Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

Parents
  • Oh yes that’s right I’m sorry my brain is like in a fog lol do u know wht I mean ? X

  • My brain is foggy too, I've not had diagnosis yet, I'm still waiting for biopsy results

  • Hi all. I'm probably worrying over nothing. You know how you Google things and just make things worse. I'm 46 and always had regular periods. In Feb/Mar I started spotting between periods, sent for a routine internal scan, comeback abnormal with thickened endometrium of 18mm and a vascular area, my fibroid had shrunk slightly, slighlty bulky womb. I was referred for gynaechology Mid March and Covid happened. My bleeding between periods only lasted 2-3 months. End of May I contacted the Dr to tell her I had started to get right sided ovulation pain, she escalated my appointment to urgent on the 1st June. I do get mild spasms now and again in my pelvic area and last two days lower back pain, but that may be all it is. My last period was heavy with a very large clot. I had my first gynachology appointment today, who suspect I could have a polyp and need to do a Hysteroscopy. They said I could be seen in the next 2-6 weeks to have this done. My concern is the 18mm thickness. Good news was in that in beginning of June my CA125 was normal. 

  • I'm in same sort of thing to you , I go on Tuesday for hysterectomy , had irregular periods, bleeding after sex , lower tummy pains and back ! Water discharge!! I've googled over last month thousands of times n same thing got the C word ,, google is horrible doesn't help anxiety and adds to the fear !! So sorry for everyone feeling this way , as I know how it feels , can't eat , sleep worrying sick !! I last month had test on cervix to , had silver nitrate done said I had a erosion took a biopsy and they just come back clear ,, now this in womb found on ultrasound so waiting on Tuesday test now , feels so much going on at once ! They said to me thickening of womb and polyp? Scared so much !! 

  • I wish you the very best of luck. Yes google is not a great thing at times. I know it's easier said than done but I always try and tell myself than worrying is not going to change anything  it will only make me feel worse. I have just received a call today following my appointment for 4th Aug. I'm impressed. 

  • That was ment to say Tuesday hysteroscopy not hysterectomy sorry !!!! Wow not long for you then too best of luck xx 

  • I also read it as Hysteroscopy to be honest. Well good luck and please do keep us updated on how it goes for you

  • In similar position I had lower stomach pains that's just don't go bright red blood like period  I am 63 so went through menopause many years ago I also have briwn discharge I hot referred via two week rulevthey dud internal scan and I have womb lining thickness of 10mm They trued ti biopsy without anesthetic the pain was unbelievable They had to stop as as nearly fainted and bleed for nine days later i a have  to have a hysteroscopy under general anesthetic as day case I had to gave covid test consultant wanted me to have ecg due to hesrt issues and previous stroke zi had more blood done and going in as dsy case for biopsy soon I to feel your fear  I wish you well keep us informed ....xxx

     

     

     

     

     

     

     

     

     

  • Its such an uncertain time.

    I have a transvaginal ultrasound booked for tomorrow morning. If lining still thick and suspected Polyp showing ill be booked in for hysterscopy. Gynae also considered my lining being thick on transadominal scan due to me being due on my period at that time.

    Let me know how you get on.

    So many things go through my mind. Just trying to remain positive. X

  • Tortilla I will be thinking ifbyou zi am booked in early August for my hysterscopy as I say they trued to do it without any psin relief it was so painful I have a low pinfold but it was so bad so bad I hooe you get psin relief if you need to have itxxx hugs 

  • Hope it goes well are you have some pain relief as I was told I would have slight discomfort like period oain, mine was very severe pain however I have low pain threshold and went through menoupause some years ago. Some people I believe feel very little psin so please let us know hiw you go on and healing vibes for you x

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  • Hi,

     

    I had my second hysteroscopy with a polypectomy & several biopsies & really doesn't hurt. Slight cramp when they dilate your cervix but other than that it's fine. It's the waiting for the results that's getting me anxious.

    Wish you ladies luck ️

Reply Children
  • Su so glad yours did not hurt and I wish I was one of those who sailed through it but mine was horrendous I had severe stomach cramps, nearly fainted my legs were killing me and I bleed for 7 days after so we had to stop I am having it done again under general anesthetic

     

    I have a low psin threshold and its been about 8 years since my menopsuse so getting through cervix was so painful 

  • Hi All,

     

    new to all this, I've held off posting but decided to fire away as I'm just sitting home worrying. I'm 37 years old I had my third baby 10 months ago. Whilst I was breast feeding before my period came back I was having a strange discharge it was sometimes yellow sometimes greeny brown. I thought it was BV so got some over the counter suppositories that didn't work so thought maybe I had thrush so got some canenstan suppositories which again didn't help. Anyhow I decided it must be hormonal and decided to stop breast feeding. A couple of months later my period came back but it was ridiculously heavy, I was having to wear both a super tampon and a night pad together and changed them after 1 1/2 hours. I waited a few months to see would they settle but after four months they didn't so went to the gp. She sent me for a pelvic US which showed up a mass ?polyp ?fibroid. I was referred to a gynae and he did a trans vaginal US which showed thickened endometrium and a a lump which is 18mm in size. I've to go in on the 17th of Aug for polypectomy and D&C under general anaesthetic. I'm worried sick my gp has said endometrial cancer is typically a post menopausal illness but there are always exceptions. The waiting is awful 

  • So sorry to hear your so worried I know it hard not to. I hope the news is good when you get it kerp us informed. I also new hesr and just thought it might help to talk to people going through it. I must admit tge hospital have been very nice, but it hard not being able to have anyone with us due to covid. I am disabled and my husband normally helps me  but had several nurses helping me.

     

    Virtual hugsxxx

  • Thanks for responding! Just can't wait to have it behind me! At this point I just wish I knew either way so that if it turns out to be something sinister I can just focus on getting over that! Otherwise I just want it behind me so I can move on and forget this worry! 

  • I here where you are coming from I hope the days pass fast having dreadful day today but just wanted you to know I care hugs x