Hi Kira1,

Thank you for sharing your experience - I've had pins & needles/some tremors in my hand too strangely enough. It might be unrelated in my case though, as I don't have any information/results on my throat investigations yet.

Can I ask when you received the results of your MRI? I just had my MRI today but was not told anything after it - just to expect the results when I see the ENT Consultant at my appointment next Monday. I suppose it's probably different if you went private though is it?

I hope the wait to see the consultant is going OK for you.

Hi MamaBookWorm,

They can't tell you anything straight after a scan because the radiologist needs to carefully look at everyone's scan and write a report. That does take time.  I had my MRI on the 27th of August. My chiropracter then called me 1 1/2 weeks later to let me know what it showed and that he will send it to my GP that day. My GP then sent the referral to ENT the following day, last Thu. And today ENT called already with the apptm. So all very very fast, which is great, but their urgency is also worrying.

I hope you hear about your MRI soon. Waiting is always really hard, I know

Thank you, gibbo! It's very helpful to hear you had exactly the same symptoms. Also mostly at night and worse when lying on that side. I was so often told it's just carpal tunnel as soon as I said it's worse at night and am still on a long waiting list with CMATS. With covid 19 no one in the NHS wants to see anyone on top of it. In a sense it was for my best because it made me frustrated enough to see a chiropracter and follow his suggestion to have a private MRI done. Otherwise I woulxn't know what's wrong for a very long time.

How are you now? Have your symptoms improved?

How is everyone?

Just a quick update from me. I received a letter today recording that the ultrasound showed "no abnormality of the lymph nodes" so that's good news.

The letter also mentions that the Consultant is going to discuss the MRI results with me on Monday. Would my tonsil problems be visible on the MRI instead I wonder?

I'm presuming it's nothing serious at this stage, but I hope that there's something they can suggest to help me, as it's been 9 months of constant sore throat etc., at this stage and it's making me feel so run down.

Hi

thanks for sharing your story I'm going through a similar thing...one nodule on my thyroid which is around 5cm long. Had 2 ultrasounds and apt with ENT where I told him I have no symptoms. A week later and I now feel a click when I swallow. I notice on my letter from my ENT apt it says "priority: routine" and freaking out a little bit. Anyone else experience something like this? I have FNA booked for 1st October anyway so guessed it's ok to wait for that. My ultrasound was classed as U3.

thanks, Nicky

Hi Nicky, 

U3 means they can neither confirm or deny whether it is cancerous so they will perform a FNA to see if the cells come back one way or the other. Unfortunately like me they can come back U3 after the FNA so then you make decisions with the surgeon on your next steps. 
 

if you feel you have new symptoms that worry you, then you can always ring the ENT department where your consultant is and tell them of the new symptoms and they can advise whether you need to be seen quicker or the current date is ok. As that date is only next week that seems a reasonable time to wait anyway. I usually wait 2-4 weeks for an fna/ultrasound from my ENT appointment at my hospital trust. 

hope that helps

Thanks so much, and thanks for the quick reply

Hard not to worry sometimes, especially with covid going on as well

take care

nicky x

Hello. 
 

This chat has been really helpful. 
 

I am currently awaiting an appointment for USS and FNA on Monday. 
 

I attended my GP with a sensation on a lump in my throat. They thought it was a anxiety manifestation. I wasn't convinced. 
 

During my appt the GP felt my neck and said there was nothing there. It felt like they tickled my neck rather than properly examine. So I thought I would have a prod and poke when I got home. I did find a lump on my right side around where my thyroid is. I got a referral to ENT through Bupa. I went on Tuesday to see the ENT consultant. They said that I needed an USS and FNA. The consultant told me not to worry. On probability it is unlikely to be cancer and many lumps are not cancer. But I spend my time thinking about it. I look at my 2 yr old and 5 yr old and can't help but think I have cancer and they will grow up without a mummy. God the waiting is awful. My husband keeps trying to tell me not to worry until there is something to worry about. I can't help worrying. 
 

I suppose I'm not asking a question. Just felt like I needed to write it down and share my story 

thanks 

 

Hi Yorkshirelass2020,

I’m quite terrified to even post but, like you I’m going for an Ultrasound FNA on Monday. 

I had an US two weeks ago following the discovery of a swollen thyroid and lymph node, carried out by a consultant which was inconclusive. 

I am hoping for the best but trying to prepare for the worst and be brave but it’s very difficult. 

Reading other people’s experiences has been reassuring and terrifying in equal measures.

i just wanted to say good luck to you for Monday and I really hope all goes well.

oh and thanks to everyone who’s shared their stories on this forum.