Inflammatory Breast Cancer

Yesterday I was diagnosed with inflammatory breast cancer. I found a lump underneath my breast in my bra line about 4 years ago. I was sent for a scan which showed nothing. I went back in November as it showed on the skin as a red lesion  and a biopsy was taken. Yesterday I was put on Oestrogen inhibitors and had another mammography, ECG and blood tests. Next week I am having an MRI and CT scan. I get the results on 13th December.

I have read that this is the deadliest form of breast cancer so feeling pretty scared. Does anyone know how successful the oestrogen inhibitors are?

  • Hi there dragonfly ....

    Well I've been on tamoxifen for about 14 months now ... at first I had emotional ups and downs ... but it's all settled now ... I suppose it must be doing it's job, as mine was a grade 3 her 2 neg oestrogen positive .. and it's supposed to stop the oestrogen from forming more cancer ... 

    I don't know, sometimes we have to trust ... it's probly different for everyone ... try not to Google as it always gives worst case sinarios .. and nothing with cancer is guaranteed but the treatments have come really far ... and try to not do the "what ifs"  l never thought I'd be here for last xmas , but here I am looking forward to this one ...  we all feel scared sometimes ... and that's o.k ...

    But now get those feelings out, then get a pair of boxing gloves on and get in the ring with all of us on here, punching cancer back, and giving it a run for its money... it wants you to buckle, and give in... then it feels stronger ..l don't let it ... looking back the scariest time was at the start , waiting for my masectomy..  but that wasn't half as bad as I'd thought ... and now I look at my scar that replaced my boob and it just reminds me of this rollercoaster journey I've been on ... and it's a small price to pay to still be here ... and I knew I had that lump 2 years before it popped up on a chest x ray for a cough .. 

    So hold on in there .. there's lots of us breast lasses on here. . I'm always here most days if you wanna chat about anything ...   big hug ... you can do this ...   Chrissie

  • Chrissie, thank you so much. I am trying to be upbeat as there is no point in sitting wallowing and doesnt do your friends and family any good. I have always had a dread of cancer but now it is here I am feeling I am part of a very exclusive club.

    I have had pre ops, Ct scan and MRI today. I am on Anastrozole which I believe is similar to Tamoxifin. They seem to think it will shrink enough for a mastectomy in a couple of weeks. 

    I found your posts very uplifting. Is there a way to follow posts or get notification of replies?