Mastectomy and reconstruction advice

Hi,

I have been diagnosed this week with high grade DCIS and a small cancer cell broken through into tissue. Need to make decision regarding reconstruction etc. I am considering diep or back flap and unsure if better to have same time as masectomy or delayed? Unsure if radiotherapy required, scan showed lymph nodes clear, but biopsy to be taken at time of surgery to confirm. I am feeling very baffled and emotional, shocked by whole ordeal. Any help and advice

much appreciated!!!!

Thank you , Lisa x

  • Hi there

    I had a mastectomy three weeks ago (high grade DCIS) but don’t need further treatment and I opted for no reconstruction. I had a small chest anyway and am not concerned by my appearance, don’t wear low cut tops etc. Surgery was absolutely fine, no drains and I’m recovering really well.

    Im sure someone with experience of reconstruction will be along soon, just thought I’d send a reply until they do!

     

    Sheila xx

  • Hi,

    Thank you for your reply, I am finding it all quite overwhelming at the moment! I'm edging towards diep tummy reconstruction at yhe sane time as i am hoping no furtber yreatment will be necessary. Seeing consultant on Thursday, so I will see if she can guide me! 

    Thanks again, I'm glad your surgery went well and that you are recovering well also.

    Lisa x

  • Hi,

    Thank you for your reply, that all sounds so positive and encouraging! I am booked in for both on Monday (decided to go for tummy diep) had pre ops and ct scan this week, just want it over with now!

    Thanks again, fingers crossed my op is as smooth and successful as yours was! 

    Lisa xx

  • Hi,

    Well all started really well, op went well Monday and I was thrilled with how it looked. But by Tuesday they realised there was a problem and I had hobgoblin for another op to investigate. Ended up having to have it removed. I have really struggled and been quite down about it. But I have now picked myself up-the nasty has gone, I have had a tummy tuck and I am now having back flap reconstruction on Monday! Going home tomorrow for 1 night and then back in for op 3! I keep telling myself it's a minor blip and it will all be over next week!

    Lisa xxx

  • Hi,

    Well all over! Home now following back flap op on Monday. Tummy scar is healing nicely and I am thrilled with my new boob! So just on with recuperating and getting over the last couple of weeks. I can't believe how my body has coped with 3 ops within 7 days!

    Thank you for your words of encouragement and support, it meant a lot when I was struggling with the disappointment last week!

    Lisa xx

  • Hi,

    Yeah loving my flat tummy too, I didn't have much of a tum before, but can't believe the flatness! (Which my eldest son thinks is awesome as he is really into his fitness and thinks ill have a fab 6 pack ha!) Had a rough night sleep last night, just couldn't get comfortable and feeling like I've been hit by a bus this morning! Got hospital appt tomorrow to remove dressing off my back and hopefully my drain too! 

    Lots of r and r ahead and baby steps! 

    Lisa xxx

  • Hi,

    Yeah had 3 drains removed after first op but still got drain in after back flap as still getting quite a bit of fluid coming out, but it is gradually getting less! I'm managing to sleep with 4 pillows under my head and back and a little cushion under my right arm, hardly any room for my husband! Lol!

    What did you use to massage into your scars?  I'm undecided if vaseline, nivea or an oil is best? 

    Lisa xx

  • Hi I was diagnosed on 6th March with also a high grade of dcis and have to have a mastectomy and offered reconstruction.  I have chosen to have a diep too as my weight fluctuates quite a lot, all quite daunting and still find it hard to believe that I have cancer but I’m trying to get my head straight....... last week I had breast clinic appts to see how to progress after making my decision but now feel in limbo as the operation I have chosen can’t be done at that hospital and now I am have to wait for my file to be sent on to the other hospital and start again with a new team and surgeon..... I could be waiting up to two weeks just for the first consultation and this is what I’m finding hard ️

    Thanks for reading, Sharon x

  • Hi DBird 

    Thank you for the reply....... yes hopefully these two weeks won't drag too much and I can try and think more realistically, just all so new but I'll get there! The new team are supposed to be brilliant so I just wait in their hands but I'm sure it'll be worth it :)

    Xxx

  • hi all

    ive was also diagnosed with high grade DCIS and had my mastectomy operation on 9th April with an implant. I’m now wondering if I made the right choice. It just feels like a brick on my chest it’s hard it heavy and wonder if it will ever feel like part of me. I too could have had the lovely tummy tuck but like the previous lady would have to go to another hospital and I wanted to stick with my current surgeon. 

     

    I suppose I want reassurance from other ladies who’ve had this done that it does get better. I’d prefer a flat chest rather than this and woul want it taken out. It just feels like an alien in my chest.

     

    thank you ladies