Hi LD

They are just gathering all the info they need to decide on best course of action. My partner had all of the tests you mention including bronchoscopy with biopsy. Personally, I would't read anything into it. Obviously the oncologist will explain it all but I believe its fairly standard practice.

I still have bad days when the fear, stress and panic take over so I do relate to your feelings, but trust me, it does get better when he gets started on treatment. Your Dad needs you to be calm and strong if you can possibly manage it.

Try not to worry.

xxx

Thanks so much. He’s had the letter today and it’s needle biopsy to take lung tissue. It does say it’s to help determine treatment. It’s still with the respiratory team and not oncology yet. I guess that would happen after official diagnosis would it?

the letter said 7-10 days for biopsy so it’s going to be even more waiting. At least weds the consultant will tell him what the pet scan found.

thanks for your suppprt x

Ahh bless you :) he’s also just told me that the radiographer said he’s been doing this 20 years and is baffled. It’s not changed in weeks and where it’s located makes him not sure. He also had a bad chest in Spain and he said it would of shown on the X-ray then (in June) 

i guess the biopsy will give answers but how amazing if it was benign (although I hear lung masses usually aren’t)

how long is treatment due to go on for? Do they scan during to see how it’s going 

much love xx

It sounds as if your Dad is a lucky man-not just because of his promising results but because he has such a lovely, caring daughter. I am so pleased for you.

If Dave can have his chemo tomorrow [ie if his immune system is sufficiently recovered ] he will be almost half way through chemo. He's due to finish at the end of January if all goes smoothly but will then start radiotherapy. Its not that the chemo is particularly unpleasant-its mainly just a bit of discomfort-its just that th fear and anxiety never quite go away.

His scan is the 17th December  followed by oncologist's review on 20th, when they tell us if it's done any good. 

Keep everything crossed for us xxx

Sorry to chip in on this chat but I just want to say my husbands diagnosis was not good,  stage 4 lung, but after chemo and radiotherapy it's shrunk more than half,  so look to the future and take it one day at a time.   Good luck to you both.  Caz 

Caz-thank you so much for posting. I would have got back to you before but we were all day at the Freeman yesterday waiting for bloods to be re-done so he could have the chemo, and then waiting for it to be made up. You dont have to spend much time in a chemo day ward to realise that there are so many people in much worse states than we are at the moment, but its still hard to stay cheerful. 

I may have already said to LD when they were waiting to have the diagnosis confirmed-but waiting is the bane of our lives!

Anyway, I was thrilled to read that your husband is doing so well-long may it continue. I notice you have done quite a lot of posts so I am going to spend sometime this afternoon going back through them to hear more about your story.

Love and best wishes xxx

Ahh thank you Monica what a lovely thing to say. I think I drive them mad with my incessant worrying. They told the consultant I had already googled him and his wife ha ha! 

How is Dave? Did he manage to have chemo? 

Thats amazing caz. It’s lovely to hear such positive stories. Praying I will have one of my own soon xx

LD-you are very similar to me. I am a terrible worrier, whilst Dave is more laid back. My view is that knowledge is power, so I try to find out as much as I can and I dont think its a bad thing.

In fact, I think its great that you are so on the ball that you've googled the consultant's wife! You go, girl!

Dave did get his chemo, although we were there from 10.30 am and he didnt get it until 4pm so was not in the best humour. Still, no more treatment until after Xmas now; just the scary prospect of a scan to see if its working. [Gulp!]

Ah well. Let me know when your Dad gets a date for his biopsy results and/ or a date for his op.

Love xxx

Hi Monica,

I was just wondering how things are with you and Dave? How is his treatment? Did you manage to have a nice Xmas?

We are still awaiting lung biopsy results but Dad is so well in himself. Still praying for good news.

Hope your well x

Hi LD

Happy New Year!

Dave is doing fine thanks. He has one more cycle of chemo to start a week on Friday but the really good news is that the scan showed that the tumour has shrunk from 61mm to 6mm! We are both feeling a lot more positive, as you can imagine.

He is having Zarzia injections to improve his immune system which means I have to stab in the stomach every morning [!] but apparently it doesnt hurt and although he's a little more tired the chemo side effects have been generally manageable. After this, its radiotherapy but we take one day at a time.

Hope your Dad gets really good news and that you both have a fantastic 2019

Much love xx

Ahh wow thats amazing news! Am so pleased for you both, and what an amazing result, How long will he have to have radiotherapy for?

They have chased the secretary today so here's hoping we will find out soon xx

We won't know exactly until we see the oncologist on 28th. 

Do let me know how your Dad gets on. I'm keeping everything crossed for you xx

We won't know exactly until we see the oncologist on 28th. 

Do let me know how your Dad gets on. I'm keeping everything crossed for you xx

Good luck on the 28th. Do keep me up to date. I'll be keeping everything crossed for positive news.

My dad spoke to the secretary today and he has another consultant appointment next Wednesday. Seems a very long time to wait since his biopsy! xx