Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  •  

     

    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  •  

    Hi Jules,

    This is great news. It's not often that the lump is smaller than expected.

    It's not so good to hear that 2 of your nodes were cancerous, but let's hope that chemo and radiotherapy will zap any nodes left.

    I hope that your appointment with the oncologist goes well on Monday.

    Kind regards,

    Jolamine xx

     

  • Hi jolamine

    how are you? X met with oncologist yesterday and start my chemo week commencing 1 July. Four cycles every three weeks then change the chemo and two cycles every two weeks x twenty weeks in total so not too bad x I’m going to have some dental work done to try and stop the chance of infection before chemo starts and it means I can attend an important event for my son on 28 June and feel ok x 

    hope you doing ok x speak soon 

  • [@Woollylamb]‍ [@BigJean]‍ hi both 

    h‍ow are you both doing with your chemo? Been thinking of you and hope you are doing ok x  

  •  

     Hi Jules,

    I'm glad to hear that the oncologist has laid out your chemo schedule. I'm glad that you are getting your dental work out of the way first and, that you can attend your son's event before it all starts.

    I hope that it all goes well and that you ejoy the day with your son.

    Kind regards,
    Jolamine xx

  • hey mejules

    I am doing ok thanks. Very few side effects , heartburn, mouth ulcers and a bit of tiredness.  Had a review today and all good to go with round 2 next Tuesday.  Got my head shaved  which I’m pleased I did and making sure I take time to moisturise my skin properly.  Not sure what to do about eyebrows.  Our hospital also does free holistic therapies so I had a reiki session today so I’m feeling very relaxed at the minute.

    I’m pleased you have your plan now, at least you know what you are dealing with and when.  

     

    Thanks for getting in touch, look after yourself and let me know how your first session goes.

    WL

  •  

     

    Hi Wollylamb,

    I'm glad to hear that all is going well for you so far. I suppose that a few minor side-effects, such as uou mention are a small price to pay. I may be wrong, but I'm pretty sure that you can get your eyebrows tattooed on. Perhaps someone who has had this done, can tell you more about it?

    Having holistic therapies available in your hospital is handy - just what you need when you're going through chemo.

    Kind regards,

    Jolamine xx

  • Hi [@mejules]‍ [@Woollylamb]‍ 

    sorry haven’t been on in a while. Great to hear you both doing well on your treatment. Good to get the dental work done too . I too find the tiredness hits you all of a sudden. Have had a couple of mouth ulcers but that’s it . 

    Had my 3rd Ac last Friday all going good only one more left to go . Can’t believe it weeks are flying by . 

    Don’t know if any of you ladies experienced this but had slight pain on and off in my good boob and under my arm !!! Will mention it to dr when I go back next Friday. It’s not there all the time just a couple of times also didn’t know if it was related to my period ( 4 days late ) . 

    Hope everyone keeping well . Have a lovely weekend. 

    Take care 

    j xxx

  •  

    Hi BigJules,

    It's good to hear from you and, to discover that you are still managing to cope with your chemo.

    It's hard to believe that your next session will be your last one. It is certainly worth mentioning the slight pain on and off in your good boob and under your arm, when you see your Dr next Friday.

    Here's hoping that it is nothing untoward.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, 

    thank you for your reply. Hope you are keeping well . Yes I will mention it next week just really hope it isn’t anything to worry about as my mind as usual is already thinking the worst !! 

    I will be glad when the AC chemo is finished but to be honest it wasn’t as bad as I thought. I then start Taxol and Herceptin so hopefully that will be as easy and the weeks go quickly aswell .

    Thank you again for taking the time to reply 

    take care 

    j xx

     

  •  

    Hi BigJean,

    Like you, I hope that this is nothing to worry about, but you are best to let the doctors know of any changes as soon as possible

    Will be keeping my fingers crossed for you on Friday.

    Kind regards,

    Jolamine xx

Reply Children
  •  

    just tagging [@babs50]‍ into the thread. Hope everyone is ok.

    I looked into Microblading for eyebrows but they won’t do it due to risk of infection so I have a consultation for henna brows to see if that’s any good. 

     

    Cycle two tomorrow, and my second reiki session today.

    wish me luck.

    WL

  •  

    Hi Woolylamb,

    Please let us know how you find the henna brows.
    I hope that all goes well for cycle 2 tomorrow.

    Kind regards,

    Jolamine xx

     

     

  • hi to all the girls on here 

    Glad to read chemos are moving along without too many side effects however mouth ulcers can be sore and annoying  I get a spray in the chemist and I find it great  Aloclair plus spray 

    i had a rt mastectomy last Monday came home wed   Breast nurses amazing support drain out now so getting on with recovery, exercise and awaiting next step end of this week  prob chemo as nurse said don’t rule it out  

    I will have a month or so reprieve so I’m hoping to do fun things with kids off school before next stage of treatment   How is you arm Mejules hope recovery good and good you have a date for treatment  

    i am still very numb under my arm is this normal .. never to return?

    Regards S

  • Hi swiperbaby

    glad you are recovering well from your mastectomy. My movement is quite good but still can’t raise my arm over my head but still doing the exercises given. My upper arm is still numb but more so underneath. Having to shave my armpit in a mirror as can’t feel what I’m doing. Have been told feeling might not come back but it’s not really an issue until I have to shave. 

    Due to start chemo 5 July . Had tooth out Thursday and now got infection so on strong antibiotics to try and get rid before chemo starts.

    Hopefully you won’t need any further treatment Hun x take care

    x

  •  

    Hi Swiperbaby,

    I’m sure that you are happy to get your mastectomy behind you and, glad that it all went well. Are you due to get your pathology results at the end of this week too? I hope that it is all good news.

    Enjoy your reprieve for the next month or so and, make the most of this time with your children.

    Kind regards,

    Jolamine xx

  •  

     

    Hi MeJules,

    I am glad to hear that you have had your teeth attended to, but am sorry that you now have an infection. It should heal up in plenty of time for you to start chemo.

    I hope that it all goes well.

    Will be thinking of you on 5th July.

    Kind regards,

    Jolamine xx

  • [@Jolamine]‍ [@Woollylamb]‍ [@BigJean]‍ hi all hope all is well. Just a little update. Was blue lighted into hospital yesterday morning had a few fits/fainted. They thought it was sepsis and then cancer on the brain. Luckily CT scan back ok and had mri this morning. Just waiting for results but they hoping it was just a severe reaction to the antibiotics for my tooth. Hopefully chemo can still go ahead on 5th x 

    take care all 

  • My goodness [@mejules]‍ that must have been scary. I’m so glad you’re ok, hope the MRI scan is ok as well. 

    All ok here 2 days after my second cycle and all seems fine, same side effects as last time so far, I have injections for the next five days and they made me tired last time and a bit achy so i’m waiting for that to kick in.  

    Let me know how you get on. X

  • Hi Mejules, 

    omg what a fright you must have got . Glad to hear your scan was clear . Fingers crossed that the mri comes back clear too . Hope you doing ok now after the shock ! 

    On my way to my last AC today all being well . Then will start weekly chemo ! 

    Hope everyone else is keeping well and doing ok .

    have a lovely weekend . 

    Take care 

     

    j xxx

  • Hi Mejules, 

    This must have scared the living daylights out of you, but I'm so glad to hear that it wasn't sepsis or brain cancer. I hope that the CT and MRI turned out ok and that it is just a bad reaction to your antibiotics.

    I sincerely hope that this doesn't delay your chemo.

    Kind regards,

    Jolamine xx