Oesophagus cancer

Anyone been through this???

Parents
  • Hi I have recently had cancer of the oeasophagus and finished my radiotherapy in December I would be interested to know how it has changed your eating habits etc thank you jackie 

  • Hi Jackie 

    My husband had immunotherapy and chemo followed by surgery, the surgery - Ivor Lewis - removed all of his oesophagus and a part of his stomach. His eating habits have changed drastically, certain foods can cause dumping, he can only eat small portions if he wants to be comfortable, he can't always tell he's eaten too much until it's too late, he has to watch what he eats as the valve between the stomach and oesophagus has gone, this means lots of acid can come up. All in all, life as we used to know it has completely changed but at least he is still here. His surgery was almost 3 years ago now and fingers crossed he's been cancer free for 2 years.

     

     

  • Thank you so much for replying I have only had radiotherapy but it is still so sore after 3 months my taste has changed completely all food makes me feel sick and I do not fancy eating anything I am hoping it will improve. They did offer me the same operation as your husband had but they thought it better that I try radiotherapy to see if that works jackie

  • I really hope things improve for you, we had no option but to go with the surgery as it was part of the immunotherapy trial

  • Thank you I hope your husband improves too x

  • Hi Jackie,

    I had Chemo etc & then 6 weeks of daily radiotherapy.  I think if you have any inflammation then it can impact how food goes down/tastes.

    I had amazing supplements until I could eat properly.  

    I am very grateful that I am doing so well even though I do struggle with fatigue, pains, am delicate at times but I work full-time, keep fit with ballroom and Latin dancing & am pretty active, thankfully.  I don't have a huge appetite & thought I had choking episodes however I think this was due to inflammation.  I need to keep taking lansoprazole.

    I also find taking vitamin D 1000iu so important.  

    Worth double checking that you have no infections.

    Best of luck to you and all on this site.  

Reply
  • Hi Jackie,

    I had Chemo etc & then 6 weeks of daily radiotherapy.  I think if you have any inflammation then it can impact how food goes down/tastes.

    I had amazing supplements until I could eat properly.  

    I am very grateful that I am doing so well even though I do struggle with fatigue, pains, am delicate at times but I work full-time, keep fit with ballroom and Latin dancing & am pretty active, thankfully.  I don't have a huge appetite & thought I had choking episodes however I think this was due to inflammation.  I need to keep taking lansoprazole.

    I also find taking vitamin D 1000iu so important.  

    Worth double checking that you have no infections.

    Best of luck to you and all on this site.  

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