know the earlier caught the better it would be, I’ve only just turned 30 last week though so the prospect of it having already spread to bones is such a scary thought, as I know it can be managed and controlled and many women live 20+ years after a stage 4 diagnosis, I’m just not sure how I’d cope. But I suppose if other people can, I can! 

Min regards to your own biopsy wait for surgery etc, it seems everybody does be in the same boat, so although you worry of spread in the mean time I think the risk is minimal , and that’s why they leave us waiting to arrange a proper plan to ensure as best they can that it won’t come back

I wish you well they are getting closer to cure it I know it’s worrying I don’t sleep well at nights knowing I’m overweight too I started slimming before I took tumour lost over a stone I still need to lose another 4 but I’m sticking with it this time I drink a lot of water diluted sugar free juice to fill me up plus I get bothered with urine infection too good luck you can chat to me I’m glad I found this site some people have helped me as it’s different to 9 years ago x

Hi Lorz,

Unfortunately, these things happen. Cancer robbed us of a very special lady and I still miss her every day. This is such a cruel disease.

I am glad to hear that you got a nicer guy when you phoned the hospital back and, that he was able to explain things a little better to you. There really is nothing to these tests. My hubby has heart failure and has them  regularly.

Kind regards,

Jolamine xx

Hi Smarti,

Remember that your consultant and his team have been working with breast cancer for years and, can often diagnose it without any tests, although they will still carry out the necessary tests to be certain. On both occasions, when I first presented at the clinic with a lump, my surgeon was able to tell me that he was pretty sure that I had cancer before he even did any tests. Unfortunately, he was correct each time.

You have had all the routine tests for breast cancer. The ultrasound and MRI would show whether or not there is any spread and the biopsy would determine what type and grade of breast cancer you have.

Bone scans are iven if an advanced stage of cancer or an aggressive form of the disease is diagnosed. They are also carried out after you have been on treatment for about a year and then carried out from time to time.

It is certainly worth mentioning the pain in your back to your care team, but it is quite possible that this has nothing to do with your cancer. I have had back problems for years, but the radiographers refuse to x-ray it because there are so many important organs in that area and they don't want to create further problems in that area. I am sure that, if your team suspect that the two are related, they will do a CT or MRI to check things out for you. Yes, the downside of having more scans is that we never know what other demons this awakes, but we have to be prepared for that if we insist on further investigations. Some people want to know everything there is to know, whilst others would prefer not to know.

It is good news that you feel that your tumour has shrunk with just your first chemo session. Here's hoping that the rest of your chemo continues to reduce it. How many sessions are you going to have?

It is also good news that the involvment in your lymph node is only minimal. I expect that your surgeon may decide to take a few surrounding nodes away at the time of surgery, just to be sure. This is normal procedure and, nothing to worry about.

Hope this info helps you a little.

Kind regards,

Jolamine xx

jolamine

thank you very much for taking the time for that great response, you’ve helped to put me at ease a little! 

I noticed you said if an aggressive form of the disease, I did get grade 3 cells? Or do you mean if TNBC or HER2 + is diagnosed? 

They have said the HR+ and HER2- tends to be quite predictable and they know the pattern it follows. 

Im going to have 18 sessions overall.. 12 sessions of taxol weekly and then 6 sessions of AC biweekly! I’m also on a clinical trial for pembro.. so I have pembro/placebo once every 3 weeks as well. 

People have also been saying to me that the fact the clinical trial is for stage 2 hr + HER2- only means that I can be reassured that there has been a second opinion on the staging so to not panic over my back pain... it’s just really hard not to, I would have never thought anything of a little back pain before all of this! 

Hi Smarti,

I am not a doctor, but I understand that cancer can be more aggressive in younger people than in the older ones. As far as I understand, Grade 3 could also mean a slower growing cancer that has been present for a longer time, but because of your age, I would expect the former, rather than the latter. HER2- just means that the cancer will respond to hormone therapy.

The trouble with a cancer diagnosis is that every little niggle thereafter gets blown out of all proportion, and tends to get attributed to the cancer, when it is mostly nothing to do with it.

Kind regards,

Jolamine xx

that’s great to hear yes I read they are trial people at grade 3/4 hope this cures you beileve me they will try everything they want a cure I’m glad  yes back pain and other pains could be your system a bit run down plus you can’t sleep the same as well please keep in touch with me I go next week heart assessment just to make sure I’m okay for operation which I hate going to ask them to sedate me more lol have a nice weekend x

that’s great to hear yes I read they are trial people at grade 3/4 hope this cures you beileve me they will try everything they want a cure I’m glad  yes back pain and other pains could be your system a bit run down plus you can’t sleep the same as well please keep in touch with me I go next week heart assessment just to make sure I’m okay for operation which I hate going to ask them to sedate me more lol have a nice weekend x