(Not sure if I've set the post to the right fields. "Talk about cancer" & "Newly diagnosed"

Hey there! My name is Jon, I'm 26 and live in Wales. I'd like to apologize for the mass of text that'll follow this, but I'm finding everything difficult and have no real means to vent/talk about my problems. Also, sorry for any grammatical/spelling errors in advance.

Honestly, I'm terrible with introductions, nor do i know where to start- but, I'll first state that I'm currently waiting to have an operation to have a Lipoma removed; one believed to be cancerous following an MRI scan. The lump is a little over 10cm in size, with 2.5cm of it being suspect. Just recently, let's say a month; I've been in a -lot- of pain, from bone (legs, arms and shoulder joint(s) being the primary sites), to various otherlocations around my abdomen, with the most noteable being my chest. Prior to that, for maybe a quart of the year, I've noticed my legs getting weaker, especially my calves- aching, tender after working out. I'm being queried for Liposarcoma; and to acknowledge my title, I've felt messed about with & not taken seriously for nearly two years. Even now, with near conclusive evidence from the MRI and symptoms that're almost debilitating, everything is still being delayed. I was due the operation on Monday the 15th. Pre-Op went alright, but the surgeon whom would be handling the procedure put me down to have it at a private hospital; one that doesn't deal with patients that have sleep aponea due to there not being enough staff members there in case something goes wrong. Now, I've been put back on the waiting list, and will have to do so until around mid December, even though I was promised no longer than four weeks when I saw the consultant whom picked up the abnormality of my MRI scan initially. Doesn't help when you suffer with depression and high levels of anxiety, coupled with being in daily pain, to the point where it affects your sleep.

With that aside, I guess I should offer offer my story. Though I'm uncertain that every aspect is relevant, I feel as if I should be as open as possible. In 2017, late Jan/early Feb, when getting up from having sat down for a good few hours, I felt my back jar- excrutiating pain ensued. Lower, to middle right. Couldn't stand up straight, painful for a long while before it settled. I can't tell if there're any lumps, as I can't quite reach behind, but still. I am unable to lay upon the right side of my back, for it sends a burning, sharp tingling down my right leg- turning my thigh and toes numb should I do so. All I was prescribed was Fenbid gel, with my GP surgery believing it was down to my weight. Yes, I'm clinically obese. Around April time, I found the lump which I am soon to have removed, upper left wall of my abdomen. At the time, it was roughly the size of a cadbury's cream egg, probably smaller.

Several months later, toward the end of May I suffered with chronic impaction. Around this time, my sense of hunger/appetite dimished. I won't go into the nasty details here, but I had diarrhoea and agonizing pain in and around my stomach/colon. I passed a whole lot of blood with, -not- within the stools and still do.That's not mentioning the bloating and discomfort too. For two months, I was unable to eat without feeling ill; throwing it up most of the time, finding myself in a similar situation with fluids too- burping, after consuming, and then bringing it back up more often than not. I dropped a good few stone during the course, whilst regularly visiting the doctors to try and get to the bottom of this.

During this period, the aforementioned lump grew. Doubled, maybe trippled in size. I had an Ultrasound scan organised for September that year, and the man whom conducted it said it was a Lipoma- nothing to be worried about, despite me having explicitly said that it grew -that- larger when I hadn't consumed anything, coupled with it causing me quite a lot of pain & discomfort.

Soon after, I was put on the waiting list to see a coleractal surgeon, but decided to have a private consultation in hopes to speed things along. I explained all of this to him, and he just shrugged it off; labelling it down to IBS as I've suffered with it in the past. A huge waste of £150 or so. The second, was far more professional, and expeditited the colonoscopy I was booked to have (thanks to my GP) which took place in October.

The procedure was thorough, to my knowledge and thus I was diagnosed with Diverticular disease. I had issues going to the toilet, finding it hard to pass as if something toward the front (maybe prostate) was preventing me from doing so. Still, afterward I felt -awful-. My chest hurt, I felt faint & had difficulty breathing- passed out a couple of times too. I had sharp, stabbing pains all around my colon; which I assumed were the spots where they had taken flesh for biopsy. It took some time, but I had both my heart and lungs checked, both of which were fine. Still, I proceeded to have chestpain & fever-like symptoms for a longtime thereafter, even after my difficulty breathing lessened and gradually subsided. I had gas & air, rather than being put under- even though I'm asthmatic & suffer with sleep aponea. I was told to return to the hospital if I had symptoms similar to those, and each time I was sent away. I had a doctor try and force me to believe that all this pain and suffering, all these problems were in my head, believing it to be me overeacting and this being a result of my anxiety & general negativity which comes from suffering with depression.

Things gradually seemed to look up from here on out. Pain lessened, sort of. I still had no sensation of being hungry, I was able to eat & drink as per usual, though I often experienced severe bloating & discomfort after drinking, especially in the night. My toileting schedule is somewhat normal, despite passing blood. I occasionally have bouts of diarrhoea and similar pain to which I experienced when it first came on, but it soon subsides. However. During this "good" period, I could feel the lump growing bigger, to the point where it now protrudes from my middle, visibly. It continued to grow, albeit far slower than when I found it originally. Over due course, my legs grew weaker, my calves like they were being stretched whenenver I exercised, something which I hadn't experienced before. An oversight, really. Something that I thought must simply be down to my weight which medical professionals have been telling me that a lot of what I've experienced was due to that. Now, I'm not saying that none of it can be attributed to it, on the contrary, I'm sure some of it can- but not all, which is the tune they've been singing for a -long- time.

Either way, In August, I asked my GP about having yet another ultrasound for my lump, as it had grown to be a large size by now, as stated before. I had a scan in September, confirming this. A little over 10cm, as stated above. The same man took the test, which was quite an awkward exchange for meas he told me "not to worry" in the first place; but I doubt he remembered. After the revaluation, he wanted to get it removed. I pushed for an MRI scan, which is something he suggested, but felt it was a waste of time preaching the whole "better to be safe than sorry" mantra. Thankfully, I chose to go through with the MRI, one which I had the same month. Two days after, I had an ominous call from my GP, asking me to see him in person. I've always known something was wrong, a gut feeling- even though parents, and those that have been a part of this "story" believed otherwise. This was soon affirmed. I've been put in contact with a Lipomasarcoma specialist, and as stated before, am waiting (again) to have it removed, and sent off for biopsy. I've been trying to push my case for almost two years now, and nobody has taken me seriously. Even now, they're still blundering- putting me down for an operation that I can't have at a certain private hospital for reasons he knows as they're on my medical record. They give the appointment to someone else, and didn't change it with another, more suitable person already on the list. I don't -need- to wait until December to then wait another two weeks whilst it gets sent off to the lab so that they can tell me something I already know. I've made my weakening physical state clear, the pain I'm getting in certain locations, heck, even finding new lumps; i.e. one on the back of my left leg and pain in my bones. I'm just tired of all of this, mentally especially, and I've not even started treatment yet. Funny thing is, I need to wait -longer- still, for them to do more scans, to see if the cancer has spread. It's a joke.

Thank you for taking the time to read this, but I'm at a loss as to what I should do. The longer this gets left, the less chance I'll have at surviving. This experience as incredibly scary, and I'm finding it all a bit too much and also feel as if I'm not getting the support I need. Kindest regards, Jon.