So, after 3 years of knee pain being told it was my weight, my dodgy hips etc then being sent to physio, paid for a chiropractor and everything else of being passed around, I ended up having an MRI (yes three years on!) only to discover a massive lump which after keyhole on my knee in October when the biopsy was done to be told it’s a giant cell tumour which started on my ACL.. they took the biopsy from there and told me it was all out - turns out that was a lie! And I still have a significant lump at the back of my knee and now being referred to a sarcoma and soft tissue tumour doctor.. I’ve completely lost trust in them now. I’ve been told it will be extensive surgery if they decide to operate (I haven’t seen any cases online when they don’t operate!) but I’m worried for so many reasons.. it’s very near / on my main nerve, vein and artery for my leg.
I see new consultant in 2 weeks time, but I’m bricking it! My consultant has basically wasted 4 months before referring me because (and I quote) he wanted to “sit on it” to see if it grows more!!
I get married this year, my job is during wedding season and I’m on my feet all the time and trying to lose weight.
I’m in panic mode! I can’t find anyone with the same case of it not growing on a bone - especially in the knee. It’s super painful and my knee keeps giving way
Has anyone tried anything to help them relax or take the pain away a bit?? I’m very fed up now! Thanks!