Recent diagnosis Glioblastoma grade four

i am new to this forum. My mother has just been diagnosed with GBM, ten weeks after the initial symptoms we all thought were due to the stress of being carer for my father who is disabled through a stroke.. Up til then, she was a capable and lively woman and now we are facing a poor prognosis of ‘months’.

My brother and I hit the ground running as it was clear our parents needed more support with someone there 24-7 and we need to organise some live in care at weekends for respite. 

I want to know what will happen to Mum who is currently feeling ‘well’ despite the large tumour in her temporal/pareital lobe . As the disease progresses, how will she start to decline?. I know everyone is different. She has impaired thinking and planning and is a bit unsteady on her feet. She is having problems reading text but she is bright and chatty and positive, accepting her diagnosis and trusting her Christian Faith. The family needs to be prepared. We have looked round the local hospice and she thinks it is wonderful, so perhaps that is the best place to start. Her GP is good too. 

I just feel this is the lull before the storm.

 

 

  • Hello Libbaloo, 

    Welcome to Cancer Chat though I am really sorry to hear about your mum's recent diagnosis. It must have come as a shock to you especially as she is your dad's main carer and I can imagine it must be really hard for you and your brother at the moment having to organize long term support for both your parents. 

    I thought I would share with you some of our detailed information on glioblastomas. You can find out more about this type of brain tumour on this page . You would also be welcome to give our nurses a call and they will be able to tell you more about how it tends to progress. You can reach them on this free number 0808 800 4040 Monday to Friday from 9am to 5pm. 

    Given the circumstances, your mum seems to be coping with the news well and as sad as it may be, it is good that she likes her local hospice and has a great GP. This will certainly help you all prepare as a family. 

    You have also joined the right forum to talk to others affected by Glioblastoma. We do regularly get members posting about how they have been affected by this brain tumour. To find other threads on the subject, all you need to do is type 'Glioblastoma' in our search function which is located in the blue banner at the top. It will show you other relevant threads and you can choose to respond to the ones you feel are relevant to you. Most recently [@Poppycoffey]‍ shared a very similar story to yours on this thread - her mum has also been diagnosed with Glioblastoma so I think you two would have quite a lot to share with one another! 

    Best wishes, 

    Lucie, Cancer Chat Moderator