Following removal of an adenocarcinoma from my bladder in October ’18, it has been recommended that I have my bladder removed. This type of tumor is so rare that I am unable to come to a decision. I had a paper review carried out by a Harvard teaching hospital in Boston who agree with my consultants recommendations on the basis of the rarity of this type of tumor in the bladder.
I am trying various alternative treatments. In addition I rec’d a blessing in November, during which I was told it was gone. At my request I had a further biopsy on 25 January and today learn that there is no evidence of any malignancy in my bladder. Have appt next week with Consultant and want to be prepared in my fight to keep my bladder. Surely if there is no malignancy in the bladder then the sensible approach would be to keep bladder and have regular check ups?
The Pet Scan showed no other growths but did show 2 of my pelvic lymph nodes light up near the site of tumor. I am going to request that they remove just those lymph nodes as against removing all my lymph nodes as suggested. Does anyone have an opinion?