Uterine cancer diagnosis

Went for a hysteroscopy and biopsy yesterday. Dr told me I have cancer, but need to go back next week for confirmation of the diagnosis. Have to have an MRI scan arranged to see spread of disease, and then interventions. Trying to stay positive, but this waiting and not knowing is awful. Currently still at work, no point hanging around the house with too much time to think the worst and feel sorry for mysel. Any one any advice how to cope at this stage?

  • Hi TabyQ, I would keep pestering the appointments department, they will get fed up with you!. As for your GP, the hardest part of getting an appointment is getting past the reception staff. They must have emergency slots, so I would be demanding one, don’t take no for an answer. Write a list of questions you have and take it with you. This is about you and your wellness, so don’t be fobbed off. Even if it’s not in your nature to be forceful it helps in these kind of situations, and remember the GP is there for you, so your appointment time is about you and getting some reassurance. X

  • Hi JaneD and Sundial 

    I will keep on to my GP. In the meantime I may keep poppy up here if you don't mind. Better to worries through than look on the internet at silly stuff that does nothing for my anxiety or wellbeing. Thank you !

  • Hi all, think it’s psychological but I’m feeling really nauseated and am panicking that the cancer has spread. Trying to calm myself down, but it’s really hard. X

  • Diversions therapy was writing Christmas cards haha

  • Hi all, heading to England to visit my daughter for the weekend, no sign of a letter for follow up appointment following hysteroscopy and biopsy on Mon, so rang consultants secretary, who informed me that she hasn’t even typed up his notes yet!. Left a mobile number and asked her to organise an appointment for Tuesday. It’s really bad and energy sapping when you have to do all the chasing.

    Hope you are all doing ok X

  • Hi all, back from appointment for biopsy results. Grade 1 diagnosis. MRI booked for Tuesday, then surgery before Xmas. Very relieved. Love to all X

  • Hi Jane

    Sounds like the start of my journey. When I went for my MRI I was apprehensive as I’m claustrophobic. Good news I went in feet first but still close to entrance way. Saving grace I had ABBA on my headphones. I sang at the top of my voice for an hour and fifteen minutes! I asked them if they could  hear me, they said no but I diidnt care because it got me through it. Surgery before Christmas that’s good. Are you having keyhole? I did and was in overnight. It took me about four weeks to recover.

    Hope everything goes well.

    Sundial

  • Hi Sundial, yeah keyhole surgery, but not sure of extent until MRI. If all ok then just surgery, if muscle involvement then lymph nodes 2 and radiotherapy.  More scared about the MRI than the surgery. Is it really noisy and claustrophobic?. 

    Jane X

  • Hi Jane

    Yes it is noisy. As I said I was really scared but they piped  music through headphones. I would check to see if they do the same at your hospital. I found it was a really good distraction. As ABBA is my era I knew all the words so I belted out from Thsnk you for the Music to I have a Drean. I found that worked. It wasn’t as bad as I expected. I told the staff I’m claustrophobic and they were very good. 

    My MRI showed stage 1b. They didn’t take nodes in first op but when cancer was upgraded to 3 from 1, I had a second op to have them removed. Thankfully they were all clear and so I had only 3 sessions of internal radiotherapy. I had a choice though. I could have not had surgery but opted for 25 sessions of external RT. I was glad I chose to have nodes removed even though it was two ops within 3 months because,  I didn’t actually need such radical treatment. 

    Let us know what happens with MRI.

    Sundial

  • Hi Sundial, how long did you have to wait for your MRI results?. Trying hard to stay calm!.

    regards,

    Jane X