My husband is currently on a trial for this type of cancer, he has stage 3 with a slight chance of surgery after the chemo and immunotherapy cycles.
We found the waiting for test results horrendous, he first went to the hospital at the beginning of October, we would wait a week after each test for the results, he finally started his treatment a week before christmas, we're now halfway through, he's not had any of the bad side affects from either immunotherapy or chemo and actually feels that eating is now slightly easier, Still a long way to go and we won't know if he can have surgery until the surgeon has done aother laparoscopy at the ned of the treatment,
We take each day as it comes, he's still managing to work - fortunately he can work from home - he gets tired a lot and he tends to be 'off' for a day or so after the IV's.
Feel free to ask me anything, I'll do my best to answer, i know from our experience that it is a very traumatic time waiting on results
Hi my husband also has stage 3 oesophagus cancer. How long did you wait from diagnosis to first treatment? It's been 6 weeks so far for my husband and we haven't had the planning meeting yet.
Had a phone call from my husbands cancer nurse today. They now want to do a staging laparoscopy around the 26th of April. With treatment starting in 2 to 4 weeks. God give me strength. I want to scream with frustration I hope your dads treatment speeds up too x
Yeah exactly im the same it just makes me wonder how u can leave someone so long with nothing except pain medication my dads started choking on foods again the last week so something must be changing again but how do we know when i feel no one cares or doing anything for him x
My Dad has also been recently newly diagnosed a week ago with stage 4 cancer of the oesophogus, he has a month today until his first appointment with an oncologist, this seems like such a long time, is this normal???? It seems crazy....
Hi is your dad having tests in the meantime? A ct scan, pet scan or eus? If you have a number for the oncology dept please do ring or text them. I have text my husbands cancer nurse and got an appointment brought forward. Wishing your dad all the best
My Dad has had a CAT scan and two endoscopys, unfortunately the one oncologist who can deal with his cancer is on holiday for two weeks and another oncologist has left so this is the first appointment they can give him.
I am glad you have had the appointment moved forward.
No, not that I am aware of. He has been assigned a Mcmillan nurse and given some advice on what to eat. He really isn't eating that much and like someone else above he is losing weight quite rapidly.
My Dad was diagnosed with terminal cancer of the oesophagus in March. He lives so far away from us I am struggling to deal with everything . He has refused to go to hospital and just wants to be left alone. He’s lost so much weight and barely eating. He’s refused a stent . My step-mum is finding it difficult as he is very aggressive towards her at times (this is new) .
