Told my Dads Pancreatic Cancer is inoperable

Hello Everyone,

This is the first time i have posted into a forum, although for months i have been reading alot.

To be as brief as possible, my Dad was diagnosed in November with stage 2 pancreatic cancer.  After 5 weeks in a hospice to try and manage the pain and symptoms, he started his chemotherepy in an attampt to shrink the tumour and move it away from a vein so the operation to remove the pancreas could commence.  All through the Chemo/pre-chemo he was advised that all his tests where comming back great and his immune system is/was as they wanted it to be. 

Just before his final chemo session (4 weeks ago) he had a CT scan with contrast to see the effect of the chemo on the cancer.  A few days later we received a call form his consultant, advising that "he "had viewed the scan resuts prior to sending them to a hospital in Birmingham and in his opinion, they look very positive"

Last Tuesday, the results came in and we was called to the consultants office.  At this point we was expecting, as a worst case scenario that the tumour hadnt shrunk enough and more chemo would be required (from what he said the week previous).  It was at this point he advised that the chemo has been ineffective and that the hospital in Birmingham will not operate, and gave a prognosis of 6-12 months as there is nothing else they can do.

As im sure some people have had the same, it was worse than the initial diagnosis.  My Dad is trying his best to deal with it, but now the symptoms and pain have started again.

My main question is, can we get a second opinion on the operation or any other treatment that could prolong his prognosis without effecting quality of life.

I do understand that the percentage of pancreatic cancer patients that are offered the operations is extremely small, but I feel we must look into this.

Any advise whatsoever would really be appreciated.

Thank you all

Shaun

  • I am so sorry to be reading this post and I can totally understand what you and the family are going through.

    my father went through exactly the same and he was hoping for the same outcome but unfortunately received the same as yours.

    its not what you want to hear. I wish my father was here now to chat with your dad. We had a fantastic 12 months from the same outcome - dad suffered with pain managed by morphine .

    my dad was also hoping for the whipple operation but it also not that successful only adding a few more years.

    its not what you want to hear but once we found out we made the most of it and he went on two cruises during that time.

    i can only wish you and your family the best and feel free to contact me.

  • Hi Jackoles,

    Thank you so much for your reply and im so sorry for your loss.

    My Dad also suffers and has done since the mid seventies from what is now known at PTSD with addition anxienty disorder.  Due to the medication he is on for this, he is also limited to what other medications he can have (Morphine being one of them).  Unfortunatly it is not medication he can just stop, he would need to be hospitilised for several weeks/months to change it.

    The one thing the consultant said, which was the main reason for not offering the operation was that the tumour had wrapped around the vein a little more from the first diagnosis.  But I read that there are vein bypass operations that can be done.  Its just all very frustrating and upsetting.

    Sometimes i just feel that even if the operation is extremely high risk then its better than nothing at all (if that makes sense)

    As a matter of interest, when you went on the cruises, what insurance did you have for your Dad? I would love to organise a cruise for him but the lowest travel insurance quote i found was £2,300.00p

    For me, im struggling as its just me and my Dad, as his side of the family live in Cornwall.  My work have been brilliant and im currently on reduced flexible hours.

    Again thank you for the reply

    Shaun