Where do I start I've never done anything like this before, My mum is a Paraplegia (wheelchair bond) she has a cathator, stoma, diabetic and Stage 4 Kidney Failure.
My Mum until July led a very active life driving from her wheelchair obviously adapted vehicle, attended craft classes, bowling, lots of normal activites with her friends and family, in July she was very unwell and had to have a plastic stent due to a ampullary tumour causing Biliary obstruction, at the time they took brushings only to see if the tumour was cancer.
Two weeks later she was rushed back into hospital and we were told she would not make it through the day as the plastic stent had blocked and she had ECOLA, they changed the stent to a metal larger stent, she fought hard and was in Intensive Care for 5 days and made it through (she's a fighter) they took a biopsy this time of the tumour.
CONCLUSION AFTER MDT MEETING ON THE 13TH SEPTEMBER IS THE FOLLOWING:
Care Plan Intent: Non Curative
Reason Why: 03- Unit: Significant co-morbidity; 04 - Unfit: Advanced Stage Cancer
Referred to: Palliative Care
MDT Comments: Dictated by GS- Dilated CBD in 2016 with slight increase in dilation on recent MRCP, Obstructive Jaundice due to distal bile duct stricture. Stent inserted at NSEC, Initial cytology C3 but repeat cytology stent change recently is suspicious of malignancy.
Plan: Multiple comorbidities including CKD stage 4, not suitable for resection or pallative chemotherapy. only option Best Supportive Care.
Please help me I cant give up there must be other treatments out there
