Throat Cancer

Hi all

 

After reading this day after day I have finally taken the plunge and joined the group.

 

At 37 you don't expect to hear the news you have cancer, but yes that is exactly where I am at. On the 3rd of January I was diagnosed. A day I will never forget, tears confussion and denial! 

 

Finally I'm at a stage where I know it is throat cancer and possible tongue or tonsil. 10 days ago I had the operation  to have the tonsils removed and part of the tongue for biopsy. I have been told it's in one lymph node and HPV16 and classed as very early stages. My consultant has reiterated on several occasions that the only outcome they see is cure, which I know is positive. I have my treatment meeting a week on Wednesday, after my operation my doc confirmed he would still want to do chemoradio therapy which by the sounds of it is absolutely brutal.

 

Here's the problem I have 2 little boys and a beautiful wife and it just freaks me out that I keep thinking the worst with all this waiting yet (like will it spread) everything I read and hear is all very positive news. I myself am quite an anxious person and believe in a straight mind that all will be fine but is this the normal for everyone. Not only I am dreading my 8 year old and wife see there dad / Husband become a frail man for a little while. 

  • Hi Amy

    Oh dear what can I say to help?

    The " she" that did your scan, was she a doctor? If not then she seems to have given you too much information. In my case nobody tells me anything at all even when I ask, I am told the consultant will give you information and results when you see him. You can see the reasoning behind this,since what youve been told has put you into high stress mode,and you have no consultant to get info from as yet.

    It is still early days in your investigations. You will possibly have quite a few tests etc to come before you know one way or the other.

    Your scan is not definative it is only indicating that further investigation is required, so try to keep that in mind.

    I had a CT scan that returned a node negative result. Consultant was not accepting that and consulted with collegues and it was decided that I had to have a further test which revealed positive nodes. So it just goes to show that all the best technology in the world can get it wrong.

    There is no point in me saying stay off google since youve already been there! Dr Google only seems to point to worst case scenarios,and its so easy to link ones symptoms to what is written on there. There have been many people come here frightened out of their witts from reading stuff on there and mostly ends up up they have not got cancer but something more benign.

    So hopefully you will be seen on Thursday and not kept waiting for an appt. Do let us know.

    So lovely to hear of upcoming wedding! Concentrate on that and carry on. No more tears for now pick yourself up and be strong!

    xxx

     

  • Hi Amyque

    csn only echo Clara comments try not to stress plus if not consultant who gave you info they need reporting as I had mri pet ct scan n not a word was said it was always my oncologist who gave me results. 

    Concentrste on happy things and please let us know when you’ve had s n t appointment 

    tske csre

    hazel 

     

     

  • Thank you for all your reply’s, I will update you all once I get some answers. 

     

    Xx 

  • Hi New here..Hope you dont mind me writing...?.but my husbands about to start this journey...prob within 2 weeks...want to get on with it but emotionally its sooo hard...hes coping better than me...I cant even tell people without breaking down & have known for a few weeks now.Been for'planning' today which makes this nightmare more real. Was told losing my mum to cancer 2 years ago would be the hardest thing I would ever experience...wrong..this is.

  • Hi  then ither half 

    hang in i there  ive written a blog www.radioactiveraz.wordpress.com and my hubby who is in your position alsomdid a contribution from his,point of view as being the other half.

    its equally as hard for you the caree as opposed to me the patient . All I can say is I’d incan do it a 61 female who is a wimp anyine can do it. 

    Treatment is hard n brutal might as well be honest recovery varies but it’s nit a walk in the park but the end result does have a good outcome. 

    Do you know the diagnosis yesterday I was a TN2N2NM0

     

    hoos your head up high walk tall it’s doable

    Hazel 

     

  • Other Half,

    Can understand your anxiety and upset and i'm not going to lie and say its an easy journey because its not. However while a challenging time the chances of success and cure are high and the light at the end of the tunnel exists.

    I have also written a blog, warts and all, and breaks my journey down week by week from the start. It also has a helpful section with tips.
    I was diagnosed with Throat Cancer last June and cut long story short, after all treatment etc was given all clear on 5th March,

    Please feel free to friend request me if you feel that will help on a one to one as I have done with others. Please keep us posted on progress

    radiotherapythroat.home.blog

    kind regards

    ian

  • Hi Other half.

    This is the hardest thing to face. You go through so many emotions and it doesnt seem to get any better,but it will. There is light at the end. My husband went through this and now its myself who is facing it. We drew two short straws!

    Its really good that your husband is coping,he sounds like a strong person.

    Both Ian and Hazel blogs are a place to visit with their first hand experience. It will help you understand what to expect at various stages of the treatment.

    I find the most tremendous support here so many kind, friendly folks.

    So dry your eyes and get ready to be his rock. xx