Stage 4 NSCLC

My Mum has been diagnosed on 25 Oct 2018 with  Stage 4 nsclc with multiple metastasis to the brain and adrenal  gland. Mum has completed 10 days if WBRT and will be starting Chemo in a couple of weeks. This has been absolutely devastating to our family and am unsure what lays ahead. I suppose I am wanting to hear from anyone that has or is going through a similar situation. My mum is 59 so still so young.

  • When we left the first appointment with the oncologist we were all so upset, they were not going to offer mum any treatmemt but she insisted on something being done, she cried when we left the room, saying they have given up on me already , which broke my heart , so i was so glad when she had the scan that it had got smaller . It has almost halved in size and that was after 2 chemo sessions, shes had 2 more sessions since then and had a scan on thursday so hopefully that will be good news as well. She has been on dex steroids, started on 4 and now shes down to 2 a day . It has made all her muscles weak so her mobility at the moment is poor. Mum is only just 62 years old , she has a lot of fight. Please if ever you need to chat feel free and ask as many questions as you like x

  • Thank you for explaining your mums experience with the WBRT. We start Tuesday so guess we just have to see how things go but I think the idea of a relaxant may be helpful for my dad. I know he found the mask pretty uncomfortable but I think that making the mould may be more uncomfortable than the actual treatment itself as you said it’s quite quick. 

    Hoping he doesn’t feel too bad and will be glad when this week is over.

    Thanks again for your reply I really appreciate any advice that might make things a little easier for my dad 

    X

     

     

  • I am happy to hear your Mum insisted on treatment and is a fighter. I believe the mind can do amazing things alongside treatment. 

    Just hearing Petra’s journey and how well she is going gives us all hope.

    I am hoping your Mum’s scan comes back with good news again. X

  • Hi Lmw39, 

    How did your Mum go with her scan from her last two sessions? My Mum is starting Chemo this Thursday. She will be having Carboplatin and plemetrixed one day a week every 3 weeks. She is a bit anxious about the side effects. 

    Melissa 

  • We find out results thursday which im nervous about to be honest. Mum had palliative chemo 4 sessions once every 3 weeks , is that what your mum is having? A couple of the sessions she had to put back a week so she went 4 weekly as she wasn't strong enough xx also I may of already asked but does your mum take steroids? 

  • Hello

    I’m sorry that we find ourselves on this horrendous journey.  I just wanted to let you know that I will be thinking of you on your journey and that I am in similar circumstances.  My healthy and well mum of 55 was diagnosed with bowel cancer after a routine screening a few months ago.  Later scans revealed she also had primary lung cancer which has metasised to the adrenal gland.  This came as a complete shock with mum being a non smoker too.  She will be on palliative care and starts chemotherapy to target the lung cancer tomorrow.  I’m not sure if there is a way to PM on here but if you want to keep in touch please drop me a message. It’s so true what people say, you really never do think cancer is going to affect your family. 

     

    Here for you if you need me. Take care and sending big hugs. xx

  • Yes that is what my Mum will be having 4 sessions once every 3 weeks, starting tomorrow. Mum was on steroids at the beginning and while she had WBRT and it was a high dose to start  with(16mg) and she has just come off them last week. 

    Did your Mum have many side effects from the Chemo? Mum is quite anxious about tomorrow and as am I.

    I hope all goes well with the scans tomorrow.

  • I am sorry to hear that your Mum and family our going through this also. 

    It is very hard times but I am trying to stay positive. It definitely helps to have this forum and being able to talk to people in similar situations. 

    I am not sure how to pm but I will try and work it out so we can keep in touch. 

  • Hey, i'm so sad to hear your news. Sadly my mum was given the same diagnosis back in June after a met on her brain caused a seizure and passed away in the October, it has been the hardest thing to deal with from the second we got the diagnosis.

    It's great that they have a treatment plan in hand for your mum, i still think part of our main problem was that it took them so long to start mum on anything (2 and a half months) because she seemed so well so there was no sense of urgency, unfortunately she declined rapidly and only managed one dose of chemo which put her in a hospice unable to walk. Mum had just turned 60 and had never smoked a cigarette in her life, she did not drink, lived a healthy lifestyle and had no serious health issues so it was literally the shock of our lives.

    Remember that everyone is different and please don't think i'm telling you this to make you worry I just see many people below telling you their good news stories  and I really hope yours too will have more ups than downs but the only thing that can be guaranteed is that your mums journey will be unique to her.

    My love to you, your mum and your whole family. Spend as much time as you can together, either way you won't regret making amazing memories. :)

    Feel free to message me if every you want to chat i promise i'm not all doom and gloom, Just a 27 year old realist that's missing her mam and has been through exactly what you're currently going through.

    Best of luck xxx

  • Hi Mela, 

    I'm sorry you're having a bit difficulty trying to figure out how to pm another member but hopefully I can help :)

    Before you can message someone you need to add them as friend. Once you've done this and that member has accepted your friend request you can start to message each other privately. We have some information about how to use it just here.

    I hope this makes it easier to work out but if you have any follow up questions, don't hesitate to get in touch.

    All the best, 

    Steph, Cancer Chat Moderator