Thank you Jolamine. 

I feel pretty angry now. Whilst I do understand that my MDT, need to finalise all results and tests before knowing my exact treatment plan, mg patience is beginning to wear thin. 

I think you are spot on, being more direct in my approach to questions is my only way to get firm answers.

Called the hospital first thing but my BCN was in clinic.  It was her colleague who took my call, and she assured me she would ask my BCN to  return my call today  

I have been waiting all day. No call returned. 

Xx

Hi Purple,

I am not at all surprised that you are feeling angry at all this delay.

I would also be furious that your BC nurse hasn’t got back to you today. I often have to leave a message for mine, but she has always been back within a couple of hours at the most, usually within the hour.

Have you managed to draw up a list of questions for your next visit yet? When you are wording them make sure that they cannot wriggle their way out of a direct answer. Tell them that you need to know the good and the bad, so that you are prepared for anything.

Make sure that you also mention that the BC Nurse hasn’t returned your call. I would have thought that, with all that has happened to you, they must know how worried you are and, should have prioritized your call if anything. Try calling again tomorrow morning and mention that you didn’t get a call back today.

One positive so far is that they haven’t cancelled your scan for Thursday.

Fingers crossed that this at least goes ahead.

Regards,

Jolamine xx

Hi Jolamine 

A quick update.

My petscan was cancelled again. Whilst en route to hospital, they called. The isitone injector (Sorry unsure about spelling), failed again. 

I'm now booked in for Saturday. The PET centre staff seen confident that everything will go ahead this time! 

These delays are really testing my patience. 

Purple xx

Hi Purple,

This is unbelieveable!

Have you asked if there is another hospital nearby which has a PET scan that could accommodate you? If there are any more cancellations, I would certainly ask.

I am resorting to prayer in the hope that you finally get seen on Saturday.

Jolamine xx

Jolamine

Thank you for prayers.

I have already asked re nearby hospital, but it's not an option. There are only 3 in Scotland  

Will let you know the outcome.

Xx

HI Purple,

As far as I can see there are 4. These are situated in Glasgow, Edinburgh, Aberdeen and Dundee.

Hope that all goes ahead tomorrow.

Jolamine xx

Hi,

I have just been diagnosed with BC today after biopsy results, but have MRI next week and then back to see surgeon the following week after MDT, so I won’t have any more details until then. Obviously in shock today, lots of conversations had this afternoon, mind is racing tonight!

The wait you are enduring sounds awful, fingers crossed for you tomorrow.

L x

Hi Laulau,

A very warm welcome to our forum.

I am so sorry to hear about your diagnosis and to discover that you have another wait to have your MRI and get the results of this. I along with many others, find that waiting on tests and results is always one of the scariest parts of our cancer journey. Try to distract yourself from the wait by keeping busy.

I would imagine that you are feeling utterly shell-shocked just now - the only consolation I can offer is that it usually gets a little easier once you know exactly what you are dealing with and start treatment.

Please keep us updated when you get your results.

Kind regards,

Jolamine xx

Hi Laulau, 

I am sorry to hear about your recent diagnosis.

It's normal to feel shocked, and I know I felt same when I was diagnosed in Dec. 

Try and keep busy. It does become easier when you know what you are dealing with and what your treatment plan will be.

Let us know how you are doing 

Purple  xx

Jolamine

My PET when ahead today. Thank God.

It was eye to mid thigh. 

Now worrying about results. I understand PET was done to identify whether or not two finding on CT/Bone are spread.

Now my mind is racing wondering if other things not related to my BC have been found from Petscan,  that I didn't know I had! 

I guess previous CT and Bone Scans may have identified other potential problems? 

I pray for red herrings , but I REALLY doubt that this will be the outcome.

My consultant did say, regardless of PET outcome it's very treatable and I am not in any dire straits.

Xx