hi don’t think the worse I have breast cancer was pea sized after getting biopsy done my tumour is now just over an inch right breast skin they are not sure if it’s skin tissue scarring after removing tumour 9 years ago got tested no cancer under my arm I know for a fact he said to me not hormone cancer it’s not bad once you get operation they remove tumour and so much lymph nodes even if it’s clear there don’t be too worried you will get put on pills m6 surgeon said to me the type I have no pills chemo radiotherapy I wish you well I have pain in my back side I keep on thinking hope no cancer cells there so I know what your going through I’m seeing my surgeon today to find out if I’m carrying the gene I have to go on tread mill to see how my heart is I’m praying I’m not carrying the gene good luck c

Hi Lorz,

I hope that you got good news today when you saw your surgeon and that you are not carrying the BRCA gene.

What type and grade of breast cancer do you have that it doesn't respond to chemo, radiotherapy or  hormone treatment?

Kind regards,
Jolamine xx

Thank you so much for the information I never knew that as when I had breast cancer 9 years ago it was aggressive tumour only 2 cm was told chemo then radiotherapy but the surgeon did say all changed now I never got my heart tested either they knew I had a wee heart problem  but I was okay my surgeon said because your heart can change they now make sure they phoned me today to go inn for a assessment of my heart but too short notice I have shopping getting delivered but have a nasty urine infection  which my doctor just phoned my chemist and I got antibiotics delivered as I am bothered with it from time to time he knows what pills to give me I now go next Wednesday by the well done that’s what I have lost over 5 but it’s took a year did the 3 day egg diet lost 5 lbs then I just make sure I’m staying off biscuits even diet ones if I have to wait 3 weeks maybe lose more weight I’m giving myself all the chances the guy explained it’s a blood pressure test blood test  and ecg of your heart never spoke about tread milli was 23 stone at my heaviest was depressed as had bad leg ulcer and I stopped smoking I then got down to 17 took over a year I’m now 15,9lbs which is heavy after reading in the papers all the time increase your risk of bowel and breast cancer I’m going to keep going 11 stone I would like to be. Good work with your diet  x

Hi Lorz,

I have found that my care team are much more open with me now than they were 10 years ago and, you will probably find the same. When I was first diagnosed, I found that there was much more available to me than there was when my mum had cancer. Things are improving all the time, thank goodness.

My mum also had heart problems, but these were never considered, when she had her treatment. What a pity that you were tied up today and couldn't go in for your heart assessment. Still, at least you've got an appointment for next Wednesday.

There does seem to be a definite correlation between being overweight and some cancers, so it's definitely worth to perservering in trying to get it down. I still have a few more stones to lose.

I shall be thinking of you on  Wednesday and, hope that all goes well for you.

Kind regards,
Jolamine xx

ty for your reply yes bit worried asked them they don’t speed up my heart he said no blood test blood pressure tracing of the heart and pharmacy looks at my list of medication etc I got told  all sorts 2/3 weeks biopsy first one I did wait 3 weeks second one only 2 weeks I got told I would go on a tread mill but ask the athentitse about that  your mum okay now I hope x

hi

sorry to jump in on topic.

i was recently diagnosed with stage 2 hr + and HER2- grade 3 with 1 positive node with a tumour size of 3.4cm.

i got no bone scans, ct scans, or full body scans as they deemed it not nessecary.

i recently started chemo on Friday but Wednesday before chemo I started to get an ache in my back (that mainly felt like a bruise), it’s not very sore at all, only a little bit when touched. I got my period on Thursday so I had put it down to that, however, the pain is still there, I am not sure whether to be worried  and I don’t know why I haven’t had any full body scans , and I’m nervous now thinking that it has spread , I’m probably freaking out over nothing I realize this - I guess I’m just anxious cos they felt there was no need for scans and I don’t know why this is

I am not sure about your kind of treatment but I would call you cancer nurse and tell her your concerns say also you want a X-ray as you have this pain in your back it’s worrying I got told I had a swollen lymph node too when I got ultra scan after biopsy in left breast there was no lymph nodes affected I had to go down to mammogram department to get right breast biopsy as unfamiliar skin tissue showed on mammogram it was scar tissue from 9 years ago I advice you to call them tell them your not keeping great and want reassured not spread I keep my fingers crossed for you x

Hi Lorz,

They won't speed up your heart rate as such, but you will most probably have some pads stuck on to your upper body and then be asked to walk on a treadmill. This can be left flat or they can introduce an incline, if they think that your heart is capable of coping with this. This will give a tracing of how your heart functions with exercise, so it is nothing to worry about. The whole procedure only takes a few minutes. Taking your blood pressure and looking at your medication are always carried out in your pre-med before you have surgery. This is just routine and something that everyone has done prior to surgery.

Sadly, my mum didn't survive. She was diagnosed 34 years ago. She had a mastectomy and radiotherapy, but no follow up or after care after that. Twelve years after she was first diagnosed she started complaining of the severity of her back pain and, her GP admitted her to hospital. The outcome of this was that she was diagnosed with secondary breast cancer which had spread to her liver, lungs, bone and brain. At that stage there was no more that they could do for her.

Kind regards,

Jolamine xx

Hi Smarti,

A very warm welcome to the forum, although I'm sorry to hear of your reason for joining us. Please don't worry about not having all the scans you mention. These are only carried out to clarify things if there is any uncertainty about your diagnosis.

Did you have an ultrasound and a biopsy? This is often all that is needed. You will no doubt get some of the scans you mention after you have had chemo. They often do this to see that the size of your tumour has reduced before surgery. You may well be given a few bone scans further along your cancer journey. This is to ensure that your bones are not being affected by treatment or spread of the disease.

We all tend to think the worst at this stage, but fortunately it seldom turns out to be the case. It might be worth mentioning  about your back when you go for your next chemo session. How have you coped with your first session otherwise?

There are a number of people here who have experienced what you are going through and, I am sure that you will find it helpful to speak to others who really know what you are going through, as they have experienced it all for themselves.

Do please keep in touch and letus know how you are getting on. We are always here for you.

Kind regards,

Jolamine xx

I’m so sorrry your mum took secondary cancers horrible vile disease but they are supposed to be getting closer to a vaccination feel bad for people that’s worse than me I asked her over the phone about a tread mill she said that’s a different department when I spoke to the guy as I had to cancel forgot I had groceries being delivered leg dressed thank god my leg is closed up had leg ulcer for 2 years had 4 leg ulcers in 10 years they are keeping me on long term antibiotics to keep cellulites out of my leg I still have it compressed I can walk bettter I called back saying I could not make it today I got a guy who was a lot nicer blood pressure blood test cge of the heart  said they would it speed up my heart meet the pharmacist like you said take up my prescription to show them my medicine unless that’s wrong 3 times now they have said 2 weeks for first biopsy took 3 then right breast thank goodness was negative I have had this tumour for 10 weeks the surgeon did feel it said about an inch or wee bit more but he would operate 3/4 weeks  explaining heart tested it would be on a Tuesday but I’m glad I have lost over a stone sticking to it I went on a egg diet for 3 days off you tube lost 5lbs I’m eating salads drinking plenty etc  ty for replying it is a comfort to me when people explain ty for that once again so sorry about your mum take care x

I’m having a hard time understanding why there is no uncertainty, how can they be so sure there has been no spread without carrying out those tests? 

Yes I had an ultrasound and a biopsy and a breast mri which was then followed by a second ultrasound and biopsy on the inflamed lymph node. I think the lymph node that tested positive there was only minimal involvement. I think the only reason I’m worried now is I have a pain in my back for the last week. 

The tumour has already felt like it has shrunk to me even after just the one session, I’m just worried about the back pain, but also worried to get the scans as I’d be afraid of what they could show 

go to your doctor explain your worries he will arrange X-ray earlier caught better but again I’m not sleeping well 4/5 hours if I’m lucky was supposed to go today for heart test bad urine infection I seen my surgeon only Monday he said 3/4 weeks they now booked me in for next wed heart test I had swollen lymph node but when I got ultrascan no cancer there I have invasive breast cancer in left mammogram picked up right breast unfamiliar skin tissue but it was scarring off first operation this my second time breast cancer I was clear 9 years then up pops another tumour on my left it was pea sized now over a inch it’s the wait 3 weeks for biopsy to come back etc I try and not stress myself out thinking by the time I get my operation could spread to lymph nodes surgeon explained them that is worse than me go first try and not worry try gel pain killers no better by a week go to your doctor wish you all the best xx

go to your doctor explain your worries he will arrange X-ray earlier caught better but again I’m not sleeping well 4/5 hours if I’m lucky was supposed to go today for heart test bad urine infection I seen my surgeon only Monday he said 3/4 weeks they now booked me in for next wed heart test I had swollen lymph node but when I got ultrascan no cancer there I have invasive breast cancer in left mammogram picked up right breast unfamiliar skin tissue but it was scarring off first operation this my second time breast cancer I was clear 9 years then up pops another tumour on my left it was pea sized now over a inch it’s the wait 3 weeks for biopsy to come back etc I try and not stress myself out thinking by the time I get my operation could spread to lymph nodes surgeon explained them that is worse than me go first try and not worry try gel pain killers no better by a week go to your doctor wish you all the best xx

yeah I know the earlier caught the better it would be, I’ve only just turned 30 last week though so the prospect of it having already spread to bones is such a scary thought, as I know it can be managed and controlled and many women live 20+ years after a stage 4 diagnosis, I’m just not sure how I’d cope. But I suppose if other people can, I can! 

Min regards to your own biopsy wait for surgery etc, it seems everybody does be in the same boat, so although you worry of spread in the mean time I think the risk is minimal , and that’s why they leave us waiting to arrange a proper plan to ensure as best they can that it won’t come back

I wish you well they are getting closer to cure it I know it’s worrying I don’t sleep well at nights knowing I’m overweight too I started slimming before I took tumour lost over a stone I still need to lose another 4 but I’m sticking with it this time I drink a lot of water diluted sugar free juice to fill me up plus I get bothered with urine infection too good luck you can chat to me I’m glad I found this site some people have helped me as it’s different to 9 years ago x