FNA biopsy on thyroid experience

I'm describing my experience of an ultrasound guided FNA biopsy for anyone who would like information on it. 

Although my 2 sets of blood results were within normal ranges, my doctor noticed a lump on my neck when I swallowed during a visit. Following a consult with an endocrinologist and an ultrasound I then went for the FNA biopsy. I am in my late twenties and had no symptoms at all associated with thyroid cancer. I would have been healthy and rarely needed to visit the doctor prior to this. 

I had a good experience with the biopsy. The procedure was explained to me. My head was resting over a pillow so my neck was extended backwards. My whole neck area was cleaned with a wipe and alcohol rub (not very sure about the exact materials used) and a blue gown was put around me to protect clothing from the iodine put on my neck after the biopsy. I received a local anaesthetic (which was like getting the numbing injection in the dentist only in my neck). Felt like getting blood taken, only felt a pinch.

After being left for a few minutes for the anaesthetic to take effect, I had to try and not swallow/move my neck, especially when the needle would be inserted into my neck ( I had one nodule/lump on my left side only). The gel was applied to my neck for the ultrasound to guide the needle. A countdown from 3 was used so I knew when the needle would be inserted. A slight pressure was felt where the needle went in but it didn't feel tight/ choking. I just knew it was there. I found it good to focus on a point in the ceiling to distract myself from it. The needle was inserted 3 times in total to get enough representative cell samples.

A sticky plaster/bandage was placed over where the needle went in which I removed the next day. Felt fine after it, went home 10 minutes or so after the procedure. 

For anyone wondering how it turned out, the diagnosis was papillary carcinoma. I'm having my left lobe of my thyroid removed in just over a week and have spoken to people who have had this surgery. Outlook is positive. Did have consult with surgeon and having vocal cord check, bloods and ecg prior to surgery. Don't forget to ask about risks with flying pre and post surgery just incase you are a high risk patient for surgery. Hope this post helps someone who is in a similar boat to me.

  • Hi Hoof,

     

    No worries, my first results came back inconclusive as there was too much blood in the sample. I got another FNA done and that came back as 3a, so he said it's not benign but it's not definitely cancer either so it was a choice of have surgery and take it out and then confirm if it's cancer or and we wait 6 months and do another FNA & ultrasound and see if it changes. I decided to go with that option as I was starting my nursing degree at university and didn't want unnecessary surgery if I could avoid it. Then I got the second FNA done but I never got the results bcos the coronavirus epidemic started and my appointment was cancelled. I haven't had any contact with the hospital since so I'm hoping it's still 3a. I try not to think about it but it does worry me, not sure what to do really. I have 2 young kids and you hear these horror stories about cancer being missed. 
     

    It's great to hear you had a positive outcome. Hope you are doing well. 
     

    Aimee

  • Hi Aimee,

     

    Great that you had the second biopsy. Is there any way they could send your results to your gp and get them that way? Be good to know for your own peace of mind and if it were the case where u needed surgery now would be the time to have it when universities are closed. 

  • Thanks for coming back to me, it's prompted me to chase it up again. They don't send the results to my GP unfortunately, only after I have the follow up appointment. But I called the hospital today and they said they could try and get me booked in for a telephone appointment in the next few weeks to find out the results so hopefully that will get sorted. 

    I agree it would be a good time to get surgery done if it's required as even when I go back in September it will be all online until January. I have a nursing placement in November that's plenty of time to get healed up.  

     

    I think the type of cancer mine is suspicious of is follicular carcinoma so don't know how that differs to yours but hopefully it doesn't spread easily as it's been 1 year 6 months since I first went to GP about it. 
     

    thanks for your advice! 

  • It's a pity they don't send them to the gp...would be handy. However the phone call would be just as good. 

     

    Mine was papillary carcinoma... one nodule that was 2.5cm in size. Would love to know how long it was here and growing before it was noticed. 

  • I just wanted to say thank you very much for sharing your description. I have an appointment booked for Sunday and didn't know what to expect at all, so I'm grateful for you taking the time to share your experience.

     

    I hope you're well now x

  • Hey mamabookworm,

    No problem. Not knowing what to expect is the worst. After the biopsy I felt like I was getting somewhere, like I'd have an answer. 

     

    All well thanks. Mine turned out cancerous (papillary type which is slow growing) but it was encapsulated with clear margins so I had my left lobe of the thyroid removed. Not on any meds and didn't have any rai treatment. Best possible outcome. Monitoring with an ultrasound every 6 months and blood tests. Hopefully if my next scan is clear they will reduce to annual scans. 

     

    Hope all goes well tomorrow. X

     

  • Well, I didn't have an FNA today after all. When I got to my appointment I was told "we don't do them because it's not a good use of the Consultant's time"!

     

    I don't know why I was sent an appointment for something they don't do and presume the ENT specialist wouldn't have referred me urgently if he hadn't seen/felt something worth investigating when I had the camera up my nose this week? Baffling. 

     

    So, I'm very confused and frustrated now. Not that I particularly wanted a needle in my neck :laugh:, but I thought I was on the way to getting some answers. 

  • Hi

    I'm assuming you've had an ultrasound? Did they say how many nodules they saw on it or what size?

     

  • Yep, I did have the ultrasound. He asked where the problem wS and I told him which side of my neck, but he looked at it all - at one point he said "this is bigger than that one [where I'd pointed] actually" but other than that, he just said I'd get the results (along with the results of next Monday's MRI) when I next see the ENT specialist after those.