Just diagnosed Lobular Breast cancer & in lymph nodes

Hi All

Just been diagnosed as grade 2 lobular breast cancer and afyer biopsy was found in lymph nodes. Only had a mammogram last April and nothing could be seen. My breasts are full of finbroadanoma so it felt just like one of them but my nipple became inverted.

Was in complete shock. Lump is 7 cm and I will be opting for double mastectomy as I don't feel the other breast has healthy tissue due to fibroadanoma. I am not worried about treatment but just the fact it has gone into lymph nodes.

Scary that I had a mammogram in 2018 that showed nothing but this worries me that it was there though.  Blood tests seem fine but slight increase in neutrophils. Really anxious that it has spread somewhere else in my body because it could have been there for years.

Can someone reassure me that there are plenty of women out there who get it in their lymph nodes and it doesn t spread? I can't feel them enlarged and the cancer is right next to my armpit so they did not have far to travel.

I have CT tomorrow and bone scan on Tuesday. Reassurance needed and if anyone knows how long the results take?

  • Hi Wendy127, I am in similar positions as you. Got CT scan tomorrow and MRI Tuesday. Due to have mastectomy and node clearance in 2weeks. Really nervous what the scans will find.  Hope all goes well with yours.

  • Hi

     

    Thanks for your reply. Is yours in your lymph nodes? That is what worries me. I wonder how long it has been there and whether it has spread. I am not having an MRI as I want a double mastectomy as both breasts are full of fibroadanoma. I have CT scan today and bone scan on Tuesday. Has the shock worn off yet? What are you doing to cope?

    I have told my children which was a relief but it is so scary. I have had 2 mammograms in last 3 years and nothing was picked up.

    I am having chemo first then mastectomy and lymph node removal followed by radiotherapy. Isn't it strange how they do it differently. Did they do a biopsy on your lymph nodes?

  • This was found on first mammogram, so god knows how long it’s been there. I was given a core biopsy on the breast and a fine needle biopsy on the node under my arm pit by ultra sound. Both positive big shock, everthing is moving so fast. The scan as they say are the pieces of jigsaw to get in place. I am finding it’s the unknown which is the scary bit. The minute you try to sleep everything comes into your head good and bad. I have just had to cancel my holiday with grandchildren.planning to tell them Thursday after my appointment hopefully will have more answer and scan results. That’s going to be a hard talk! Trying to keep positive and you must to. One step at a time.
  • Once I told my children I felt so much better. I told the oldest first in case He had different questions. They asked if it was Cancer and I was honest. The thought of telling them was far worse. We had a laugh about funny wigs I could wear. It was actually very comforting and really is not bad at all.

    Just has my CT scan and convinced myself that they were quiet when I came out and that I am riddled with it. Then tried to remember that my bloods were ok. CT took about 10 mins. They inject die into you and that's it. Not a problem at all.

    I am still in a daze myself. Don't feel you have to answer but how old are you. I am 45.

  • Hello Everyone

    I’ve never posted anything before and never thought this site would be my first. So, I went for my routine 3 yearly mammogram two weeks ago, waved a cheery goodbye and thought that would be it for another three years. I got home from work 5 days later to find a letter asking me to go back for a second mammogram. I had two days notice. This time they did an ultrasound and found a cyst. “Oh I thought so” I said; then there was the dreaded hesitation and those words “I’m not sure what that is. Let me get a second opinion” I had a biopsy done and again wasn’t too concerned. This Tuesday I was told I had stage 2 lobular cancer. I just looked at the surgeon and found myself saying “ok, let’s get this done. What’s the plan of action?” I’ve now had letters arriving daily with appointments for an MRI, a metal clip to be inserted and finally all the results on the 27th outlining my surgery, radiotherapy and medication. I haven’t cried, although telling my adult children was difficult. I’m sure I must be in denial and it will hit me very soon. I haven’t looked on Dr Google, but have done a lot of research about my type of cancer. I need to be informed so I can ask questions along the way. It’s my way of staying in control. I just want to say that for everyone who is dealing with this, along with me, stay strong. 

  • Hi Tillypops

    Welcome, you will get lots of support on here! My story is similar to yours but I am further on so the post man doesn't come quite as often! I am halfway through radiotherapy and was fortunate not to have lymph node involvement. I just go with the flow and do as I am told. You are so right not to consult Dr Google! I still can't believe this is happening to me so maybe it never sinks in? The worst part was all the waiting for results so keep yourself busy.

    wishing you good luck and keep us posted. You are not alone! 

    Cx

  • Thank you so much for taking the time to reply. I’ve been in hospital today having the metal clip put in. They will remove a lymph node during  surgery, but all looks benign on the ultrasound.  It sounds very much like your diagnoses. I’m really feeling good. Just so grateful that it’s been caught early. I consider myself one of the lucky ones.... 

    I too still feel in shock. As you say, maybe that sense of disbelief always stays. 

    I hope you are not too affected by the radiotherapy.  I’ve heard it can make you feel very tired

    I’ll keep you posted x

  • Hi Wendy i had grade 3 ductal breast cancer it was 5 1/2 cm and had spread to my lumph nodes under my right arm , i too had c.t. scan and bone scan.  luckily it hadn't spread anywhere else,  but the worry was dreadful i had convinced myself it had spread.  i had 6 chemotherapy and mastectomy and full lymph nodes removal.  im 16 months clear now and i still panic.  constantly check for lumps.  .  try not to worry too much,  it is possible to be in lymph nodes and not spread.  good luck with your treatment 

  • Hi 

    So glad you are feeling positive! You will have dark days too and this is normal. I am a bit tired now as I go for radiotherapy every day after work. It is worth it though! We will beat this!

    C x

  • Hi C

    I’m sure I will have dark days, but I don’t want to take the strength from today by worrying about tomorrow. This is my mantra! I will have to take three weeks off work to have my radiotherapy as the nearest hospital for the treatment is 1hr 15mins away. Thank goodness I have lots of holiday to take; I’ve had to cancel a trip to the states in April, so instead of having fun in Arizona I’m going to be having radiotherapy. How life can change in an instant!

    O x