Oesophagus cancer

Anyone been through this???

  • Thank you sue and jolamine x

    Hopefully we know more next week and can start getting through it together as a family as it's just awful seeing him deteriorate when there could be something to help him xx

     

  • Hi Paula 

     

    My dad was also in hospital from Xmas day but he was discharged on Monday as need to wait on the doctors discussing his options we feel lost as we don't know anything about hisntype xx

    Hope your mum is well xx 

  • Hi Lauren,

    I was wondering how you got on at the appointment for your dad, hoping were given more information regarding any plans thay have for treatment.

    Sue xx

  • Hi LaurenM91

    My husband is currently on a trial for this type of cancer, he has stage 3 with a slight chance of surgery after the chemo and immunotherapy cycles.

    We found the waiting for test results horrendous, he first went to the hospital at the beginning of October, we would wait a week after each test for the results, he finally started his treatment a week before christmas, we're now halfway through, he's not had any of the bad side affects from either immunotherapy or chemo and actually feels that eating is now slightly easier, Still a long way to go and we won't know if he can have surgery until the surgeon has done aother laparoscopy at the ned of the treatment,

    We take each day as it comes, he's still managing to work - fortunately he can work from home - he gets tired a lot and he tends to be 'off' for a day or so after the IV's. 

    Feel free to ask me anything, I'll do my best to answer, i know from our experience that it is a very traumatic time waiting on results

     

  • Hi sue 

    Been a mental few weeks dad still in hospital been in since 7th jan 

    He got pet scan today so still waiting on answers x 

    4 weeks today from diagnosis and no further on xz

  • Hi Lauren,

    Mentally it is tough, in some ways it will get easier once you know more and there is a treatment plan in place.  Once his treating Drs have the results of his scan they should be in a better position to advise you of whatwill follow.  Hopefully while he has been in hospital they will have been able to treat his symptoms and he's feeling a little better,  

    Take care.  Sue xx

  • My husband is 6 weeks on from diagnosis and still waiting for the treatment planning meeting. Let alone actually starting treatment.  Its incredibly stressful 

  • Hi my husband also has stage 3 oesophagus cancer.  How long did you wait from diagnosis to first treatment? It's been 6 weeks so far for my husband and we haven't had the planning meeting yet.

    Caroline 

  • Hi Caroline,

    It seemed like ages at the time but my treatment started about two weeks after diagnosis. I did pester them by phone though.

    It may depend on the treatment, I was only offered chemo. 

    Either way, phone them and explain you’re anxiously waiting.

     

    Good luck

    Dave

  • My dad got diagnosed 28th december he still hasnt had any treatment x tests aftet tests with promises of treatmenrs and still not and just hanging in there x