My first chemo

Chemo was different from what I thought it would be.
I got there at 8am yesterday and was told to go and eat, I needed food in my stomach.
Got back and was taken to a room where I laid on a bed for more than two hours.
Just before 12 I got up and inquired what was happening and they came in, hooked me up, and put me on a saline drip and a bag of anti-nausea drip.
This took less than an hour then they came in and plugged in about 300-400mls of chemo.
I had no ill effects while it was going in over a two hour period then was given another 500ml of saline.

The nurse then removed the needle and whatsits (in my right hand) which was well taped down, an agonising procedure as my hand and arm had become ultra sensitive, when I stood up they felt like I had been snake bitten several time then beaten with a baseball bat.
This pain continued until I went to bed about 9pm, I had no nausea or other ill effects and ate a couple of sandwiches when I got home.
I'm allowed no hot or icy cold food or drinks for 10-15 days.

My arm and hand is pain free this morning but still very sensitive, I'm typing OK.

I have an enormous bag of pills to take before my next chemo, three weeks away.

  • I had to google this as I wasn't sure what you meant.

    I had very little, if any, hair loss during treatment.

    Infact I noticed a very low percentage of patients at my radiology clinic were suffering from this.

    I was told that the chemotherapy is less invasive these days, maybe that expalins it,

     

    Julian

  • Thank you Julian, wonder if its a new thing then? 

    I'll give it a go I think anyway. 

  • Hi chicken81

    I used the cold cap - it’s not new but it’s supposed to help reduce hair loss during your chemo treatment. I only used it twice - the first two cycles because unfortunately my hair did fall out - masses of it so I couldn’t see point in carrying on with cap. The first 15 mins are worse with cap as it literally freezes your scalp and feels very uncomfortable- but after this it’s absolutely fine - another downside is it extends time of treatment by about an hour to hour and half - small price to pay if it works but sadly for me it didn’t. I also think it depends which chemo drugs you have as to whether your hair comes out or not - I have BC triple negative so my cocktail of drugs was always going to result in hair loss. 

    I guess I’m glad I tried the cold cap - disappointed it didn’t work for me but there was an older man there and he said it worked fir him - I think it’s worth a try - can’t let cancer have its own way at all! Good luck with your treatment and I hope it all works out well for you x

  • Thank you sunandsea. 

    I'm sorry it didn't work for you, but thank you for letting me know what it's like.

    I'm HER 2 positive, no idea what it means but it's is deffo different from triple negative.

    They said I'd have chemo in three rounds I think, so first two months one drug, then another two months with a different drug and last two months with a different drug, they did tell me names but I didn't write them down. 

    I'll try it and hope for the best. 

    I'm thinking my last hair cut I might get some highlights but not sure if it's worth it if in the next month I'll potentially could lose it? 

  • Hi chicken81

    yes definitely worth a try - cold cap and I hope it works for you x I think if I’d known what was likely to happen I would have had my hair cut very short - I’ve never had short hair - my hair was very think and shoulder length- if I’d had it cut shorter I think I might have coped better when it came out - I think you should do whatever makes you feel good - do this throughout your treatment xx spoil yourself x I do know what you mean about cost also so maybe not highlights but a lovely cut !! Thinking of you and stay strong x

  • Hi most of you sound like it wasn't to bad I wish mine was OK I had docetaxel I had 6 sessions was supposed to have 10 but was that bad with it, trouble was I had a hiritus hernia and it didn't like the chemo I was fine for about 5 days then sick it doesn't come anyway near explaining it day and night for over a week if I even thought of food I managed a sip of water if I was lucky It stopped down, the trouble was I'm on meds for something else and I have to keep taking them I tried 5 different sick tablets no good, I'm trying to get something sorted before I have any further cemotheropy, hope you don't mind me moaning.

    Billy 

  • Good luck Billy, some people find the treatment really hard, a friend had 9 days in Intensive Care after Radiotherapy.

    I never enjoyed any part of mine but at least I could drink and eat.

    The chemo made me seedy but I finally gave up the the anti-nausea drugs because I couldn't keep awake.

    I was even celebrating each radio treatmant with a German alcohol free beer.

  • Hi,

     

    i have just just read your post, I have just been diagnosed with grade 1 breast cancer and am having a lumpectomy a week on Tuesday, they are also taking a sample from the lymph nodes and depending on the results will decide what treatment I have, chemo and radiotherapy or just radiotherapy, I too am like you were, Im terrified I will have to have chemo cos of loosing hair, may I ask, have you lost your hair

     

     

     

     

  • Hi 

     

    I have been following you as you in this forum as you are an inspiration to all of us with a terminal diagnosis.  I was diagnosed with stage 4 stomach  cancer (oesophageal junction). Mets to omentum and local lymph nodes in February this year.   I havent asked for a prognosis but I think I know.  I've been put on CAPOX and capacetabine, I had asked my oncologist to put me on EOX as you had done so well on that regime but he told me they no longer use the epirubicin as it added no additional value.    I've been really ill with the chemo and have now developed a pelvic DVT which is huge and has meant delaying my last chemo.   My leg is purple and swollen to more than twice it's normal size.   I had my CT today after 3 sessions and I get my results on 10 June.  Really praying for good results.I don't want any more chemo after this last one in this session (I don want this last one if I'm honest)/

     

    Can I ask you....did you only have one session of chemo in all this time.  
     

    thank you.