I have sent you a friends request. Direct message me if you would like

All the treatment with chemotherapy is now done.

hickman line removed.

going back in January to have my last little bit of radiotherapy then it's back to normal life until scans are needed... scary time 

All the radiotherapy finished. My treatment plan was completed Mid January. Not been back the hospital since. I'm back in work so but doing reduced hours. I have an appointment with the doctors start of next month so think I'll hear some plans for scans etc then.

feels very strange not being on treatment anymore

Thats some sort of journey you have had ,and l hope your destination is the one you will have wished for,

 much respect from a fellow traveller who got to a better place than he could have possibly hoped for at departure,

                  best wishes to a strong man,

                                                                  David

Thank you. It's been a long trip and still don't know if I'm at the end of the tunnel yet but I'm getting there slowly

MRI Scan 23rd June 2020 then 2 weeks later, the results are back in

Results are in.

Spine - Stable

Pelvis - Stable

Lungs - Few little spots that can see but they said it could be scar tissue. Ment to be a common thing from the radiotherapy treatment to that area. Another scan in 2 months to see how they are developing unless I have any pain or breathing problems

So, the latest scan was done 2 weeks ago, today is the day I should be receiving my results from the CT Scan with contrast.

Body wise I have a small ache in my pelvis when I have been very active with that part of my body, as in Mountain Biking etc. I have been snorkelling this weekend up in Nefyn, North Wales. Fantastic weekend camping, still with no pain etc.

hopefully the results come in soon today and I can relax again

Hi Mark!

So sorry to hear what you are going through. I'm 19 and have a lump on the bottom left of my back and fear it may be Ewing Sarcoma. It is quite large doesn't move and there is also a smaller lump near it. Can I ask what were your symptoms when you were diagnosed and what was the lump like? Also how was your diagnosis process? I have visited my GP who said it may be a fatty lump but I have been referred for an ultrasound to be on the safe side. After reading the symptoms for Ewing's, I really think I could have it. Hope your doing okay :)