Hi Jill

Do hope that there will be positive result with pembrolizumab. How is he coping with it? I hope the immunotherapy works for him. My dad had 5 targeted palliative radiotherapy and he cope really okay with it. He was even off the oxygen for couple of days cos he said he did not need it. We bought oximetre and we check his oxygen level once in a while so we know if he has very low and thank God he hasn’t been lower than 83. Although yesterday he catch a flu and been coughing bad and had fever. Poor thing, not a good timing to have flu. He must have catch it from me and I hate that I had given it to him. Now he’s back to being out of breath and having trouble sleeping as he feels that he cannot breath when he is laying down. He went to the doctor yesterday and suggested that my dad goes to hospital but my dad did not want to as he could stay there for a month and he don’t wanna waste a month he said. It’s tearing me apart but I try harder to be strong for him. Hopefully he feels better soon. 

We are meeting the oncologist on the 28 to discuss whats the next treatment. We have waited 3 weeks to heal any chest infection that may have been caused by radiotherapy. That is what the oncologist said. I’m scared of the 3 weeks waiting as anything could happen. I’m hoping that they suggest immunotherapy to my dad as well. I’v read that it boost immune system which i think is good. My dad didn’t had any chemotherapy as well. 

I have bought spirulina for my dad to take. I’ve read someone posted here that it starve cancer cell. Have heard about alkaline water as well but not too sure how to get it. Well I do hope it’s only filtered water . We will try anything that could help. 

Keep the faith. We will beat this ****. 

Do let me know how your husband is. You can comment here anytime and I will try to reply as soon as I can. 

Be strong Jill, we can win this battle with cancer. 

xxxxx

My dad has been rushed to emergency this morning because he can’t breath and the cough is getting worst. The doctor said that it may be because the lung had collapse, infection, or progression of the disease itself. He is panicking when he can’t breath and coughing really bad which make him worst. Even though I tell him to relax and focus on his breathing, I know he tries his best but he can’t help not to panic. I’m hoping it’s only the viral infection. God, I don’t know how we’ll cope up if the cancer has progressed. I hate cancer so much!

I cross my fingers that this is just from the infection and all will be better after he is over this. I think it is good he is in Hospital even if he dosent like it.

Best wishes Petra

Thank you very much Petra. I felt relieved when I saw him yesterday smiling and not wheezing very bad. Still don’t have update but i’m hoping as well it’s only infection. We will meet the oncologist on wednesday and discuss whats the next step after radiotherapy. I’m hoping and praying that his radiotherapy did something good and I’m hoping as well that they offer immunotherapy as I’ve read many positive response to it. 

Thank you again Petra. Wishing you very best xxx 

Will be thinking of you on Wednesday and my fingers are crossed!!!!

Doctor said it grow a little bit and spread to blood vessel and pressing the heart and that is what making him short of breath. They said they will put stent and hopefully will help my dads breathing. Also they cancelled the appointment tomorrow and rescheduled it after 2 weeks. They said they did not get result of mutation from oxford yet. It’s been more than a month I don’t understand why they didn’t have result yet :( Now we cannot go forward any treatment without the result of the mutation. 

Thank you very much Petra, you give me so much hope. 

I hope the stent will work and makes him feel better! Yes the waiting Game is the hardest part...we all know this. Any chance you could ring them now and then ? Then they could do something earlyer..

Petra

They cannot offer immunotherapy as the result from oxford is negative. We were just waiting for my dad to be fit again so he can have chemotherapy but with his situation now he cannot do it. He’s too weak. With all this waiting game cancer has grown already and he never have something treatment to shrink. 

Dear ladyjune!!!

I'm very sorry to hear this, i hope your Dad is not in pain? And at least they can make him feel comfortable..

Hugs Petra