Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

Parents
  • Hello!

    thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

     

    I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

  • hi laney

     

    Appreciate your reply

    I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

     

  • Hi 

    sorry , I've only just seen your post.How are you doing?

    was your appointment for the USS a 2 week wait or your appointment after the scan ? 
    my 2ww appointment was after the USS as they saw a mass that didn't look like a fibroid, that they identified as a possible cancer. It took 3 weeks for my appointment because everything is so backlogged at the moment, but he then booked me for a hysteroscopy the following week, I signed the consent at that appointment and had my hysteroscopy as planned. In my are they do the hysteroscopy in the day surgery unit as mine was under GA. I know some are done under local, but I would think  you would know you were having this before the appointment as you would have a letter explaining the procedure and would need to consent.

    I didn't have pain like you have experienced, although I had some pain my main symptoms were bleeding related.

    I hope this helps and good luck with your appointment x

  • Hi hun

     

    I had a biopsy without hysteroscopy that caused a bleed for a week which was heavy and clotty. 

    I saw my gyne yesterday

    I have (had) hyperplasia and endometritis with mild PID 

    antibiotics and POP for treatment as my hyperplasia caused by harmone imbalance it was clear of cancer and should have shed now. I go back in Jan for camera in to check for endometriosis. ♡♡

  • Hi 

    Thanks for letting me know how you got on. I'm so pleased it's not cancer, but what a scare ! now you can move forward and onwards. I hope everything clears up and you can forget about it all. 
    Take care of yourself , enjoy and celebrate life. xx
     

     

  • Hi hun

     

        I am sorry to read your news, you can always come to me to rant or chat if you want to of course. I can totally understand how nerve wrecking it is and I am always here for you. 

     

    You got this, babe xxx

  • Thanks so much, I get my staging on 2nd September and to be honest the odd panic has well and truly settled in to put it mildly. 
    Thanks for your care and support xx

     

  • I've sent you a friend request if you want to keep in touch x

  • ♡ Always, don't mention it sweets. 

    Alwaa good listener and a good shoulder. You can always message me privately if you need to. I won't be leaving the platform

  • Hi after a bit of advice please as I'm going out of my mind .. 

    5 weeks ago I had a internal pelvic scan the pain in my left side & back was horrendous after, I heard nothing for 3 weeks then last Monday had a call to say my scan was abnormal unusual thickness of the womb, my. Left ovary couldn't be seen & cystotic space, my gp referred me to women's hospital. 3 days later I heard off consultant secretary advising me after seeing the scan results my consultant (I have endo) originally was going to do an mri but that now he wants to do a  hysteroscopy & take biopsy within 2 weeks I have that app on Friday .. all of my pain is on the left side pain in my shoulder blade, severe flank pain I'm so scared has anyone had this & it not been cancer my periods are very heavy but then suddenly stop, I struggle with going to the toilet it's all so scary 

  • Hello lovely, 

     

    All my pain was stabbing on the right side and sometimes pain on the left. I had a thickening and I have swollen ovaries. My biopsy revealed hyperplasia - But not atypical. I have a fibroid and pcos and a bulky uterus. 

    My gyne wants to go look around with a camera as I have pain and it could be endo. 

    Like you my bleeding was heavy and on and off. It has now stopped with the mini pill but still get spottong after bowel movememt which is odd. 

    I truly hope you get good news soon lovely. 

  • Hi everyone 

    I have recently had a transvaginal scan after having small bleed . Now in menopause 20 months since last period. 
    got a call from gp receptionist within 5 hours of having scan to make appt to discuss scan with how following day . Gp said scan was abnormal with several fibroids and thickend lining blood a blood vessel providing blood somewhere so have appt on Thursday an gynaecology. But annoyed at myself as have been having pain in my left groin for several months and legs but just put it down to an op I had on my pelvis to use the bone for graft to a broken foot 10 years ago . I just thought maybe a bit of arthritis. But Sunday morning I found a swelling on the left side groin where I have been having pain so now terrified. Also I have been under the hospital for breast cyst in October then again in June when they said my lymph glands were swollen but probably due to having covid jab the previous week even though I told them I had been having pain under my arm Breast bone and shoulder which has got much much no further action was taken . So very worried if I do have womb cancer as the doctor mentioned as the worst case scenario it has advanced and spread 

    I just can't sleep with worry xx

Reply
  • Hi everyone 

    I have recently had a transvaginal scan after having small bleed . Now in menopause 20 months since last period. 
    got a call from gp receptionist within 5 hours of having scan to make appt to discuss scan with how following day . Gp said scan was abnormal with several fibroids and thickend lining blood a blood vessel providing blood somewhere so have appt on Thursday an gynaecology. But annoyed at myself as have been having pain in my left groin for several months and legs but just put it down to an op I had on my pelvis to use the bone for graft to a broken foot 10 years ago . I just thought maybe a bit of arthritis. But Sunday morning I found a swelling on the left side groin where I have been having pain so now terrified. Also I have been under the hospital for breast cyst in October then again in June when they said my lymph glands were swollen but probably due to having covid jab the previous week even though I told them I had been having pain under my arm Breast bone and shoulder which has got much much no further action was taken . So very worried if I do have womb cancer as the doctor mentioned as the worst case scenario it has advanced and spread 

    I just can't sleep with worry xx

Children
  • Hello

    i can completely understand how anxious you must be feeling. It is natural to feel scared and imagine the worse. I'm not sure anything will really help you feel less worried until you fully know what you are dealing with. Are you seeing a gynaecologist or a gynae oncologist? Remember these are specialist doctors who are experts in their field and will want to get to the bottom of what is going on. They have regulated guidelines of processes to follow so you should be in good hands. Why not write down all the things you want to mention , make them aware of and any questions you might have. It is good you are on the process of dealing with whatever it is and in the hands of the right people. I try and take one stage at a time otherwise the panic just sets in and I feel out of control with no where to turn. I hope you get some questions answered on Thursday, let me know how you get on if you would like to. Xx