Hi Karen and welcome to Cancer Chat.

I just wanted to put you in touch with [@Peter78]‍ as their dad is slightly further ahead of you on the bladder cancer journey so may be able to help you understand what you're contending with. His dad lives in Holland and has found it a bit difficult to get information at times but I'm sure he will do what he can to help now that I've mentioned him in this post.

I'm also going to give you our cancer nurses telephone number in case you want to call them and work through the conflicting information you've been given and read. Their phone number is 0808 800 4040 and their phone lines are open Monday - Friday between 9a.m - 5p.m.

I hope this helps and that the rest of your chemo goes well.

Kind regards, 

Steph, Cancer Chat Moderator

Hello Karen

So rry to read your problem.

I have bladder cancer & find it hard to find anyone with the same problem.

My best wishes to you x

Hi Karen

I have bladder cancer too

I have just had my third operation to remove two tumours, now awaiting the results .

such a distressing time x

I have had two turbt and a course of mytomycin but this didnt work so im unsure as what will be next x

I hope you get some answers and please do let us know .

keep strong x